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  • Neuropathy.

    I believe that neuropathy is an problem related to nerves. Can anybody explain type,effect, causes and remedy of neuropathy.
    K.N.Motta.

  • #2
    Neuro = nerves
    Pathy = disease

    Peripheral neuropathy, which is neuropathy of the peripheral (non-spinal cord, non-brain) nerves is often associated with other diseases such as diabetes, peripheral vascular disease or alcoholism. It can also be the main feature of some diseases such as Guillan-Barre Syndrome. Vitamin deficiencies can cause some types. There are many different forms, causes and treatments of these problems, often associated with controlling the original disease process (such as with diabetes).

    Central neuropathy is disease of the nerves within the central nervous system (brain and spinal cord). This includes diseases such as HSP and ALS.

    Did you have a question about a specific disease?

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #3
      I was interested in your explanation of Neuropathy, I have posted under Subacute Combined Degeneration of the Cord / B12 deficency, and that neuropathy certainly effects the spinal cord and I was made to understand that what I am suffering from is Peripheral Neuropathy which causes short term paralasys so am I now to assume this is wrong.

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      • #4
        neuropathy and hereditary spastic paraplegia

        i have h.s.p. and what seems like neuropathy. recently pain as gt worse i need to use my stick more and on short shopping trips i need to use mobility scooter. my legs, hands, arms and fingers pain so much my spine feels stiff. anybody out there with same? i'm on gabapentin, escatralapram and tizanidine

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        • #5
          Hi folks I'm new to the forum

          I was diagnosed with Neuropathy about 3 years ago but probably have had the effects for 5. I haven't seen a specialist in this field. I have talked about this condition with 5 different doctors. Thay all want to treat it with pain management meds,these meds even tho they help somewhat in limited doses I cannot tolerate the side effects of making me sleep all the time. I can force myself to stay awake but if I lose tract of that thought I just nod off. I even went to sleep at a red light while driving. I keep telling these doctors that this type of treatment is unacceptable but don't get anywhere they just try a new one. I have read where there are specialists in the field of PN but I have been unable to find one in Houston,Tx. You would think that Houston being one of the largest cities in the US would have some listings,

          I would appreciate any direction in this matter.'
          Thanks dick

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          • #6
            Dicklaxt, try TIRR. It's a major rehab center near you.
            Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

            Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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            • #7
              Thanks Sue ,I'll look into that.

              dick

              Comment


              • #8
                Dick, what is the cause/mechanism of your peripheral neuropathy? Are you alcoholic? Diabetic? Have you had chemical or heavy metal exposure? Do you have a nerve compression syndrome? Neuropathy is a catch-all term that really doesn't mean anything without more details.

                (KLD)
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                Comment


                • #9
                  Gosh,I don't know how to answer that,,,,,,I am not an alcoholic,I am not a Diabetic,no chemical or metal exposure. I do have two bulgding disks in my neck and some stenosis in lower right side of back.These have both been ruled out as root cause by both an Osteo and a Neurologist.

                  Symptoms are simply this,numbness and burning of the bottoms of both feet( right foot is worse),more severe in the ball of foot and toes ,pain often times radiates up legs to knee,hips sometimes ache so bad while walking, I have to stop and rest so to speak.The numbness is complete,I once stepped on a piece of glass, a 1 inch long cut was the result and I did not know it until my wife hollered,"Look what you are doing to the carpet what happened?" I stepped on a push pin once and it went all the way to the hilt,I only felt it when it hit the bone of the foot.Numbness is extreme to the point where is affects balance as I can not feel the pressure of leaning thereby do not know how to counterract a leaning by opposite muscle contractions.Periods of pain,stiffness after sitting and when I get up walking is really difficult at those times because of the discomfort.

                  I suppose none of this has much meaning to you as it didn't seem to give these doctors any clues as to how to start a different approach other than meds that mask the synptoms and of course then the side effects kick in as mentioned previously.

                  There are times when sitting basically at total rest when a sharp searing pain will set in,very v localized,and when it seems you can stand it no more before you yell out it stops as quickly as ut started.Here is another symptom that occurs frequently and that is the sensation of stepping on a sharp object but there is none,that ones really a mystery to me.I have at times even looked to see what is stabbing me but nothing is there.I know all this sounds weird,maybe its Aliens LOL.

                  Thanks fo listening.

                  dick
                  Last edited by dicklaxt; 05-24-2008, 05:21 AM.

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                  • #10
                    Originally posted by dicklaxt
                    I was diagnosed with Neuropathy about 3 years ago but probably have had the effects for 5. I haven't seen a specialist in this field. I have talked about this condition with 5 different doctors. Thay all want to treat it with pain management meds,these meds even tho they help somewhat in limited doses I cannot tolerate the side effects of making me sleep all the time. I can force myself to stay awake but if I lose tract of that thought I just nod off. I even went to sleep at a red light while driving. I keep telling these doctors that this type of treatment is unacceptable but don't get anywhere they just try a new one. I have read where there are specialists in the field of PN but I have been unable to find one in Houston,Tx. You would think that Houston being one of the largest cities in the US would have some listings,

                    I would appreciate any direction in this matter.'
                    Thanks dick
                    Dick,

                    I am sorry to hear of your experience. It is true that most doctors don't really know what to do with neuropathy. Since they don't have any treatment, most of their effort is devoted to trying to identify a cause and seeing if the cause can be corrected.

                    The most common cause of peripheral neuropathy is diabetes. By the way, the reason why diabetes causes neuropathy is still not well understood. As we are beginning to understand more about diabetes, it is clear that at least the juvenile version of the disease is autoimmune, i.e. due t the formation of antibodies about cells of the pancreas that make insulin. It is possible that it may cause autoimmune attacks of components of the peripheral nerve a well. When I went to medical school and for a long time afterward, the autoimmune aspect of diabetes was not appreciated. Even today, you may find doctors who don't know and don't keep up with the literature.

                    One of the questions that I would have is whether or not you have some kind of auto-immune condition and whether you have been investigated for this possibility. Unfortunately, the treatment for autoimmune conditions is still relatively primitive. Some doctors use steroids or even immune-suppressants. If you do have neuropathy of autoimmune origins, there is one known cure and that is ablation of your bone marrow and transplantation of new hematopoietic cells which eliminate the cells that make antibodies against your peripheral nerves.

                    Neuropathy usually causes pain and this is from deafferentation of the central nervous system. Most doctors who treat neuropathy spend most of their time treating the pain and do little for the loss of sensation or weakness that is associated with the neuropathy. One frequent cause of transient neuropathy is a condition called Guillain-Barré. This is often associated with an infection and resolves over a period of many months, often with residual effects. Treatments for this are typically anti-immune as well. I think that if you had this, you would be describing the acute onset.

                    Several vitamin deficiencies cause neuropathy, particularly of the vitamin B variety. Alcoholism and other toxins can aggravate such neuropathy, as well as repetitive stress. Likewise, infections may complicate the diagnoses. For example, herpes infections and otehr viruses may initiate or complicate peripheral neuropathy. Finally, there are several forms of genetic (familial) peripheral neuropathy.

                    http://www.ninds.nih.gov/disorders/p...neuropathy.htm

                    Wise.

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                    • #11
                      Have you had a work up by a vascular specialist also? This sounds somewhat like something I read before. The neuropathy comes on as veins in the lower legs and ankles begin to narrow. Otherwise Guillame Barre sounds spot on.
                      Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                      Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                      Comment


                      • #12
                        My mom's GP thinks she has neuropathy and has set up an appt. with a neurologist. I've been doing some reading online to learn about the disease and have a questions. Everything I read about it seems to discuss the pain involved but she has no pain; she DOES have major numbness in her hands and some numbness in her feet. The numbness in the hands has progressed quickly over the last four or five months to the point that she can't write or hold eating utensils. She is not diabetic. Do neuropathies ALWAYS involve pain? Can the numbness be alleviated with treatment?

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                        • #13
                          Originally posted by Tarpon
                          My mom's GP thinks she has neuropathy and has set up an appt. with a neurologist. I've been doing some reading online to learn about the disease and have a questions. Everything I read about it seems to discuss the pain involved but she has no pain; she DOES have major numbness in her hands and some numbness in her feet. The numbness in the hands has progressed quickly over the last four or five months to the point that she can't write or hold eating utensils. She is not diabetic. Do neuropathies ALWAYS involve pain? Can the numbness be alleviated with treatment?
                          Tarpon, peripheral neuropathies are often associated with pain but not always. It may develop later. There are of course many theories, but neuropathic pain or central pain is believed to be something that the central nervous system develops as a result of being disconnected from sensory inputs and if typically worse if there is inflammation involved. Wise.

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