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The Walk Aide "Miracle in a Box"

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  • #31
    Tina,

    I was told by a walkaide specialist that it would work for me but I need to stretch out my ankle more then it would work. Have you seen any patients that had the same problem and how did it work out?
    C-5, 6 SCI. Took about 6 months to walk. Walking full time. Without any assistance since Nov. 2003 and will make a full recovery

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    • #32
      Hi mj,

      I have seen it work in people with contractures- after stretching it out. You should be able to get your foot to 90 degrees in order for it to work well. If you don't have a night splint it might be worth asking your doctor about. I think it is the easiest most effective way to get your range of motion back. Walkaide will also help improve range of motion- but theres no point in getting it just for that purpose.

      good luck- its great news that it worked for you though!
      tina

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      • #33
        Originally posted by mj23 View Post
        Tina,

        I was told by a walkaide specialist that it would work for me but I need to stretch out my ankle more then it would work. Have you seen any patients that had the same problem and how did it work out?
        yep same here.

        they also told me to wear my night splint. I'm also not currently taking my drugs (anti spasticity), since I just got back from China and have to re amp on those, so they want me to come back in 3 weeks after I do that and then from there we'll be finding a P.T close to their facility so we can begin the process.

        I don't know about anyone else, but the electric stim feels kinda good hehe, it's only when you're standing still, and you get zapped that it throws you off (we were adjusting the computer)

        It's not a miracle device, but if you want to clear your steps, and walk a bit more effortlessly this device would be your best bet. You won't just get up and start using a cane or crutches, it's something you will have to build up too. this device basically works in a way where it makes your steps less of a strain as to not ruin your joints and it corrects your gait a bit. so basically it makes walking 'easier' but doesn't make you walk.

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        • #34
          Originally posted by Imight View Post
          so basically it makes walking 'easier' but doesn't make you walk.

          you are exactly right. I didn't strap them on and run out of the office. I've been working with them for over 2 years now.

          I also like feeling the stim- it's actually the only time I can truly feel my leg move. Its a natural feeling i used to take for granted.

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          • #35
            I am going to give them a try on the 17th of August.
            Adaptive Sports Forums.com
            http://adaptivesportsforums.com
            Non-commercial adaptive sports user community

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            • #36
              Originally posted by Tina430 View Post
              Hi mj,

              I have seen it work in people with contractures- after stretching it out. You should be able to get your foot to 90 degrees in order for it to work well. If you don't have a night splint it might be worth asking your doctor about. I think it is the easiest most effective way to get your range of motion back. Walkaide will also help improve range of motion- but theres no point in getting it just for that purpose.

              good luck- its great news that it worked for you though!
              tina
              Ya I'm able to get my foot to 90 but I guess my foot drop is kinda bad. I hate night splints though.
              Last edited by mj23; 07-30-2009, 02:38 PM.
              C-5, 6 SCI. Took about 6 months to walk. Walking full time. Without any assistance since Nov. 2003 and will make a full recovery

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              • #37
                mj- if you can get your foot to 90 and your leg responded to the stim I don't understand why you aren't a candidate at this time. It's hard not actually seeing how you responded to the evaluation. There are many people who are walkaide certified who haven't had much experience working with it. I don't know if that played a part either. I would get a second opinion if i were you. Especially since insurance coverage is best for SCI patients

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                • #38
                  Tina, can I get evaluated at any Hanger office? I'm working with Hanger for my KAFOs right now.
                  My blog: Living Life at Butt Level

                  Ignite Phoenix #9 - Wheelchairs and Wisdom: Living Life at Butt Level

                  "I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow my living to open me, to make me less afraid, more accessible, to loosen my heart until it becomes a wing, a torch, a promise. I choose to risk my significance; to live so that which comes to me as seed goes to the next as blossom and that which comes to me as blossom, goes on as fruit."

                  Dawna Markova Author of Open Mind.

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                  • #39
                    I mentioned it to my therpists and they said it was very simular to the bioness. and also they had one at Harmarville Healthsouth if anyone was from around the area. But I was also upset with the clip, I mean this is still an amazing thing from the way she walked to what she did with it on! amazing. but it is for people with "drop foot" and problems pulling their toes up and moving the foot. As one of my therapists told me. But That was such a great thing though!
                    I have more to claim.
                    I have to fight through the hard places
                    to go and get it!

                    most recent video:

                    http://www.youtube.com/watch?v=fHLEinnhYtg

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                    • #40
                      jenjen- you should be able to get a walkaide evaluation at your Hanger office. Call them and see if they have a walkaide certified practitioner. Not every orthotist is walkaide trained, and some that are aren't very proficient yet. If you have trouble finding someone let me know- I'd be happy to help you out.

                      Drew- it produces the same electrical response as Bioness- it activates the same nerve. Bioness is triggered by a heel switch- when the heel is weighted the unit is off, when its unweighted the unit is on. Walkaide uses a tilt sensor and accelerometer (the same technology as used in the nintendo wii remote control). I have used both and they both worked for me. I choose walkaide- but both work- Bioness is more expensive and uses older technology. Plus I didn't like that I had to wear shoes- I was stuck in shoes everyday the entire time I wore braces, and i didn;t like getting stimmed when i was standing still but weight shifting, like waiting in line at the store or standing and talking to friends.

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                      • #41
                        I had my evaluation today. It went OK. They only tried it on my right leg.

                        Right off it seemed to work about the same as an AFO. I think with some gait training work and tuning of the Walkaide, it would be an improvement for me.

                        I am interested in trying the Bioness as well.
                        Adaptive Sports Forums.com
                        http://adaptivesportsforums.com
                        Non-commercial adaptive sports user community

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                        • #42
                          Tina430-How does the walkaide work with KAFO's with the entire leg held straight? We are currently working with KAFO's and doing well.

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                          • #43
                            Dixie- mom: Its best to use walkaide with a hinged knee brace as opposed to a kafo. If thats not possible the ankle joint needs to be free motion- meaning its a simple hinge which allows the foot to lift up and down freely. the joint is only for ankle stability. The best knee joint is a stance control joint- which allows the knee to bend during swing but locks during stance. It thats not possible a locked knee can work also. The ultimate goal is to allow the mucles to strengthen to the point that KAFOs aren't necessary. Programing will be tricky but possible if you have a good practitioner. Its tricky to answer completely without a diagnosis and some background info but I hope that helps some.

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                            • #44
                              A paraphrased convo with my very patient, very professional orthodist.


                              "Hello Jen, I need to readjust your expectation cuz this thing absolutely won't work for you, you're complete. Besides, Medicare won't cover it."
                              Me:"hmmm, humor me, I have realistic expectations."
                              O:"well, you don't understand and medicare won't cover it."
                              me: "better than you think, I've read the studies and talked to people. I'll find funding. Humor me."
                              Him "OK, you're wasted my time and medicare won't cover it you complete and stubborn idiot"
                              Me: "just try it"

                              he does..... and literally jumps backward. some more blah blah blah and then
                              "your pathways are open and functional. You are A PERFECT CANDIDATE for the Walk Aide Medicare won't cover it."
                              Me: (carefully avoiding the I TOLD YOU SO) "so how does this change our plan.
                              Him... a couple of attempts at language then "You've just completely confounded me. I dont know what this means. If your only issue was knee to ankle WE'D HAVE YOU WALKING IN A WEEK OR SO but with the hips and knees.... hmmm, we're going to have to talk to some people and think for a bit. Medicare won't cover it.' he leaves....

                              Comes back with the team doing my test sockets. him" Once we can get you up on the bars, we should see if we can get you walk like you do in the pool. maybe just knee braces and WalkAide and with some luck and work, you'll be able to WALK FULL TIME. It'll be a lot of work and we'll have to see where you are but yeah maybe......"

                              So, I don't know where I am exactly or what happens next but my test sockets were adjusted and will be sent out for fabrication. In the mean time, I'll hit the gym and work on getting my body as strong as possible so that I'm as ready as I can be. My goal is to cross the finish line at this year's half marathon on my feet. We'll see.

                              Maybe that Walk Aide is a miracle in a box...hmmm
                              My blog: Living Life at Butt Level

                              Ignite Phoenix #9 - Wheelchairs and Wisdom: Living Life at Butt Level

                              "I will not die an unlived life. I will not live in fear of falling or catching fire. I choose to inhabit my days, to allow my living to open me, to make me less afraid, more accessible, to loosen my heart until it becomes a wing, a torch, a promise. I choose to risk my significance; to live so that which comes to me as seed goes to the next as blossom and that which comes to me as blossom, goes on as fruit."

                              Dawna Markova Author of Open Mind.

                              Comment


                              • #45
                                Jen, you are something. I'm in Awe.

                                I don't understand how he determined your pathways were open.

                                Jessica's doctor at Barrows labels her as incomplete because she now has muscle movement below the level of injury. They had her labeled complete before and from ASIA rating she is still considered complete. Sounds like you can get an "incomplete" label and then maybe Medicare will pay.

                                Please keep us informed how this works for you. Jess doesn't have any contractions with e-stim so I figured it wouldn't benefit her.

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