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    #46
    YOU are missing the point I was trying to make Dan. There are people who come to the ER seeking drugs.......back pain, migraine, toothache, pain in the foot...... those who work in the ER can recognize the patterns in these people. The doctor I was referring to is one of the best doctors around and he shows no mercy on those that just want to get high. He does have pain, bowel/bladder, and other issues. I am not criticizing anyone because they need medicine to kill their pain. But if you repeatedly show up in the ER complaining of pain and requesting Demoral/Percocet or whatever the drug may be then by all means you or anyone else with this behavior should and is labeled as a drug seeker. We are not talking about Derek here because is obviously under the care of a pain management physician which is totally different than going to the ER.

    All I did in the previous post was mention that the class of drugs Derek is on is highly addicting and repeatedly expressed my concern. You automatically assume I am labeling him a drug seeker. Before you get all pissed off about someone not getting pain drugs just because they say they are in pain you need to know the whole story.

    Just because some of us choose not to take pain meds does not mean we are not in pain. I know that I have a high tolerance for pain. I have not been able to feel an ear infection since I had my accident. I am talking about ear infections that burst both ear drums before I even know I have them. I dont know about you but most people feel ear infections. I am not giving anyone a hard time for taking pain drugs.

    It is no ones fault but your own if you have a physician that won't give you anything but NSAIDS for pain........
    T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

    My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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      #47
      Actually, I think we're talking right past each other.

      I think there's a huge disconnect here. I am not missing your point; I'm trying to make a different one. You're clearly not understanding mine.

      Not once did I say "YOU" or "DARKEYED_DAISY" in my statements/claims. If I had meant, you, personally, I would have said it. You are the one who has internalized and personalized the general statements I've made.

      To set the record straight:

      I'm not a medical professional, so I can't comment on whether or not Derek's behavior constitutes DSB. Apparently, you are, and of course, are you're free to comment on what constitutes drug seeking behavior.

      Originally posted by darkeyed_daisy
      But if you repeatedly show up in the ER complaining of pain and requesting Demoral/Percocet or whatever the drug may be then by all means you or anyone else with this behavior should and is labeled as a drug seeker.
      I'm not sure who you're referring to here, when you say "you." I have never shown up in the ER complaining of pain. The only time I have ever visited an ER was the night I was driven then by ambulance, after having sustained a burst fracture of my lumbar spine and incurred spinal cord injury.

      Originally posted by darkeyed_daisy
      Just because some of us choose not to take pain meds does not mean we are not in pain. I know that I have a high tolerance for pain. I have not been able to feel an ear infection since I had my accident. I am talking about ear infections that burst both ear drums before I even know I have them. I dont know about you but most people feel ear infections. I am not giving anyone a hard time for taking pain drugs.
      Again, I don't think you're one of the people I'm referring to when I mentioned the people on CC who piss me off for minimalizing the pain of others. From all your posts, you seem quite compassionate about the pain situation of others. Furthermore, I'm glad you have a high tolerance for pain.

      That said, there are a load of guys I've talked to on CareCure who do not need any drugs to manage their pain because they simply don't experience pain[<--i'm not referring to you, darkeyed_daisy]. That's cool, and a blessing for them as well. What is inexcusable is for these people that do not experience pain to minimize the pain complaints of others. [<-- again, i'm not referring to you, darkeyed_daisy]

      Originally posted by darkeyed_daisy
      It is no ones fault but your own if you have a physician that won't give you anything but NSAIDS for pain........
      I was simply curious why he didn't prescribe anything stronger. I wasn't assigning blame, or bitching, or anything else. But you're absolutely right. It's my own fault that I'm perfectly happy with my doctors and their prescribed course of treatment in the management of my pain. I'm currently going to acupuncture and massage therapy and neither take NSAID nor narcotics.
      Daniel

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        #48
        Well I do believe you are right about a disconnect......When you take a paragraph and quote it.......are you not referring to what that person said as in post #45 under this thread where you stated that it pissed you off. Im not internalizing or personalizing anything just reading what you wrote in response to my quoted words.

        I should have used "a person" instead of the word you.

        You don't have to be a medical professional to read "drug seeker" written on a chart Dan. By the way, I am not a doctor just an unimportant medical records person who can read.

        I also never implied Derek was a drug seeker. I was and am still concerned about the chance for a very real addiction to Fentanyl for him. The high dosage is still not working or else he wouldnt be still seeking information.
        T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

        My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

        Comment


          #49
          Originally posted by darkeyed_daisy
          Well I do believe you are right about a disconnect......When you take a paragraph and quote it.......are you not referring to what that person said as in post #45 under this thread where you stated that it pissed you off. Im not internalizing or personalizing anything just reading what you wrote in response to my quoted words.
          No. When I take a paragraph and quote it, I'm responding to the words, not the person.

          Originally posted by darkeyed_daisy
          I should have used "a person" instead of the word you.
          I probably should have left out the quotes. Sorry.

          Originally posted by darkeyed_daisy
          You don't have to be a medical professional to read "drug seeker" written on a chart Dan.
          But to have access to the chart, you should be involved in the person's care (that is, a medical professional)

          Originally posted by darkeyed_daisy
          I also never implied Derek was a drug seeker.
          My apologies. In reply to his post (in post # 33) you stated, "I think you are headed for a hefty addiction." I see the difference now.

          Originally posted by darkeyed_daisy
          I was and am still concerned about the chance for a very real addiction to Fentanyl for him. The high dosage is still not working or else he wouldnt be still seeking information.
          I agree. The high dosage is still not working. I hope Derek finds something to help manage his pain levels better.
          Daniel

          Comment


            #50
            Dan most doctors do not recognize us as medical professionals......LOL we are pions.........
            T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

            My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

            Comment


              #51
              OK folks, play nice, lol.

              Daisy, I will comment on one thing you said about folks with doctors who only want to prescribe NSAIDS. Unfortunately, there's a major problem for a lot of folks with very serious pain issues, and I'm talking about folks who would never in a thousand years consider abusing drugs and they're often seniors, who have doctors who either outright refuse to prescribe adequate pain meds or they're simply afraid to because of over-aggressive tactics by the feds that have been in the news lately. Many, many people with pain problems have doctors that simply "don't get it". I'm really happy to see that Derek has a doctor willing to work with him and is willing to try aggressive pain meds. I've had numerous people email me and practically beg for where they can find such a doctor.

              Dan and Daisy, I think you've sorted this out well enough at this point so lets get back to Derek's problem that was the original purpose of this whole thread, he's getting lost in the argument here.

              Derek, I hope you still feel you're able to come and discuss what's going on in your life right now. I know a couple of people said things that may have sounded like a personal attack, but don't give up on us. I know you're not a druggie and you're just trying to find something that will make it possible to survive each day. You have a HUGE challenge ahead of you to tackle college in the face of all this and you have my sincere respect for even considering it at this point in your life. I wish you all the best.

              BTW, I'm still curious how you're distinguishing between neuro and normal pain. There's several different possible manifestations of neuro pain beyond just the burning, such as muscle and gut pain. Do a little reading here and see if anything sounds like a possibility.
              http://painonline.org/mnem.htm

              Comment


                #52
                There was no argument.....just a colision of one track minds with different ideas. You know how women are.......we ironed it out in IM's. I agree 100 % with what you said. But the fact remains that even at high doses Derek says the Fentanyl isnt working.......I think that was the only concern here or my only concern anyway. I want to see Derek succeed and graduate from college!!!!!!!
                T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                Comment


                  #53
                  While I warned you about watching the patch's emotional impact, please don't put me on the "Derek is getting high" list.

                  You are NOT on a huge dosage. I know an RSD guy who runs 2 100's on his chest and a 50 on his arm...and pops about 150 percocet a month on top of it.
                  Each person is different in the way they react to the patch (or any med for that matter) and no two injuries are alike.

                  There is nothing wrong with this method of pain control.

                  A common mistake people make is to "just take the edge off" instead of trying for freedom from the pain.

                  Your want to eat or not eat is one of the very common side effects. This may sound stupid, but saltines worked the "grinding" out for me. At night was the time it bothered me. Ten crackers with peanut butter or just plain and some herbal tea with a touch of honey worked very well. (I had to force myself to eat them, but it calmed everything within 15 minutes.) It stopped after a couple of weeks.

                  I was on the patch for a good while.
                  PM me if you need to chat about it or you need a sounding board and you are too pissed off to continue this thread in public.

                  Comment


                    #54
                    PS
                    Derek, you have not been using the patch long enough to even adjust its proper level.

                    Sorry Daisy, but saying it did not stop his pain is a huge assumption.
                    Give it a chance.
                    It can take a while to find the right level.

                    Comment


                      #55
                      Originally posted by WonderDerek
                      Well, they work sometimes, I don't understand it. Like earlier today, still had pain but wasn't unbearable like usual. Now, the pain is horrendous again.
                      Another thing, I THINK I MIGHT need a stronger dose than 50mcg's and please believe me when I say I'm not trying to get high. That is the last thing on my mind, I don't want to get that euphoric feeling, I just want my pain to always be bearable. It's hurting so bad right now...
                      as for what daisy said, I don't like mixing them. It messes with my stomach if I mix them, but the 25mcg's weren't cutting it so I needed something to take. The 50mcg's work sometimes but the breakthrough pain is so wicked. I'll have to talk with my pain doc about all of this. He's a good doctor and I trust him.
                      I didnt make an assumption about anything, he said it.





                      David, That is a really good link. I am going to store it in my favorites. I totally agree with you about doctors. That is why it is important to find one that knows Spinal Cord Injury pain. It is hard to explain to someone who has no background in SCI.

                      Derek- I hope this link helps you understand what pain you are having. Maybe you can use it to talk to your doctor.
                      Last edited by darkeyed_daisy; 6 Aug 2006, 1:38 PM.
                      T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                      My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                      Comment


                        #56
                        Derek, One thing I have found as well, is that even tho' the fentenyl is not for neuro pain, if it can control the "regular pain" the neuro pain is easier to control as well. The other day my patch came off, and I didn't realize it. I had other issues going on (and ANYTHING painful below my level that I dont "feel" causes what I was told is "referred" pain in my back) so I never suspected it was the patch. That night I was literally sitting in bed sobbing while I was waiting for the breakthrough meds to kick in. Not only did my back pain skyrocket, but the neuro pain in my legs and lower back was through the roof as well. I know I have said this before, but try to find the balance of meds that will keep you comfortable, without fogging your brain to much for school. Good luck with it. I personally find the pain the biggest issue to deal with for the SCI.

                        ps just reread your posts and you mentioned working out again soon. That should help things some as well! I also realized that you said you don't have as much neuro pain as well, so some of what I said doesn;t really apply.
                        Last edited by sjean423; 6 Aug 2006, 4:13 PM.
                        T7-8 since Feb 2005

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                          #57
                          Just to end this thread I found the correct dosage. Thanks to all who have helped me with this topic. I also had to go a day and a half without the patch because of my dad forgetting to get them from the pharmacy. It was a BAD night. Thanks again

                          Comment


                            #58
                            "...please believe me when I say I'm not trying to get high. That is the last thing on my mind, I don't want to get that euphoric feeling, I just want my pain to always be bearable.?"

                            Derek, I am deleting the post because it was only meant to be humorous and sympathetic, not accusatory. (see below)
                            Last edited by dejerine; 17 Aug 2006, 3:09 PM.

                            Comment


                              #59
                              Originally posted by dejerine
                              "...please believe me when I say I'm not trying to get high. That is the last thing on my mind, I don't want to get that euphoric feeling, I just want my pain to always be bearable.?"

                              Come on Derek. You are lying. You expect US to believe you? Get off it. You can't kid a kidder.

                              Every one of us just wanted to get high. That is why we all went to such carefully executed lengths to acquire spinal cord damage and central pain just so we could have a socially acceptable way to beg our doctors for pain medicines and then get high AND very constipated.

                              I know of no more effective way of getting high than cord damage, with the help of course of the really expensive set of drugs you may sometimes be able to wrest out of the hands of your pain management center.

                              So don't tell us this was not all premeditated. You are a drug seeker, just like the rest of us. I can't believe you thought we would fall for it.
                              Although you seem to be being 'sarcastic' or whatever, FUCK YOU. I hate pricks like you. You might be the only person I'd wish my pain on just so you could shut your fucking mouth. Take my pain and you'd never open your fucking mouth again you fucking asshole. You deserve to die.

                              Comment


                                #60
                                ****************************NOTE****************** ***********
                                THE PAIN I AM HAVING IS NOT NEUROPATHIC PAIN. The problem I'm having is with the NON-neuro pain

                                One thing that I have just read is that people seem to overlook that I'm not looking for something to control my neuropathic pain. My neuro pain is more often than not bearable. The Fentanyl does, however, help with the neuro pain as well. I forgot to add earlier that I am now on the 50mcg patches and they work fine most of the time. I have one on now and although it is helping ease the pain it is not allowing me to sleep. I do not plan on upping my dosage either. Also, will someone ban the dejerine prick?
                                Last edited by WonderDerek; 17 Aug 2006, 6:24 AM.

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