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    Bug borne Infectious diseases?

    This is a little gross. Don't read if you're faint of heart.

    1 – Something bit me the other day on my neck. It actually made me bleed, and a few days later I got all these itchy spots all around my body. They started in a line down the back of my left leg, but then appeared all over bilaterally. They started as little pinprick looking dots, and then some spread to thumbtack size almost and maybe also bigger blotches. Some had little pinprick heads that secreted liquid, thinner than I would call puss, but it stained my bedding and clothes. Cortisone cream helps the itch, but I'm a little afraid to take Benadryl, because last time I did that, in the mid-90s, I got Bell's palsy. That, and the initial linear presentation, and my high regard for our nurses in conjunction with the unavailability of my own, lead me to post here. Does anyone know if this could be anything infectious that I should treat?

    2 – I am seeking an infectious cause for my initial neurological decline. I started having mild neurological symptoms after returning from a semester in Spain years ago. Lyme disease tests were inconclusive but lumbar puncture was negative for Lyme (although positive for something wrong – – maybe lots of white blood cells? I forget.) Mild worsening followed by discrete declines after spinal injuries leave me now an incomplete tetraplegic with a severely atrophied cord.

    Some slight improvement in the feeling in my legs subsequent to a couple of rounds of IV antibiotics in 2000 (for aspiration pneumonia) fortified my long held skepticism of my MS – sorry you're just screwed – diagnosis. My sensation has always remained largely intact. By "feeling" I mean my internal awareness of my legs. Maybe that's called proprioception – I feel more like I should be able to move my legs, even if I can't. My doctors perpetually tell me I have "inflammation," and at least sometimes I have elevated c – reactive protein.

    I've been planning and failing to post about this in also the European forums with more details, but I figured I would take a shot at it now while I'm asking about infectious things. It was 1988 and I lived in Salamanca and visited Madrid, Barcelona, Sevilla, Malaga, and Córdoba in Spain; Nice and Paris in France; Venice, Florence, and Rome in Italy; and spent a day in Morocco, on the touristy edge of Africa.

    Anyone?

    #2
    Not much this complete T12 can add except that if I ask my big toes to raise, I could swear I feel them pushing against the top of the shoe..............
    even the right one.........where the leg was amputated!
    69yo male T12 complete since 1995
    NW NJ

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      #3
      Originally posted by Random View Post
      This is a little gross. Don't read if you're faint of heart.

      1 – Something bit me the other day on my neck. It actually made me bleed, and a few days later I got all these itchy spots all around my body. They started in a line down the back of my left leg, but then appeared all over bilaterally. They started as little pinprick looking dots, and then some spread to thumbtack size almost and maybe also bigger blotches. Some had little pinprick heads that secreted liquid, thinner than I would call puss, Anyone?
      Monkey disease? Monkey Pox?

      https://edition.cnn.com/2022/05/19/h...ess/index.html

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        #4
        Random! Tho I have no great eureka for you, I can definitely offer my empathy! I’m now 27 years into possible MS! Grew up playing in the woods in CT, used to go running through the beach grass IN LYME, CT in my late teens. No oligoclonal bands or whatever else they look for in LP. Had weird high fevers every six months for years in my late twenties before neuro symptoms started. Bloodwork typically has nothing. Multiple long cord lesions that aren’t the MS shape. For nine months about 15 years ago there was an area of dots in my brain and they sent me for a surgical consult. Surgeon said, “It’s an organism or anyerism but I can get to it if I need to. Let’s see what it does.” Stuck around for a bit then was gone.

        I studied in Grenoble, France in 86, traveled Western Europe, and, interestingly, had a Moroccan boyfriend. I honeymooned at the beach in Venezuela and was wildly miserable on the plane ride back with what seemed to be a really bad yeast infection. Gyno looked and said herpes but it, of course, cultured negative. That mysterious thing recurred over the years. I’ve always suspected some kind of post Lyme thing, rare STD or who knows. I’ve never tried a course of antibiotics or antivirals. I’m about to see a UConn neuro who lists “MS mimics” among his interests. CERTAINLY he’ll be the one to finally figure it out, right?!

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          #5
          Suggest you see a specialist in infectious diseases. The bite you describe sounds like a spider bite to me, not a mosquito. Have you ever had an MRI to confirm your MS diagnosis?

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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            #6
            its yellow fly or deer fly season here i got bit dang armswelled lots of heat if your in or around florida could be nasty creatures

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