Sorry to hear you are going through rough times, Pete.
At 43 years T2/3 I can relate some. I find one of the biggest frustrations is that I sometimes have 2-4 physical issues going on at once and it can be hard to identify which issue is draining my physical and emotional energy.
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ChesBay
Senior Member
Last Activity: Yesterday, 11:43 PM
Joined: 22 Nov 2001
Location: Coastal Virginia
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1 or 2 Spox spokes, Spox wrench?
https://www.sportaid.com/FREE-Spinergy-Spox-Wheels.html
https://www.sportaid.com/spinergy-lx-slx-spoke-wrench-set.html...Leave a comment:
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Sounds good. The only reason I mentioned was that a DME recently put an abductor on my frame because I have a leg with hardware in it and it flops out a bit. I had to take it off because I use a board for car transfer. After I took it off ( abductor) I realized they could have mounted it lower down...Leave a comment:
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Welcome to CareCure.Leave a comment:
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Do you use a transfer board for any transfers?
The side-mounted control looks a little risky for transfers and a place to potentially scrape a butt cheek during a transfer. That's just from a quick look at the video... maybe it's not a factor.
The range and light weight are a plu...Leave a comment:
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Today marks the 31st Anniversary of the Americans With Disabilities Act (ADA).Leave a comment:
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Years ago I had a pull-up bar in the doorway to my utility closet. It was an accessible apartment and a nice wide doorway. I could just open the door and do some hanging. Felt great and loved to shake out the spasms.
I got out of the habit when I moved and didn't really have a good place...Leave a comment:
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Excellent information. I have drawn up my will, ( 68 years old 43 post-SCI). Most of my net worth is a home and retirement accounts with 1 heir, my son, and grandchildren. I have expressed my desires verbally to family and in writing (will and advance directives) and verbally.
I have been...Leave a comment:
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Apologies for taking this long to reply. re constipation, I try to go with what I consider to be my “trigger foods” , a couple of cups of coffee, sometimes a packet of hot cocoa mixed in coffee (winter), magnesium supplement (if it doesn’t interfere with any meds you might be taking.)
...Last edited by ChesBay; 21 Jul 2021, 2:56 AM.Leave a comment:
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I started using Ultraslick board at about 25 years post after breaking my femur. I use for car transfer and put 'Pledge' on them about once a week. They have served me well....Leave a comment:
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Sorry to hear you are going through some really rough times.
When I hit about 30 years post injury ( now 43 years post) my GI started changing. I went to a couple of GI's and colorectal surgeons. Not a lot of help. I came across one finally who diagnosed things that others had missed.
...Leave a comment:
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I have heard some good NPR interviews with Nestor. Particularly "Fresh Air":
https://freshairarchive.org/segments...and-resilience
I am just getting started with audio book. Tried one of his recommendations and felt a difference. I...Leave a comment:
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Congratulations to you and your wife John. This looks like a great endeavor and while I have never made a purchase from you I will be keeping your business in mind.
Always like your posts and you are definitely, "out there doing it".
Wishing all the best!Leave a comment:
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The cecostomy might be something to consider. I have a friend who's daughter has spina bifida ( daughter is about 40). She ( daughter) has had a cecostomy for several years and it works really well for her. ( She had to go to Canada years back, to get surgery.)
A colostomy can still be a bit...Leave a comment:
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