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  • Post Polio Help

    Hi.

    I'm new here. My dad has post-polio syndrome. The left side of his body is weak and getting weaker as he ages.

    He was originally told to exercise, but has since been told that all it does it weaken already weakened muscles.

    I'd really like to be able to help him.

    Is there anything new out (or old out) that can help him?

    Thank you.

    --Amy
    Last edited by SCI-Nurse; 08-31-2010, 12:27 PM. Reason: Signature link spam removed.

  • #2
    Where is your dad? There are a few good post-polio syndrome (PPS) clinics around the country, and these sites have a lot of information and resources available:

    http://www.post-polio.org/

    http://www.skally.net/ppsc/

    There is also this information:

    http://www.nlm.nih.gov/medlineplus/p...osyndrome.html

    http://www.marchofdimes.com/professi...14332_1284.asp

    http://www.easterseals.com/site/Page...and_post_polio

    http://www.i-sites.net/ppsma/medindx.html

    Gentle low-stress excercise that includes stretching and low impact muscle use, such as yoga, tai chi, and swimming are often recommended for PPS, but should be done in short periods with plenty of rest in between.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #3
      Thank you. I'll let him know. The chances of getting him to do yoga are slim though. lol

      Comment


      • #4
        I've already been reading about taking organ meat, like in the Neanderthal diet. I think that's what it's called. I found a site that sells the organ meats in capsule form and I've been taking it for other things. I wondered if anyone had had any luck with doing that taking the testes formula (or anything like it.)

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        • #5
          Originally posted by ulcseminary View Post
          I've already been reading about taking organ meat, like in the Neanderthal diet. I think that's what it's called. I found a site that sells the organ meats in capsule form and I've been taking it for other things. I wondered if anyone had had any luck with doing that taking the testes formula (or anything like it.)
          Haven't a clue what you are referring to and how this applies to PPS. There certainly is no scientific basis for treating PPS with any special diet.

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment


          • #6
            Bay Cliff Health Camp in Big Bay Michigan holds an annual Post-Polio retreat every fall. My mom has gone to it and it has a ton of information for those with post polio syndrome. Pretty far from Cali I know but well worth it if you could afford to get up here for the week.

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