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KyleP2112
Senior Member
Last Activity: Yesterday, 10:31 AM
Joined: 4 Jun 2008
Location: Waterford,NY
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  • What do you think of the lithium suppository SCI nurse? Don’t have much knowledge of people using that for bladder pain/spasms. My bladder problems seem to elevate my overall chronic neurogenic pins and needles feeling a ton along with giving me a icy cold feeling through my arms in other areas
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  • The urologist I’m saying mention the possibility of using licodine bladder installation and lithium suppositories something that could help. The belladonna, opium suppository, has had a nationwide shortage. Figures the opium suppositories did help.
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  • I haven’t actually tried medical marijuana for this but I definitely should. I need to research more about it. Haven’t tried Tegretol. Can you tell me more about it? Thanks again...
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  • At least I’m not the only one going through this terrible constant pain every day from the moment you wake up. What have you done to try to lessen the pain? Any meds or doctors that help you with anything?...
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  • I have tried different urologist in the last year. This current one is my third who I was referred to after the previous urologist found Botox injections were no longer effective. The current urologist and I were considering a urostomy but he thought I wasn’t a good candidate because my issue is...
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  • KyleP2112
    replied to New User Introduction
    in Care
    Welcome to The forum. There’s a lot of good information to be found here from members and the SCI nurses. Hopefully if you find the right doctor you’ll be able to find some help.
    seems like these long-term issues can happen after many years of a spinal cord injury. My injury was 26 years ago...
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  • I went to the “Pelvic health center“ as my urologist suggested. Unfortunately it was a waste of time and this is definitely not for people with SCI. Need help dealing with painful bladder spasms that are controlled by medication or Botox…

    Not sure about a urostomy because right now...
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    Last edited by KyleP2112; 22 Jan 2022, 2:02 PM.

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  • Hope you’re doing better…
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  • KyleP2112
    replied to Bladder enlargement
    in Care
    I’ve also had a super pubic Foley catheter in for the last 20 years plus roughly and I am experiencing A lot of the same issues. Not doing Botox anymore because the urologist said it’s basically no longer effective at controlling spasms. Was referred to different urologist about a urostomy potential....
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  • “Pelvic Health Center” for bladder pain management?

    After Botox injections in the typical medication‘s have failed to control my bladder pain/spasms my urologist referred me to a “pelvic health Center“. Anyone ever heard of this? Not sure if it could help me really since I would just be seeing a physical therapist.

    I think they’re...
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  • I have a flow Tronics pump and have been receiving Prialt but I’m starting to think it’s not really having much of an effect every day is a very terrible chronic neurogenic/nerve pain. I feel pins and needles intensely through my biceps to fingers and chest to toes basically. Lately with bladder...
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  • KyleP2112
    replied to always cold
    in Care
    I’ve had so many issues over the years with feeling cold and wanting it a lot warmer then others in my family (who don’t have a spinal cord injury). Recently though with increased bladder problems and pain from my bladder it seems the icy cold feeling is really intensified through my arm and shoulders...
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