Announcement

Collapse
No announcement yet.

Tethered cord diagnosis/surgery

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Tethered cord diagnosis/surgery

    So after my appointment today, I have a tethered cord & they are recommending surgery to fix, of which I am scared to death. Has anyone else had this surgery as an adult? Just kinda wondering how bad it's gonna be. My dural sac which should be round is triangular shaped, & there's a "stalk' going from there to the dimple on my back. I have a pic of the MRI if anyone can tell me how to post it, I would kind of like Wise Young to look & give his opinion.
    Thanks in advance for anyone that can post their experience with this type of surgery.

    Brooke

  • #2
    Brooke, I'm glad you finally know what's going on. I've seen plenty of posts here by adults who have undergone untethering procedures, and I hope that you'll get a lot of feedback. In the meantime, have you done a forum search on tethered cord? The search function at CareCure has really been a boon to me and you might find some of your questions answered in the threads that come up. Thank you for this update - hope you hear from knowledgeable people who have been through the surgery and know the kinds of issues involved.
    MS with cervical and thoracic cord lesions

    Comment


    • #3
      Hi Brooke,

      I had that done at age 38 - surgery followed by weeks of PT. The surgery itself was not too bad, nor the recovery. However, given the nature of my situation, I did lose some function (which I was in the process of losing anyway...) Don't know what your current situation is and I'm sorry you're dealing with this. PM me if you have any specific questions.

      Comment


      • #4
        I will be 35 in February, & unfortunately a smoker (will be working on quitting before the surgery so I don't have to deal with nicotine w/drawals) plus ive heard being a smoker does not help the healing process with spinal operations. But I have not lost any function yet, which is probably why they are advising me to go ahead with it before I lose any. I have some weakness in my right leg & numbness in my hip that sometimes runs down to my knee, so even if that doesn't come back, that's not so bad. I want to do it before I lose any bowel/bladder function, which I know is possible if I do not have it done. I work full time so I'm kinda scared of so much time off work (as out ST disability only pays 60% of my salary). What did the PT entail? Just restrenghtening everything or just exercising to get back to 100%?
        Thanks for responding, I really do appreciate it.
        Last edited by BlueEyedVAGirl; 08-25-2011, 06:31 PM. Reason: Added thought

        Comment


        • #5
          Mri

          Here's what the most recent MRI looks like that was done last night. The "stalk" going out to the dimple on my back (I also have a hairy patch there that was noticed when I was five) didn't show up last year on the MRI I had done in my hometown, but they did that MRI w/out contrast, the new one was done with and without.

          Comment


          • #6
            PT was about 4 weeks in a hospital/rehab (and also outpatient for a while) working on getting strength back and teaching me to navigate around on crutches; I had lost a significant amount of function before the surgery and had some other issues since birth, so my case seems more extreme than yours - you may come out with far fewer problems to deal with.

            I also work f/t (I teach high school) - total time lost at work was approx. 5 weeks, although the docs were surprised that I went back that fast. The actual healing from the surgery was not at all difficult or drawn out.

            Comment


            • #7
              Your MRI image suggests spina bifida with filum to soft tissue at the defect.

              It's hard to stop smoking when you are facing such a stressful time.
              Hopefully you will cut down and be able to stop when things settle out/

              Make sure to get several doctors opinions for surgery before you have it done.

              PM me for Doctors in Wash DC

              Comment


              • #8
                Soooooo pissed

                I'm about to BLOW MY TOP, surgery is scheduled for Monday, Anthem approved the surgery as OUTPATIENT!~ and denied the hospital stay of 3 days

                Do these people that actually review the information there actually have any freaking clue what they are doing????

                Sorry for the vent, but I mean, OMG, I do not want to have the surgery as outpatient and then drive home two hours.....Not to mention that my doctor wants me IN the hospital for several days or the fact that once I get home, if anything is WRONG I have to trek back another two hours, OR go to the idiots in town.

                UGH!!!!!!!!!!!!!!!!!!!!

                Comment


                • #9
                  Originally posted by BlueEyedVAGirl View Post
                  I'm about to BLOW MY TOP, surgery is scheduled for Monday, Anthem approved the surgery as OUTPATIENT!~ and denied the hospital stay of 3 days

                  Do these people that actually review the information there actually have any freaking clue what they are doing????

                  Sorry for the vent, but I mean, OMG, I do not want to have the surgery as outpatient and then drive home two hours.....Not to mention that my doctor wants me IN the hospital for several days or the fact that once I get home, if anything is WRONG I have to trek back another two hours, OR go to the idiots in town.

                  UGH!!!!!!!!!!!!!!!!!!!!
                  This is a mistake. If your operation entails cutting the dura, you won't be going home for several days. No if's and's or but's about it. Even three days sounds optimistic.

                  Try to stay calm as you work with your doctor's office and the insurance company to get the mistake corrected.
                  Foolish

                  "We have met the enemy and he is us."-POGO.

                  "I have great faith in fools; self-confidence my friends call it."~Edgar Allan Poe

                  "Dream big, you might never wake up!"- Snoop Dogg

                  Comment


                  • #10
                    i had untethering surgery at least 15 years ago
                    falchi in denver did it
                    i was in the hospital for most of two weeks
                    but after the doctors (and charlottes) prescribed (and threatened with christmas removal) six weeks without lifting, i was back in my racing chair with some return of function

                    good luck blueeyes

                    Comment


                    • #11
                      Sorry for my rant earlier, I'm trying to stay calm. I did talk to the PA to my dr and she said not to worry about it, that she changed it from a three day stay to a 24 hour observation, that they would more than likely approve that, and then they could take it day by day as I'm in the hospital as to how long I need to be there.

                      I feel much better after talking to her. Not quite so ready to kicky booty LOL

                      Yes, they will be cutting the dura, so I was told by the dr that it would be minimum 3-5 days flat on my back(depending on how much they have to cut) before I could even get out of bed, which is why it just hit me SO wrong when I saw that denial.

                      But, the dr's office, and esp his PA, is wonderful, and they are going to do whatever's necessary, which alieves my fears of being kicked out on my butt by the insurance.

                      It's a shame ins. is such a "business" now instead of actually being there when you need it.

                      Comment


                      • #12
                        Originally posted by BlueEyedVAGirl View Post
                        Sorry for my rant earlier, I'm trying to stay calm. I did talk to the PA to my dr and she said not to worry about it, that she changed it from a three day stay to a 24 hour observation, that they would more than likely approve that, and then they could take it day by day as I'm in the hospital as to how long I need to be there.

                        I feel much better after talking to her. Not quite so ready to kicky booty LOL

                        Yes, they will be cutting the dura, so I was told by the dr that it would be minimum 3-5 days flat on my back(depending on how much they have to cut) before I could even get out of bed, which is why it just hit me SO wrong when I saw that denial.

                        But, the dr's office, and esp his PA, is wonderful, and they are going to do whatever's necessary, which alieves my fears of being kicked out on my butt by the insurance.

                        It's a shame ins. is such a "business" now instead of actually being there when you need it.
                        No need to apologize. This is a very stressful set of circumstances you face, and it is normal to be apprehensive. The last thing you should have to think about is whether or not your insurance will cover the treatment you need.

                        I don't want to make a political statement outside the "politics" forum, but there's lots of discussion about this type of "medical loss containment" and "medical rationing" in the politics forum for those who are interested.
                        Last edited by Foolish Old; 09-12-2011, 01:29 PM.
                        Foolish

                        "We have met the enemy and he is us."-POGO.

                        "I have great faith in fools; self-confidence my friends call it."~Edgar Allan Poe

                        "Dream big, you might never wake up!"- Snoop Dogg

                        Comment

                        Working...
                        X