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    Spinal stroke?

    Hello, i am writing here hoping somebody on here can and will give me some advice. My partner melissa(32) recently went for a day case op. She had a general. When she came out of the op she had pins and needles then paralysis of the legs, can actually wiggle her toes slightly. The only problem with this op was that her blood pressure dropped to a very low level, this level unknown at the moment as i have not seen the notes. My partners blood pressure is normally around 90 over 40. This is easily fixed by placing her on a drip. I was wondering if you would agree with me that it was a spinal stroke and also ignoring what was the cause what would you say should be the way forward? Nothing showed on 3 MRIs or a ct scan.This is now week 5, she is in a stroke ward and is recieving physio twice a day. The physio only started 2 weeks ago. They are now talking about sending her home which obviously would mean less physio. As far as my limited knowledge goes this is the only thing that may get her back on her feet,true? Also we have been told the first 8 weeks are the most important hence the move home should not be considered. Anybody out there have any answers for me. Regards Frustrated partner.

    #2
    We need more information here.

    A "watershed" stoke of the brain or cord can occur in those whose blood pressure drops very low, but it is unusual in someone who already has a low blood pressure.

    What type of surgery was it?

    How much paralysis does she have currently? Which muscles?
    What is her ASIA score and category?
    Does she have bowel and bladder impairment?
    Did they rule out a spinal cord AVM?
    When you say the MRI was normal, did this include a lack of any signs that the spinal cord had been infarcted? Usually this shows up on an MRI within a few days to weeks.
    Where is she now (country, city, as well as facility)?
    Have you asked about sending her to a major SCI specialty rehabilitation facility?

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


      #3
      Hello, they have told us that her blood pressure had dropped to low level for 10 minutes. Watershed?
      She was having a Laparoscopy.
      Paralysis is of legs. Small wiggling of toes. Nuerosurgeon say this should not be with a spinal stroke! Incomplete-complete?Total control of bowels and bladder.

      Asia Score and category?
      Avm?
      No obvious signs in all 3 MRIs.
      She is in Raigmore hospital, Inveness, Scotland(UK)She is being cared for in a stroke unit!
      She was flown to glasgow 200 miles away to go to the only spinal unit in Scotland. Went to neurological ward first for assessment and supposedly to go the spinal unit afterwards to be assessed there, she never got there. One doctor actually said there was no reason for her to go there as it was for serious injuries this was before he had looked at her. Not being able to walk must be a minor ailment. They decided they could look after her in Inverness. I disagree.They have never seen the injury before never mind treated it. Help,advice?

      Comment


        #4
        You are going to have to be insistant that she go back to the spinal cord injury unit.

        ASIA = American Spinal Injury Association assessment tool. It is standardized throughout the world.

        AVM = arteriovenous malformation, a common cause of spinal cord stroke in young people.

        Watershed stroke = one that occurs because the blood pressure dropped so low that the tissues were not perfused (supplied with oxygen).

        It is possible to have a spinal stroke and move your toes, with paralysis higher. This is called sacral sparing.

        (KLD)
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

        Comment


          #5
          I thank you for your quick reply. I will be seeing the doctors tomorrow. My problem with asking for her to be sent back to the Spinal unit is that she is no need for any medical care(?) Or from the outside it looks like this. I will let you know how we get on. Thank you again

          Comment


            #6
            She needs specialty SCI rehabilitaiton services as an inpatient.

            Doesn't she have some bowel and bladder impairment too?

            (KLD)
            The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

            Comment


              #7
              I totally agree. I am not too sure if mentally it is the best thing as she has a young family. I want her to go she does not. Although she will if told by a professional that it is best. She has no problems with her bowels or bladder, none. I will let you know how we get on. thank you

              Comment


                #8
                help

                Hello again, today the doctor has said that she was dissapionted in the progress made and thinks melissa should be sent home and brought back later. The theory being that physio will not get her legs to work they will just work whenever so the physio is not doing anything.. Maybe with time at home her legs will work then they will get her in for more physio.If her legs were working i would have her home now as i have people around me to get her physically fit again! I wonder do these people know what they are doing?

                Comment


                  #9
                  Was the laporascopy done using an epidural? Has she had a spinal tap? If she had a stroke due to an epidural the sooner she has rehab the better the outcome. If she acquired an infection, bacterial or viral, in her spinal fluid it needs treated immediately.

                  Unless those docs can tell you why they think your partner's legs will recover on their own they're not helping they're hurting. If she sits or lays in bed all day she will lose muscle mass. That's why rehab is so important early on.
                  Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                  Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                  Comment


                    #10
                    I had a spinal cord stoke last year. My legs have completely recovered. The hospital I was in had me doing physical therapy to get my legs moving within 1 week of the stroke (even though I was not even well enough to sit up on my own). People came in and moved my legs to help them remember what they are supposed to do and make the connection with the brain. I was not sent home until I was up and walking in a walker, two months later. I think this time is crucial in her recovery. If she is sent home and you cannot keep her in a program, make sure someone is working with her to exercise her legs. I hope for the best in her recovery!

                    Comment


                      #11
                      First of all thank you for your comments and advice. I will be using all this to try and get my partner the treatment she deserves. Considering that the mistake happened in this hospital you would think they would try harder. My partner had a general not an epidural. She has had no spinal tap.
                      The initail physio was 15 min 5 x pw, i was giving her some myself. They finally improved on this after 3 weeks when we fell out with them. It is now 2 hours a day. Just like the doctor who said she should not go to a spinal unit before even examining her the latest consultant said today that there seems to be very little muscle wastage, this coming from someone who never saw her for the first 3 weeks so how does she know what my partners legs were like before. She has lost 10 % of her body weight so i would say there was a good amount of wastage.They had her on tamazipan for sleeping? I questioned it and they changed it straight away, if they were right surely they would have kept her on it. Muscle relaxent and reduced motor function is not what she need in my eyes. Maybe i was wrong? Thank you again. I will keep you informed.

                      Comment


                        #12
                        spinal stroke or what?

                        Dear friends, i am just back from the hospital. Today the doctor was suggesting that the care my prtner is receiving is the same as she would get from a specialist unit, if so why do we bother with specialist units? My partner has seen the notesand 2 things came to light.
                        1. They do not know if it was a spinal stroke, wont say it is as there is no visible damage on MRIs and also she has no feeling in her legs which they say is not a symptom. So she has an extra symptom!
                        2. When she was in theatre she was head down, is this usual for a Laparoscopy?
                        My next question is if it is not a spinal stroke then what caused it? Should we not know? Maybe it will happen again. I understand i am rather uneducated compared to some of you and a little emotional but do you think i am being unreasonable asking these questions.
                        Some good news- she was able to lift her right foot of the floor whilst in her chair! Yipee.

                        Comment


                          #13
                          Wow! That is great news; I am so excited for her

                          My understanding of a Spinal Cord Stroke is it can cause non feeling. It all depends on what part of the spinal cord went without blood. I lost hot, cold, pain, and kept light touch. From what I read many people who have spinal cord strokes were misdiagnosed at first. For me, my MRI showed a neon streak from C2-T2 that was clearly damaged.

                          Comment


                            #14
                            What is the big secret here? Laproscopy is how the surgery was preformed. Might help us if we knew what was operated on.

                            My spinal stroke left me with light touch, vibration and proprio-senasation. Years later I have some heat and cold and normal pain.
                            Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                            Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                            Comment


                              #15
                              They were having a look at her ovaries as she has had treatment for cervical cancer and now had lumps on her ovaries. The problem is she is now in a stroke ward, nothing to do with spinal injuries and they are doing anything they can from finding out what caused this. Ofcourse they have already mentioned spinal stroke and Tranverse Myelitis but not saying def or even trying to find out if it was any of these. A bit worrying in my eyes. As far as we know she was in a head down position(as normal) for this procedure. This ofcourse would not help if she has low blodd pressure. Normally she has blood pressure of 90 over 60, this can be reaised easily by putting her on a drip. When she was in theatre her pressure dropped to 60 over something for 10 mins. We dont have exact figures. This i think would not be good with the head down position(?) Where i think they have failed is in the prep as they could have gave themselves a larger window to play with by putting my partner on a drip before the op and raising her pressure to a normal level(?) But again should we not find out what caused it so we can make sure it does not happen again? Over to you all. I drill wells for a living so i know nothing about medicine. Thank you for helping and listening.

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