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  • Tysabri

    Sorry if this is addressed somewhere I didn’t find. Last I saw a neurologist he wasn’t prescribing it because of risk of death. My pain/spine doctor said they’ve now determined who’s at risk for PML (or whatever is the deadly thing) so it could be pretty reliably safe if you’re not in that group. Does anyone know if this is true and where I could find such research? And/or a doctor in central NJ who’s using it?

  • #2
    Hello Random, Tysabri is being prescribed again by doctors trained and approved to do so. As you mentioned, it had been taken off the market. Hope you have found a doctor in your area that is up to speed.
    Injured 7-22-06, T-11 T-12 complete. [Holds up cardboard sign] "Will work for returns."
    2010 SCINet Clinical Trial Support Squad Member
    Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

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    • #3
      You can find a lot of this information on the drug company's website:

      http://www.tysabri.com

      Also, check out this page from the NMSS:

      Tysabri

      (KLD)
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      • #4
        I spoke to my doctor who told me that on top of all the other limitations, they won't approve use in anyone with any lasting progression, only relapsing-remitting with full interim recovery.

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