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    soreness at injury site

    Maybe someone could offer an opinion as to whats going on.
    My son had a type of spinal cord stroke (thought to be from a fibrocartilagenous embolism) in Sep 06. At the time he had a very sensitive area on his back at the level of the injury site. It was a larger area that has decreased over time and become less sensitive. However recently the area on his back has again become sensitive and he says it "bothers" him. It looks alittle swollen to my husband and me. He is also very skinny so any swelling is noticable. He hasn't had any other changes that he has noticed although last night he thought that he had phantom itching around his injury site (around T6). We had taken him to his nuero about two weeks ago because he thought that his back was bothering him at the site and downward. The nuero thought that maybe it was muscular and that he would get back to us about what tests he wanted to follow up with. We have not heard from him and Bri has not mentioned it again till last night and now the the "discomfort" (he does not feel pain) is mostly at the site. We called his nuero back and are waiting to hear from him. Our next appt with Dr. Kerr is not until January but we will email him. I am nervous about this and was hoping someone may have some insight for us as we wait for our neuro to call back.
    Thanks. Nancy

    #2
    Originally posted by Nancy E View Post
    Maybe someone could offer an opinion as to whats going on.
    My son had a type of spinal cord stroke (thought to be from a fibrocartilagenous embolism) in Sep 06. At the time he had a very sensitive area on his back at the level of the injury site. It was a larger area that has decreased over time and become less sensitive. However recently the area on his back has again become sensitive and he says it "bothers" him. It looks alittle swollen to my husband and me. He is also very skinny so any swelling is noticable. He hasn't had any other changes that he has noticed although last night he thought that he had phantom itching around his injury site (around T6). We had taken him to his nuero about two weeks ago because he thought that his back was bothering him at the site and downward. The nuero thought that maybe it was muscular and that he would get back to us about what tests he wanted to follow up with. We have not heard from him and Bri has not mentioned it again till last night and now the the "discomfort" (he does not feel pain) is mostly at the site. We called his nuero back and are waiting to hear from him. Our next appt with Dr. Kerr is not until January but we will email him. I am nervous about this and was hoping someone may have some insight for us as we wait for our neuro to call back.
    Thanks. Nancy
    I don't know what it is from. The redness and tenderness can be from several causes and all of them are worrisome. My differential diagnosis list would be (not necessarily in order of probability):
    • Ischemia (from embolus)
    • Bacterial infection.
    • Neurogenic Inflammation.

    I include ischemia because it occurred after the first time. However, the fact that it is just "a little swollen" may argue against ischemia but it may just be transient ischemia. I would not have thought of this except of the fact that he had similar symptoms as the first time.

    Bacterial infection is possible but it should not only be swollen but reddened an warm, i.e. like a cellulitis.

    Neurogenic inflammation is something that happens in peripheral nerves. When peripheral nerves become inflamed, they are more sensitive and they can cause a wheal on the skin (a reddening streak).

    The MRI should be examined carefully for the presence of increased signal underneath the skin (suggestive of edema and inflammation).

    Wise.

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      #3
      Thank you for your response.
      We have called the nuero Mon, Tues and again this morning and still waiting to hear back.
      Is there particular type of MRI or any other tests also that you would suggest? Also the area is tender swollen but not red or warm.

      I am very concerned . We have come so far.
      Don't know what to do about getting a MRI ASAP as the nuero has not called us back.
      Thank you again for your help.
      Nancy

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        #4
        Originally posted by Nancy E View Post
        Thank you for your response.
        We have called the nuero Mon, Tues and again this morning and still waiting to hear back.
        Is there particular type of MRI or any other tests also that you would suggest? Also the area is tender swollen but not red or warm.

        I am very concerned . We have come so far.
        Don't know what to do about getting a MRI ASAP as the nuero has not called us back.
        Thank you again for your help.
        Nancy
        A regular MRI should be sufficient.

        Wise.

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          #5
          Nuero gave script for reg MRI. Calling for appt this am. would like to get it done today. Thank you again.

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            #6
            MRI appt tommorrow 7am. This is our local pediatric nuero.( not Kerr,but we are looking forward to seeing him in Jan)
            I'm alittle worried, saying prayers.

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              #7
              Had MRI yesterday waiting for results. Had a little trouble. Lots of spasms. some pics were not clear. We'll see.

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                #8
                I hope that it is nothing that the tenderness resolves. Wise.

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                  #9
                  Thank you.

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                    #10
                    You can have a digital copy of the MRI films sent to Dr Kerr with the radiologist's report. It helps if he has a chance to see them before your appointment. I had an ischemic stroke at C5-C7 and a year later developed the banding feeling that many with TM have. Thankfully it disappeared on its own 2 years later. Nasty cold, tight feeling around the entire lower thorasic area. Hopefully your son's tenderness will similarly disappear on its own.
                    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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                      #11
                      Thank you Sue. I willl have those results forwarded to Dr. Kerr. I am glad your symptoms resolved, I hope Bri's will too. He says it feels better. However after the MRI he also told me that he is not telling me anything anymore. Very bad time with it. Spasms and the MRI lady getting frustrated telling him he'll have to lay still. He had actually been looking forward to the MRI as he usually gets a nice nap in. Oh and he also told me he is never having an MRI again. I wish this never happened to him.

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                        #12
                        Originally posted by Nancy E View Post
                        Thank you Sue. I willl have those results forwarded to Dr. Kerr. I am glad your symptoms resolved, I hope Bri's will too. He says it feels better. However after the MRI he also told me that he is not telling me anything anymore. Very bad time with it. Spasms and the MRI lady getting frustrated telling him he'll have to lay still. He had actually been looking forward to the MRI as he usually gets a nice nap in. Oh and he also told me he is never having an MRI again. I wish this never happened to him.
                        I know how your son feels. I am 47 now but was 11 when I had Transverse Myelitis. Each time I told my parents about some issue, it meant a trip to the doctors, more tests or awful procedures. It felt like each time I went to the doctors they found something else wrong.
                        Still, getting things checked out before they become a bigger problem is a lot easier than avoiding doctors and hospitals.
                        Adaptive Sports Forums.com
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                          #13
                          Did they put a foam wedge under his knees? This stops most spasms and a good MRI tech knows this. I also take extra valuim and ask for blankets. I just found out about getting both films and a CD or DVD of the images on my last MRI. That hospital has lost too many of my records so I give Dr Kerr his choice--film or digital. I keep the other. :-)

                          I wish these "unknown, what's it called" things never happened to anyone.
                          Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                          Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                          Comment


                            #14
                            I get something like that. it is most noticeable after an I.v, or overdoing it. It feels like fluid and feels like there's a rubber band inside the spine,but just above the puffiness. I hope all is well, that its not serious. mine usually goes down in a week or so. and then I forget about it until it puffs up again. I often get a pounding headache first, and later notice the place is puffy again. my Nero called it some kind of cyst, but I cant remember what kind. I wasn't going to comment, but, well my neurologist said its not uncommon in sci patients to have this. he gave it a name, but I don't remember it at all. sorry for your worries. wishing it resolves soon.

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                              #15
                              HI! funny you should mention overdoing it. He says he has noticed it on days that he walks alot. I think I'll google around for the type of cyst you're referring to. We haven't heard back. Thanks for you thoughts.
                              He did not have a wedge. That would have helped.
                              I have sent Dr Kerr cds inthe past so I'll have to get a copy to him. Also the image is emailed to our nuero so I will ask him to forward it to Dr Kerr.
                              Thanks to all for you input. I really appreciate it!
                              Last edited by Nancy E; 17 Nov 2008, 11:14 AM.

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