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Fibrocartilaginous embolism, Spinal Stroke, Its rare at least in people!

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  • Fibrocartilaginous embolism, Spinal Stroke, Its rare at least in people!

    Has anyone else experienced this?

    I did 12 months ago.

    It is very rare, thankfully.
    I have had great support from the physiotherapists, but most people know very little about it.


    It just happened out of the blue.

    One minute I was fine, I twisted, turned and sat up (nothing out of the ordinary) and my body started going downhill after an intense pain coursing through my lower body from the level of my bra-strap down. The pain was like nothing I have ever experienced before, and I've been through natural labour with 3 children without pain medication.

    I'm left with alot of impaired function and impaired sensation and diagnosed with a T7 incomplete SCI.
    Last edited by KimB; 10-06-2008, 07:08 AM.

  • #2
    Hi Kim. sent you a pm. Nancy

    Comment


    • #3
      fibrocatocartilaginous Embolism / Spinal Stroke

      Hi
      Just wondering if anyone can give me any practical advice.
      Three weeks ago I experienced what I am told is a spinal stroke described as a (possibly) Fibrocartilaginous Embolism.
      I was a healthy 46 year old male living in Port Macquarie Australia - it all started at approximately 8am with a small back pain which within an hour turned into chronic pain. By the time I got to Hospital I had lost total feeling and use of my right leg and some feeling in my Left leg more like pins and needles and some lack of function. The hospital first thought I had kidney stones and my numb feeling in my legs was from hyper ventilating from the pain.
      After sometime the Doctors decided that it was more to do with my back and I was given an MRI as the day progressed I found I was not able to urinate and I was catheterized.
      When the Doctors accessed my MRI (which did not show anything obvious) it was decided that I would be better off in a Hospital with specialised Neurologist surgeons if I required surgery so I was put on steroids at approx 9 pm and flown to the Royal North Shore hospital in Sydney Australia.
      I was given another MRI which showed something had accurred between T8 & T10. Not sure of the words used but it was not a bleed or anything that could be operated.
      They described it as a possible Fibrocartilaginous Embolisation Syndrome. A small microscopic particle of disc had entered the blood stream and cut off the blood supply in my spine.
      After several days I was told that surgery would not help me and the only thing to do was enter rehabilitation. After the fifth day I regained some movement in my right leg.
      I had at this point had 5 doses of steriods and I had one more after that. On the 6th day the catheter was removed and after several hours I regained control of my bladder to some extent and this has improved.
      I was then flown home to hospital in my home town. Every day since then I have regained some control and I am again walking. Very much to the surprise of the doctors.
      I still have no feeling in my right leg - only hypersensitive sensation below the knee. My left leg is still experiencing pins and needles and I experience spasms in my legs for hours at night.
      I am also experiencing continuing pain in my back even though I am told that I have not had a trauma in my back.
      I am back at work and doing rehab as an outpatient. Would love to hear of peoples recoveries and what I could possibly expect in the future.
      Thank in advance.
      Wayne Pursell

      Comment


      • #4
        I don't know if the same applies to people, but I don't really see why not. As you say it's rare in people, perhaps this will help.

        I had a dog who had an FCE. He was fairly suddenly completely paralyzed in the rear legs and couldn't urinate. The complete paralysis only lasted part of the day. He gradually recovered strength over months, and made pretty much a full recovery (hard to say if he was exactly as before, he was old and arthritic to start).

        I hope you continue to recover.

        Comment


        • #5
          Hi Wayne
          I'll PM you, Kim

          Originally posted by Wayne Pursell View Post
          Hi
          Just wondering if anyone can give me any practical advice.
          Three weeks ago I experienced what I am told is a spinal stroke described as a (possibly) Fibrocartilaginous Embolism.
          I was a healthy 46 year old male living in Port Macquarie Australia - it all started at approximately 8am with a small back pain which within an hour turned into chronic pain. By the time I got to Hospital I had lost total feeling and use of my right leg and some feeling in my Left leg more like pins and needles and some lack of function. The hospital first thought I had kidney stones and my numb feeling in my legs was from hyper ventilating from the pain.
          After sometime the Doctors decided that it was more to do with my back and I was given an MRI as the day progressed I found I was not able to urinate and I was catheterized.
          When the Doctors accessed my MRI (which did not show anything obvious) it was decided that I would be better off in a Hospital with specialised Neurologist surgeons if I required surgery so I was put on steroids at approx 9 pm and flown to the Royal North Shore hospital in Sydney Australia.
          I was given another MRI which showed something had accurred between T8 & T10. Not sure of the words used but it was not a bleed or anything that could be operated.
          They described it as a possible Fibrocartilaginous Embolisation Syndrome. A small microscopic particle of disc had entered the blood stream and cut off the blood supply in my spine.
          After several days I was told that surgery would not help me and the only thing to do was enter rehabilitation. After the fifth day I regained some movement in my right leg.
          I had at this point had 5 doses of steriods and I had one more after that. On the 6th day the catheter was removed and after several hours I regained control of my bladder to some extent and this has improved.
          I was then flown home to hospital in my home town. Every day since then I have regained some control and I am again walking. Very much to the surprise of the doctors.
          I still have no feeling in my right leg - only hypersensitive sensation below the knee. My left leg is still experiencing pins and needles and I experience spasms in my legs for hours at night.
          I am also experiencing continuing pain in my back even though I am told that I have not had a trauma in my back.
          I am back at work and doing rehab as an outpatient. Would love to hear of peoples recoveries and what I could possibly expect in the future.
          Thank in advance.
          Wayne Pursell

          Comment


          • #6
            This is a link to an interview with a lady in Melbourne, Australia, who experienced a Fibrocartilaginous Embolism.
            She was an aerobics instructor, and while doing some exercise one day experienced paralysis and now gets around in a wheelchair.There is also a video of the interview.
            The name of the report is
            Searching for a spinal cure

            Broadcast: 21/07/2009

            http://www.abc.net.au/stateline/vic/content/2006/s2631651.htm
            Last edited by KimB; 12-02-2009, 08:25 AM.

            Comment


            • #7
              Another link

              I hope this link works better.

              http://www.abc.net.au/stateline/vic/...6/s2631651.htm

              it seems to misdirect to

              http://www.abc.net.au/stateline/vic/...6/s2629248.htm
              there is no video on this link.

              Comment

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