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Genetic predisposition

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    Genetic predisposition

    Hi, i am new to carecure.
    I have secondary progressive ms. My ex husband found out a few years ago that he has ms also. We have 3 boys and worry about the likelihood of one developing it. My ex's mother and grandmother had ms. I have no family history of it. My question is are there any studies being done on kids with 2 parents with the disease, and should they undergo any testing as the sooner you are on meds the better? My kids are 21, 19 and 16.

    I know of no studies on children with both parents having MS. I do know that if you have a parent with MS your risk for getting it is 1 in 50. It is not a purely genetic disease of course. Even with identical twins, only 30% of the time do both get MS (and they of course have exactly the same genes).

    I also know of no legitimate early testing for MS. There was a study a few years ago that found some supposed genetic markers (HLA factors) but that study has since been debunked. I would also not think that starting someone on the CRABS, etc. would be worth the risks and serious side effects of those drugs without having an actual diagnosis. My mother has MS, and of course I am always thinking about that if I have a little numb spot or feel weak, but I am not overwhelmed by worry about getting it myself. Your kids need to live their lives without the fear of MS hanging over their heads too.

    Here is some information you might find helpful:

    You might also want to consider volunteering for some of the MS genetics research being done here:

    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.


      Thanks so much for the info!