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    Neurontin effects

    I was on 900mg a day on Neurontin with considerable nerve pain. My doc said take another pill at bedtime so I did but my nerve pain still bothered me. My SCI doc said I can take another one at noon or both morning and noon if needed. So I am now on 1800mg and I am getting drowsy. My pain is being managed on this dosage. Does this drowsiness go away because I've never been drowsy on Neurontin. I tried Lyrica and it worked but my spasms incresed greatly so I got back in Neurontin and they went down.
    Marie
    Unbroken by the grace of God

    #2
    3600mg Neurontin

    Well Marie the sleepy time hormones kick in all the time for me. That is why it is always a good time to take my meds before physical activity. I load up at night w/ 900mg but usually wake around 3am with pain. Everyone has a different game you just need to find what works for you. The major side effects for me are memory loss and being tired. The amount still does not control my pain but it is a start.
    Feelin good is good enough!

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      #3
      How would I know if I am having memory loss?
      Marie
      Unbroken by the grace of God

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        #4
        Marie,
        You would probably know if you were having memory loss. I did experience this with Lyrica and it was like I had trouble remembering words and names. I knew what I wanted to say, but couldn't *quite* remember. It was always "just on the tip of my tongue". I also got forgetful about where I put things and forgot I did a few things. Nothing too drastic, but it wasn't really helping me that much to put up with the side effects. If it were drastically decreasing excruciating pain, then a lil memory loss doesn't sound so horrible after all. If this was happening to you, you would notice - or someone else around you would notice.

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          #5
          I do that all the time! Sometimes I feel really dumb. I have often wondered if my accident did something to my head. I never knew my med. might be doing it. I just upped my Neurontin to 1800 and I am feeling a fog around my head. I keep having to increase my neurontin because it doesn't seem to ever constantly control my pain. Lyrica worked for me but my spasms incresed badly. Does anyone else have this problem?
          Marie
          Unbroken by the grace of God

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            #6
            Neurontin

            I've been taking neurontin for as long as I can remember now (at least 9 years) and my dose has crept up over time. I'm now at a whopping 8,000 mg/day, which is really too high a number for comfort. It no longer works for me like it used to, in terms of completely getting rid of neuropathic pain, but if I forget to take a dose, my pain level shoots way up within 12 hours. So I know its helping. It doesn't make me drowsy, but I do have to take a nap every afternoon because I run out of steam by then each day.

            I don't know if its affecting things like word recall or not. I have difficulty with faces, names and distant events but don't know if its the neurontin, the concussion I had at the time of my accident, age (43) or some combo of all of these. In general I take life one day at a time now and that may also have something to do with my not remembering things for long.

            Back to neurontin...I tried lyrica, too, and at relatively low dose (300 mg/day) had these tremor-like feelings in my head, so I backed off to 150 mg/day and am OK at that.

            I go meet with a new pain doc next week because I just moved to Seattle area and one of my goals will be to get off some of this neurontin without having my pain level shoot up. Wish me luck!

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              #7
              Neurontin AND lyrica??

              Are you taking both together? Do you get an added effect?

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                #8
                Originally posted by mmcguffinoh
                I've been taking neurontin for as long as I can remember now (at least 9 years) and my dose has crept up over time. I'm now at a whopping 8,000 mg/day, which is really too high a number for comfort. It no longer works for me like it used to, in terms of completely getting rid of neuropathic pain, but if I forget to take a dose, my pain level shoots way up within 12 hours. So I know its helping. It doesn't make me drowsy, but I do have to take a nap every afternoon because I run out of steam by then each day.

                I don't know if its affecting things like word recall or not. I have difficulty with faces, names and distant events but don't know if its the neurontin, the concussion I had at the time of my accident, age (43) or some combo of all of these. In general I take life one day at a time now and that may also have something to do with my not remembering things for long.

                Back to neurontin...I tried lyrica, too, and at relatively low dose (300 mg/day) had these tremor-like feelings in my head, so I backed off to 150 mg/day and am OK at that.

                I go meet with a new pain doc next week because I just moved to Seattle area and one of my goals will be to get off some of this neurontin without having my pain level shoot up. Wish me luck!
                I would reconsider taking as much as 8000mg per day. My doctor told me that the studies he has seen shows a flattening out of benefits after 3800mg. You should discuss this with your doctor.
                mike

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                  #9
                  I was taking neurontin but it didn''t seem to be working at 3600 per daay so I now take Lyrica. I do notice the memory problem...... Now what was i saying.... LOL No really... I do experience difficulty finishing sentences, recalling names and/or words that are common. If the Lyrica is stopped does the memory difficulty go away? I am considering spinal E-stim with one of the goals being reducing dependence on narcotics.
                  L1 Complete - Injury 3/12/06 - Grateful to be alive!!!!

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                    #10
                    Im just curious Marie,when you went back ONTO the neurontin AFTER trying the lyrica,did you notice any increased side effects from the neurontin that you did NOT have prior to trying the lyrica?hope i am not confusing you,i do that sometimes.i am just wondering as i was actually on neurontin for like two and half years and went off.about a year later we switched to lyrica?bad bad side efects with that crap.but the thing is,while i had been on neurontin all that time,i NEVER really felt like i was even taking anything.no side effects from the neurontin what so ever,even at 3200mgs.BUT kind of as a last resort type thing since thew lyrica really messed me up bad,i figured i would give the neurontin a try again since i really had no side effects at all from it??geez,this time(after being on lyrica for about a month?) i had the same damn side effects from neurontin only at just 200mgs,that i was getting from lyrica.it was just insane what i started feeling this time around that never ever bothered me bfore trying that lyrica.

                    i had,with the lyrica while on it,confusion,double vision that went up and down,not side to side like normal people?and it seriously affected my gait.i kept walking into things and tripping over my flippin feet.it also made my kidneys swell.i KNOW the lyrica just had to do 'something' to my brain ya know?i never ever had one side effect when i had been on neurontin before,it was just crazy.i am just wondering if anyone who has been on lyrica who went back to one of the anti S meds they HAD been on prior to trying it had the same typeof reaction i did?it was just way too bizarre.something has changed in my brain from lyrica,it just had to.Marcia

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                      #11
                      After the extreme sleepyness wore off from the amy, the only side effect I had was dry mouth. I was not on Lyrica very long because of my spasms. I didn't have and side effects on Neurontin when I got back on but I think on 1800 it's making me tired. I also took them together so while I was weening off Neurontin I was weening on Lyrica. Actually I remember taking Neuro, Lyrica, Neuro during the day and I had zero nerve pain. No side effects. I wonder why you can't take them together?
                      Marie
                      Unbroken by the grace of God

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                        #12
                        Replies to harpo2 and Mike

                        harpo2, you'd asked if I got some kind of synergistic effect from taking both Neurontin and Lyrica....the answer is no. I had started the lyrica to replace the high-dose neurontin I was taking but ran into that problem with side-effects from the lyrica. I'm not actually convinced that the lyrica helps a lot and I should try getting off it for a while to see. I know the neurontin helps because, like I said, I know within 12 hours if I missed a dose.

                        Mike...you said your doctor indicates that the benefits from neurontin flatten out after 3800mg. That's interesting, and may help to explain why my dose has crept up so much over just the past couple years. I've been on 8,000 mg/day for at least a year now and I don't feel any negative side effects, but realize there could be some that I'm not aware of. I've met with my new pain doc just once since I moved to Seattle, and his comment on my dosage was "I wouldn't be comfortable taking that much!" So I wil work with him to find a suitable alternative that would handle my pain.

                        I was surprised to recently read that 80% of people with SCI have pain issues--had not idea I had that much company!

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                          #13
                          Taking both Neurontin and Lyrica

                          Originally posted by quadmarie
                          Actually I remember taking Neuro, Lyrica, Neuro during the day and I had zero nerve pain. No side effects. I wonder why you can't take them together?
                          Who said you can't? I believe that Lyrica is essentially a chemically tweaked Neurontin, likely created because its manufacturer was losing its patent rights as of last year. If they have the same action on the body, it makes sense that taking both would simply be increasing the same effect on the body, but I'd never heard before that you can't take them both. Have others heard that?

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                            #14
                            I had one doctor prescribe both Lyrica and Neurontin at the same time. Then I changed doctors and have been told by every other doctor since that taking them together is not reccomended. I was told that they basically reduce the positive effect of each other because they are working on the same pain receptors or something like that. I'm not a doctor just sharing what I've been told.
                            L1 Complete - Injury 3/12/06 - Grateful to be alive!!!!

                            Comment


                              #15
                              Note that, as has been said before, the more neurontin one takes, the less percentage of the dose is used by the body. There may well be a dosage level at which point going higher won't provide any more of the medication to one's system.
                              Alan

                              Proofread carefully to see if you any words out.

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