SCI-Nurse
Super Moderator
Joined: 24 Jul 2001
Location: USA
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They don't usually do them in the summer, but I will let Jim respond for sure. (KLD) -
Even with a LAL mattress, it is best to sleep on your sides with a coccyx pressure injury. If you can only sleep on your back, be sure you don't have any head elevation. (KLD) -
Don't rule out used vans. Depreciation is pretty steep as soon as they leave the lot. You can often buy one with fairly low mileage if someone passes away. My parents bought their first adapted van on Disabled Dealer (of course only do this with a seller who lives close enough so you can do an in-person...Leave a comment:
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Here is an article about such clinics from Craig (2 years old though): https://craighospital.org/blog/10-gr...-programs-2021
I don't know where you live, but you can Google "adaptive ski clinics and your desired location" to find some.
(KLD) -
We had this struggle when we opened our SCI Center at the local VA Medical Center. The lab techs don't understand the infection and colonization issues of those who have a neurogenic bladder. When our chief of the SCI Center and Chief SCI urologist both talked to the pathologist (physician in charge... -
Your physiatrist should be able to help you with a bowel program (or set you up with a rehab nurse who can do so). For the bladder problems, you need to see a neurologic urologist. (KLD) -
Most people go to an adapted ski clinic first. The type of ski (sled or sit ski, or example) is selected for you and your first runs are made with an AB skier who has you on a tether. I know the Kiwanis in our area fund people to attend one in Colorado annually. Is your "friend" AB or a wheeler...Leave a comment:
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I don't understand your second sentence. (KLD) -
How about this? https://www.amazon.com/Folding-Step-...089125504&th=1
or this: https://www.amazon.com/COSCO-11248NV...45295439831500...Leave a comment:
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This is one I am aware of. It folds pretty flat for storage: https://livingspinal.com/daily-livin...-model-pl1000/
(KLD)Leave a comment:
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Just wanted to say that labs don’t “diagnose” or prescribe treatment. They do standard tests that show organisms-negative or positive and what the organisms are sensitive to. The doctor or provider has to look at and determine what antibiotics are needed. A fungal:yeast vulture can also be done....Leave a comment:
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After you see the neurologist and likely consultation with a spinal orthopedic surgeon or spinal neurosurgeon, you also need to see a physiatrist. (KLD) -
It would help to know your level of injury. Please add that to your profile. Thanks. (KLD) -
Did you read my responses above. Inconsistent with GBS. See the providers I mentioned (not just a GP or internist). Complete your profile!
(KLD)Leave a comment:
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Are you in a Medicare HMO or Medicare only or Medicare/Medicaid? Any of the true full thickness low air loss (LAL) mattresses from major companies are comparable. Invacare is most widely available. If you don't have a full electric hospital bed frame Medicare will rent that for you (after a year it...Leave a comment:
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We’re the scans with and without contrast? Both flanks typically think of kidney. Urine is clear. Gallbladder-referred pain common. Do you have diabetes? But neuropathy presents in many ways. Normal Vitamin D levels? CWOLeave a comment:
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It is possible that abnormal sensation such as pressure may be a form of neuropathic pain. Are you on any medications for this such as Neurontin or Lyrica? If further tests rule out any abdominal pathology, you may want to see a pain specialist. If this is new pain, a syrinx should be ruled out as well....Leave a comment:
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How deep (stage) is your pressure injury? Medicare may rent you one if it is stage 3 or 4. These mattresses need to be placed on a hospital bed frame for safety (not on top of a regular bed frame).
(KLD)Last edited by SCI-Nurse; 29 May 2023, 2:40 PM.Leave a comment:
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Hoyer is a brand name. There are many other better, more portable mobile floor based lifts available now days. (KLD) -
Also consider posting (if allowed) at your local large rehab center or letting the case managers know you are selling. You can also let people know in any local mobility disability support groups (ALS, MS, MD, SCI, SB, etc.). When my mother passed away we sold her van to a couple who were part of her...Leave a comment:
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