No announcement yet.

Acute Flaccid Myelitis

  • Filter
  • Time
  • Show
Clear All
new posts

    Acute Flaccid Myelitis

    The San Diego Union-Tribune, Dec. 28, 2016
    Polio-like syndrome has no known cause

    Nearly 60 cases of a rare polio-like syndrome have been identified in California since 2012, a study in the Journal of the American Medical Association reported Tuesday. And despite intensive investigation, the cause remains unknown.

    Called acute flaccid myelitis, the syndrome is characterized by a quick onset of muscle weakness in one or more limbs, along with evidence of spinal cord motor neuron damage. Children are most affected. Out of the 59 cases, the median age was 9, with 50 cases in people younger than 21.

    The illnesses occurred between June 2012 and July 2015. In most cases, the weakness lasted for at least several months. For the 45 patients with follow-up data, 38 had persistent weakness at the followup. The followup occurred at a median time of 9 months, spread over a range of 3 to 12 months. Two patients, both immune-compromised, died within 60 days of diagnosis.

    "Although the syndrome described is largely indistinguishable from poliomyelitis on clinical grounds, epidemiological and laboratory studies have effectively excluded poliovirus as an etiology," the study stated. Its first author was Dr. Keith Van Haren, a neurologist at Stanford University Medical Center.
    Researchers examined records collected at the request of the California Department of Public Health, which acted after learning of three such cases in the fall of 2012. This was unusual, the study stated, because no such cases had been identified in the previous 14 years.

    (for the rest of this story)

    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    I've read about that and just wonder if a mutation in the poliomyelitis virus isn't responsible (especially given the suspected link between AFM and enterovirus) - the clinical symptoms and populations are the same, and it appears to me as if the health agencies want to downplay that possibility for the time being. The language in these reports is understandably very cautious. More work needs to be done and data collected, but at the same time one hopes there won't be any more data to analyze!
    MS with cervical and thoracic cord lesions


      It is disturbingly similar to what happened to me, except they called it Transverse Myelitis.
      Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

      T-11 Flaccid Paraplegic due to TM July 1985 @ age 12