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May 1st marked 17 years since my Dx. I can't believe how far I have come....!

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    May 1st marked 17 years since my Dx. I can't believe how far I have come....!

    May 1st marked 17 years since the last time I lived a normal life. On May 1st, 2005,I was admitted to the hospital with severe back pain. I was diagnosed with ADEM but suffered a complication called “Locked In Syndrome.” Within weeks I became completely paralyzed only being able to blink.

    I’ve kept most of the things that I went through to myself because I don’t really like talking about my life to anyone and it’s really hard to revisit those memories, however, with the push of my family I finally decided that I should get my story out there in hopes of helping others get through there hardships and that there is a light at the end of the tunnel.

    I’ve created an intro video and released it on my Tiktok and hopefully, in a few weeks, will start releasing short video clips of my story in chronological order of some of the obstacles I went through and how I recovered so much despite the severe damage that occurred in my Central Nervous System and the poor prognosis the specialists had given me.

    If my story even helps one person then all of this was well worth it.

    https://www.tiktok.com/t/ZTdbX9V1y/

    Tiktok: salras2022

    Instagram: @salrasuli

    #2
    Welcome to the CareCure Community!

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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      #3
      Originally posted by SCI-Nurse View Post
      Welcome to the CareCure Community!

      (KLD)
      Thank you! I've been a member for about a decade now but I finally choose to come out of my shell to help others. Anyone, please feel free to contact me if I can help or if you want to just talk. =)

      Regrads,

      Sal

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