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ejl10
ejl10
Senior Member
Last Activity: Yesterday, 10:31 PM
Joined: 05-29-2019
Location: Charlestown, MA
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  • ejl10
    started a topic Upcoming surgery for Myositis Ossificans
    in Care

    Upcoming surgery for Myositis Ossificans

    Last October my upper right quadricep began to swell up massively, and after several days in the hospital the team determined that I had a massive hematoma resulting from an internal bleed that, of course, probably resulted from taking blood thinner far longer than was necessary after a blood clot I...
    Myositis ossificans circumscripta (MOC) is a rare benign disorder characterized by heterotopic ossification of soft tissues. We report a case in a 21-year-old male who presented with knee pain after strenuous physical activity. Evidence of inflammation of the knee and a hard swelling in the subquadr …
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  • ejl10
    replied to stuck wheel
    How close are you to the coast? Up here in the Northeast I've heard that a lot of people have this happen due to salt water corrosion. Apparently gets downright impossible to remove the wheel even with heavy hammering, so I would definitely give it a wallop rather than wait!
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  • https://www.amazon.com/gp/aw/d/B01CJ...b_b_asin_title
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  • ejl10
    replied to 1 year post injury.
    I had my 2-year about a week ago. I'd say it was harder this year than in other years just because of the crisis going on, which inevitably amplifies your one year challenge more than it should. I've had a rough go due to some lagging issues, but even with that I can say that it gets better. Hang in...
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  • ejl10
    replied to Quad suppository in commode?
    in Care
    Great, thanks. I'm certainly hitting the marks on fiber and water, though only taking 300mg of Colace. I'm also quarantining with family and don't have access to a standing frame, but can't do a whole heck of a lot about that at the moment.

    My only concern is that in addition to these,...
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  • ejl10
    replied to Peristeen??
    in Care
    That's what I suspect, too. Probably not ideal for a quad without hand function. Even the Peristeen catheter with a fully inflated balloon, I found, comes out under pressure sometimes. Still, I'm hopeful that some miracle product comes along for us!

    FWIW I bought my Peristeen from Canada,...
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  • ejl10
    replied to Quad suppository in commode?
    in Care
    I suspected that was the case. Any advice on how best to manage the weaning off process without undue constipation?
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  • Really useful information here across the board. Thanks everyone for your insights! I was actually hoping for an excuse to move, but it sounds like that will inevitably be a really hard decision. Got to put on my thinking cap...
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  • ejl10
    replied to Peristeen??
    in Care
    Thank thank you, this was really helpful! A question, though... What exactly do you mean by plug it up? With the peristeen there's a bubble on the end of the catheter that literally plugs up the anus. With this device do you have to hold it in place with one hand while instilling?...
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  • ejl10
    replied to Quad suppository in commode?
    in Care
    Thanks, PBR. I'll definitely have to fidget around and make this work. I haven't had much success yet no matter how much I do in bed, but it feels like it has to come with time. After all, pre-injury I always managed to poop on a toilet!

    I've read some of KLD's warnings about oral stimulants...
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  • ejl10
    replied to Good showed / commode chair
    After a good bit of research, I recently bought a Raz SP with the extra thick cushion option. Coming from a Shower Buddy with a Roho, I was a little nervous that the cushion wouldn't be sufficient for my weak skin due to flap surgery last year. However, I haven't had any problems despite spending more...
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  • ejl10
    replied to Funding for caregiver payroll
    I did some research a while back and found that only three states enable Medicaid buy-in without an income limit. Those are Massachusetts, Minnesota, and Arkansas. Not sure what your appetite is for the specific state, but I'd venture to guess Arkansas qualifies as warmer than Maine!
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  • ejl10
    replied to 47 years post injury
    in Life
    Yesterday was my 2 year. I wish I had such a good story.... Heck, I wish I had ANY story I could remember, haha! Anyway, happy anniversary Patrick.
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  • I bought an MX2+ with one of the new watches off of eBay a few months ago. I never used the original watch, but I'm surprised how short the battery life is on this one.
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  • ejl10
    replied to carecure performance
    It's been a mixed bag for me. Some things seem to operate more smoothly, others a little bit more slowly. All in all much better!

    The one thing that drives me crazy is when I'm posting a response, if I go back and edit something in my response and I write a space my phone kind of auto...
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  • ejl10
    replied to Peristeen??
    in Care
    I know this thread is 2 years old, but I'm curious in what way the Irypump is superior for quads. Can those without hand function effectively use this independently? I'm imagining some sort of dil stick type apparatus. The Peristeen is very close for me, but I still can't quite do it myself....
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  • ejl10
    replied to Quad suppository in commode?
    in Care
    Anyone have any other thoughts about this? I've been trying for almost a month now, and simply can't poop in my commode. Transfer back to bed, and it's no problem at all.
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