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New MS medication: Ocrevus by Genentech

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  • New MS medication: Ocrevus by Genentech

    did I miss discussion about this? Do I remember reading there was some false report? Has anyone any information or experience? wid=sy9cDPvWf-dc_pcrid_188996528847_pkw_ocrevus_pmt_e&utm_source =google&utm_medium=cpc&utm_campaign=&utm_term=ocre vus

    Last edited by Random; 04-04-2017, 01:05 AM.

  • #2
    New IV drug, one of the first designed to help with PPMS progression, but also approved for use with RRMS.

    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.


    • #3
      I'm on track to have my first infusion in a couple weeks. Just had the screening blood draws and ECG yesterday. I'll let you know how it goes.


      • #4
        Sister in law has started the treatment, so far no improvement. Its early, but at least she hasn't had any regressions. That in itself would be a win for her.


        • #5


          • #6
            Hi all,
            PPMS since 2007. So I had my first infusion in Oct Nov of last year. My Dr. at UCSF wanted to use my B cell levels as the driver for second treatment. In late April they were at zero so we chose to delay for a few months. In May I had an annual MRI and no new or enhancing lesions!!!


            • #7
              I’m going to hold off for now. If I have MS, it is not what is giving me trouble right now. It would not be worth even a small breast cancer risk to me.



              • #8
                I apologize if I alarmed others with that. My doctor told me recently that the breast cancer finding was not present in the larger sample size. I guess I’ll take that on faith. I’m working on getting set up to try it. Has anyone any new experiences or thoughts?