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ejl10
ejl10
Senior Member
Last Activity: 3 Aug 2021, 11:37 AM
Joined: 29 May 2019
Location: Charlestown, MA (C6 incomplete, triceps/sensation)
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  • ejl10
    commented on 's reply to Smoov
    Mine does. And I got it new, so hard to imagine it's that much different than anyone else's.
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  • ejl10
    replied to New Member Here
    in Life
    Welcome! Where are you located? We have members all over, but always good to get a frame of reference.
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  • This is awesome, best of luck to you! I got knocked out of the phase one trial because of a blood thinner that I'm taking, and I'm restricted from phase two because my injury involved a brain bleed and required surgery to remove that pressure. I was sad on both counts! This is an awesome trial to be...
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  • ejl10
    replied to Stricker caught in a downpour
    There is a little lever that determines how much power assist you get, but I find that it is quite touchy. Like 0% to 60% assist with the first nudge, and then it ramps up from 60 to 100% more smoothly. So, basically, you get a lot of torque right out of the gate!...
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  • ejl10
    replied to Stricker caught in a downpour
    Not yet, but looking forward to it! Actually, just got out of the hospital for pretty major surgery and I'm sitting in rehab right now. It might be waiting for me in the mail as I type!

    As to the throttle, this thing is a torque machine! Reminds me of my old two cylinder motorcycle....
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  • ejl10
    replied to Stricker caught in a downpour
    Yep, this is my experience. The weights up front are nice, but with the power assist and all of my weight going on the rear wheels the thing spins like a madman....
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  • ejl10
    replied to Stricker caught in a downpour
    I've been caught in the rain with mine before. I find that the front tire spins pretty darn easily once wet. Same with sandy patches, gravel, or steep uphills (all very common here in the Northeast). Definitely best used in dry conditions.
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  • ejl10
    replied to Upcoming surgery for Myositis Ossificans
    in Care
    Hi KLD and others,

    I just wanted to provide an update to the group on this. Despite knowing that there are challenges with the still growing HO, I ended up scheduling the surgery to remove it. Hard to describe, but it had gotten so bad that I couldn't really set up in my chair anymore and...
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  • Sorry, already sold. Sad story, actually. Somebody bought it from me on eBay, and had it shipped through the eBay shipping service to their home overseas. When it got there the box was severely damaged and the cushion, too. He sent it back and it somehow got lost in the shipping process. So he got refunded,...
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  • ejl10
    replied to Cushion besides Roho
    It can be really hard to find good care for our condition outside of the model systems network. They're simply aren't enough of us to make a market sufficiently attractive for a lot of investment and focus (you're much better off selling iPhones than wheelchair cushions!). Even in model systems, I think...
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  • ejl10
    replied to Tablet options
    Prior to my injury I used an Eve V hybrid Windows laptop / tablet, similar to a Microsoft Surface. Since my injury I've found it pretty useful because it's a full-fledged Windows computer but can operate pretty well in tablet mode. The only thing I don't like about it is that the screen sits really...
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  • ejl10
    started a topic WTB: D's Locks

    WTB: D's Locks

    Does anybody have a set they aren't using? Really, all I need is the piston, cable, and lever units for a new, backup wheelchair. I already have the lock rings installed on my wheels that I'll just swap between the chairs.
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  • ejl10
    replied to Contemplating a colostomy… seeking input
    in Care
    If I ever smell anything, I know that I should have changed the wafer yesterday (I use a two-piece system and typically get 7 days between wafer changes). Fortunately, no one else has ever noticed, unless I have burped it - please do that well away from people and areas they may visit in the next few...
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  • ejl10
    replied to summer leg bags
    I used this... Not strictly a cover, but holds the bag in place without bands and serves double duty by covering! Used with an 800ml Urocare bag since they have a quad-friendly valve option.

    https://www.amazon.com/dp/B07CQRXKQF...ing=UTF8&psc=1

    Hansilk Catheter Leg Bag...
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    Last edited by ejl10; 11 Jul 2021, 1:12 PM.

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  • ejl10
    replied to Miami Project Breakthrough?
    in Cure
    Hey, I'm game. Not planning to lose hope until they put me in the ground, so I reckon I've got at least a couple of good years left to hope!...
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  • ejl10
    replied to Contemplating a colostomy… seeking input
    in Care
    When I got the colostomy I was using an indwelling Foley. About a month later, I switched to self-cathing and that's what I do today. I feel like a colostomy should be largely compatible with any bladder strategy, but certainly worth a check-in with your urologist!...
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  • ejl10
    replied to Contemplating a colostomy… seeking input
    in Care
    I'm happy to chime in here a little bit, too. I'm 43, 3 years into my C6 injury, and got a colostomy last November. I got it because I have very severe heterotopic ossification in my hip and pelvis that is obstructing my ascending colon and therefore made the bowel program just an absolute disaster,...
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  • Yeah, pretty sure I saw it first on Facebook!...
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  • I was very fortunate and was recently gifted one of these by a grant foundation. I placed the order earlier today, and I was impressed with the process because they asked for a lot of information about my wheelchair, including obviously the make and model, but also a series of photos both with me in...
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