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Tranverse Myelitis

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  • #16
    I have found that more medical personnel are now much more familiar with Transverse Myelitis than 10yrs ago and especially 24yrs ago when I developed it.

    I'm sorry you had such a terrible experience with misdiagnosis Sherman. Has it been ten years already?

    It's frustrating as well as gratifying to know that there is at least 'some' treatment for TM now ... wish steroid usage and ivig or plasmapheresis has been around when I was 12!
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

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    • #17
      I've tried a couple of anti-depressants (prysitque and wellbutrin) since my SCI 4/21/07. Both increased my spasticity and caused my gait to be worse. My injury level is C7-T1 Incomplete. Can you recommend an anti-depressant that SCI patients do well with?

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      • #18
        oh boy

        Hi all. new here. diagnosed with TM late 2008. Got sick with an upper respritory infection in July 2008. Got really sick in Sept. 2008. Went to ER, nothing wrong - sent home. Nothing "drastic" but I knew something was wrong. Follow up with Neurologist, sent for first MRI - lesion c2-c3 region.
        had LP, nothing much showed. Slight protien level variation. Just went back for MRI past Monday. Waiting to see DR on Wednesday next week.
        Scared as all get out.
        There's nothing worse than not knowing. If I knew what was going on, I think I could deal with it. Glad you're all here.

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        • #19
          Well, I also had TM and I was paralised from neck down and i couldnt do anything but look around and talk. I have a chance to fully recover and I try hard, but when u have complete muscle atrophy it's very very hard so my PT told me to try electrical muscle stimulation. I started it few days ago and I already have better sensations on body parts I'm using it on. I live in Croatia and I'm like 5th case in 10 years I think. If your brother was diagnosed early he can fully recover but if Docs didn't know whats wrong for a week or more he could recover well but not fully as I understood what I have been told. I wish your brother good luck.

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          • #20
            tomislav- how is your recovery coming along? No offense to Croatia, the opposite actually, but I had TM in the good 'ol US, new york city, of all places. Lucky me? No! The idiots running the jewish hospital were too busy doing anything and everything, but treating me like a real patient. I will spend the rest of my days in pure hatred and bitter spite, and it actually cheers me up a little, to realize this. I live for hate!

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            • #21
              Originally posted by cdurfee99 View Post
              tomislav- how is your recovery coming along? No offense to Croatia, the opposite actually, but I had TM in the good 'ol US, new york city, of all places. Lucky me? No! The idiots running the jewish hospital were too busy doing anything and everything, but treating me like a real patient. I will spend the rest of my days in pure hatred and bitter spite, and it actually cheers me up a little, to realize this. I live for hate!
              Sorry that you live in pure hatred and bitter spite. It doesn't seem to be anyway to live. So, they screwed up on your diagnosis and you remain paralyzed, which is awful, admittedly, but you also said you got rich. I assume that was a law suit that you won. While that will never bring back your lost mobility, do you know how many people with paralysis are anything BUT rich? No one to sue, nothing but making it check to check? Don't misunderstand me and think that what I am saying is you should be grateful or anything stupid like that, but the truth is you could have sustained your SCI the way most of us did, by diving, falling, whatever, and the outcome would be the same except without the comfort of money. Besides, living in bitterness and hatred usually is a pretty ineffective way of getting help from anyone, and doesn't do you any good either.

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              • #22
                Originally posted by cdurfee99 View Post
                tomislav- how is your recovery coming along? No offense to Croatia, the opposite actually, but I had TM in the good 'ol US, new york city, of all places. Lucky me? No! The idiots running the jewish hospital were too busy doing anything and everything, but treating me like a real patient. I will spend the rest of my days in pure hatred and bitter spite, and it actually cheers me up a little, to realize this. I live for hate!
                cdurfee: What have your negative feelings got to do with either Croatia or Tomislav? Please leave others out of your bitter rants about how you were treated. I can't see anyway your remarks are helpful to other posters or how expressing these feelings can even be of any use to yourself.

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                • #23
                  I got good news today. The lesion on my spinal chord is shrinking. I stilll have strange feelings, but it's nothing I can't tollerate. I can't imagine what some of you are going through. My thoughts and prayers are with you.

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