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Scott C4/5
Scott C4/5
Senior Member
Last Activity: Today, 12:33 PM
Joined: 24 May 2009
Location: USA
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  • Scott C4/5
    replied to Feeding
    This is very similar to what I used for a while, but mine attached to my chair (while in use). Perhaps you could find someone to build one or something like it.
    ...
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  • Scott C4/5
    replied to Feeding
    When I was in rehab and before my arm got strong enough, they had an L-shaped bar that connected to the back of my chair and it had a spring like bungee cord that held my elbow in a sling. It made my arm weigh less and allowed me to feed myself. I'm not sure what it was called but perhaps someone else...
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  • Scott C4/5
    replied to Week of hell rant...
    in Life
    I have called the patient advocate's office twice and left a message but have not heard back. I'll call again tomorrow but if I don't hear back I guess I will contact someone in the state that regulates the hospitals??
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  • Scott C4/5
    replied to Time for a colostomy or ileostomy...
    in Care
    Okay, I'm going to call the surgeon again now that I have had my Covid vaccine and waiting 2 months after having my emergency abdominal surgery. I am going with a colostomy on the descending colon. I have asked doctors and nurses about having a WOCN nurse check for correct placement but apparently that...
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  • Scott C4/5
    replied to Botox for bladder
    in Care
    I used to take 15mgs of Ditropan but it did nothing. Toviaz is relatively new. My urologist said that the Myrbetriq worked on either the top or bottom portion off the bladder white Toviaz worked on the other portion. I don't recall which did which but it was like turning a spigot off. If Botox fails...
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  • Scott C4/5
    replied to Botox for bladder
    in Care
    I had really bad bladder spasms for several years, and I mean that I leaked more around the stoma than drained through the catheter. A couple years ago I tried Botox and with 200 units it only kept me dry for two weeks. They gave me another dose later but it did nothing. I eventually started talking...
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  • Scott C4/5
    replied to Week of hell rant...
    in Life
    Do hospitals anywhere else in civilized sections of this country disimpact SCI's without doctors orders? I have only ever had a nurse do one, maybe 2-4 times in all the years that I have gone to my local hospital. If I needed one, my family or caregiver would come to the hospital and do it, but with...
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  • Scott C4/5
    started a topic Week of hell rant...
    in Life

    Week of hell rant...

    So on May 19, my parents went out for dinner and brought me back prime rib, (rare) baked potato and rice. Later that evening I started getting sick and thought that it might have been the rare prime rib. Throughout the night I threw up what constituted my dinner and felt a little better, but by morning...
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  • Scott C4/5
    replied to Trulance
    in Care
    When the Trulance was working all I needed was to have someone extract the stool just past the rectum. For nearly 25 years, my bowels moved almost entirely on their own down to the rectal vault, only needing extraction. The last 5-6 years have required me to use laxatives and suppositories to get the...
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  • Scott C4/5
    replied to Trulance
    in Care
    Well the Trulance stopped working after about two months and then quit. I'm back on Linzess. I had to have emergency abdominal surgery 6 1/2 weeks ago but that is another post (coming soon).
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