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    #16
    I looked into it and spoke with each surgeon as I searched for some respite from the CP.

    Without exception none would even consider it indicating as an ambulatory incomplete they could guarantee a chair.

    the 2 surgeons who know me well and know I'm suicidal I told I'd trade pain for a chair both said that there is a very high probability I would still have severe pain and just will not perform the surgery.
    Kindly,

    The Ketamine Kitty

    All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

    Next time I die make sure I'm gone,
    don't leave 'em nothing to work on JT

    And I ain't nothin but a dream JM

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      #17
      Originally posted by dejerine View Post
      Cass

      Do you have any information as to what happened to Barry Corbet?
      dej,

      Barry passed away due to bladder cancer in 2004. It's my understanding he chose not to treat it.

      Or were you referring to his DREZ surgery?

      Comment


        #18
        I didn't lose any function as a result of the surgeries. I lost all spasticity and a couple inches of sensation and that's it. As far as I know, no surgeon will do it for a cervical injury. Sometimes I think the only workable trade for the pain is death. Believe me, I think about it every day.

        Comment


          #19
          Thanks for giving me something else to mention to my neuro surgeon. I know its not for everyone but I like to be armed with as much knowledge as possible. I see my neuro surgeon tomorrow after having had a myelogram Monday of last week. I thiink it's the first time that I have actually ever hoped I did have something wrong with me so that they can fins the cause of my pain. I have horrible pain right at T-4 where my supposedly complete injury is that feels like someone is stabbing me in the back with a knife. It stays right there and doesn't travel anywhere else which the docs always seem to find odd. It used to come on here and there and i'd take pain meds but now it tries to come on all the time. On top of that, I now get horrible burning and tingling in my stumps (both of my legs are also amputated above the knees). That's why I say "supposedly complete injury" because I obviouly have something down there, who knows though, I read that people with complete injurys can still have pain down there but it may be in the brain instead. It could also be that I have some feeling but the amputations are causing "phantom limb pain". I have a feeling that I may end up with an intrathecal pump soon. Does anyone know if they put local anethstetic in those instead of or along with opioids? I have been in bed mostly for a few months and I am usually out and about but it has been beating me down. I have a newborn infant too and feel guilty about my wife having to do so much of the work. I am not suicidal (yet) but sometimes I feel like pushing my chair down the stairs and breaking every bone in my body just to end up in the hospital and get proper pain medication but then I realize that even that medication doesn't work all too well anymore so then I feel trapped and hopeless and live in fear that I am going to be stuck like this with no way out.
          Ken

          Guns don't kill people. Daddys with cute daughters do!

          Comment


            #20
            DREZ at Craig - Doctor Falci

            Okay - Not going to get into the depth of my pain - It is BAD nasty mean unrelenting and a stop sign to life!

            Last week my spouse and I went to Craig for the 3 day evaluation to see if I would be a candidate for the DREZ. We had a great learning experience as after 32 years in the chair I have never had an evaluation! The trip was well worth it in many ways.

            I am a ʻgood candidateʻ. I will lose several levels (from an L-1 to a T-9) - this even if the surgery is not successful. Doctor Falci did a great job of explaining the pros and cons, and just what it is that he does during surgery. I felt comfortable with all the tests done on my body and felt the professionalism of the staff.

            I will need to have an MRI and a CAT scan of my spinal cord sent to Craig to see if there are unknown damages to my spine, like a cyst or damaged discs, or any other damage that would have to be repaired before the DREZ could be done. I wold also need to have some sort of a heart strength test maybe an EKG to see if my heart was up to the 12 hour surgery.

            At this point in time I feel that I have no other choice to rid my self of this 20 plus years of chronic pain. I have been in the chair for 32 years but the pain for the first 12 years was manageable with Darvon Percodan Ibuprofun in large doses but now, even with a 75 mpg Fentynal patch 24/7 the pain is unbearable.

            Gary
            Gary Is = L-1 Para for 34 years.....................
            ~~~~~~~~~~

            Comment


              #21
              When did you have the DREZ

              Originally posted by georgeh View Post
              I had the DREZ. Twice. 4/2003 and 8/2003. Dr. Scott Falci. Craig Hospital in Englewood, CO. Neither one did anything to reduce my pain. I am a complete T10 paraplegic. My pain is all below level and can best be described as a severe burn in my buttocks and down the back of my thighs. In addition to the burn, I also feel a strong gripping and pulling sensation in my genital and rectal area. It is a continuous, diffused pain. The only time I'm pain free is when I'm asleep. The 2 DREZ surgeries did accomplish one good thing, however. They completely eliminated all spasticity. Everything below T10 is now dead, dead, dead. No movement at all. I did lose about 2 dermatones of sensation as a result of the surgeries, so I guess I'm now a T8.

              I would advise anyone considering DREZ surgery for pain to think long and hard about it before going down that road. The operation takes 10-12 hours and it requires about a 14 day post surgical hospital stay. It then takes a few months at home to fully recover from it. It's major surgery with a capital "M".

              George Hunt
              Hi george, sorry for the unsuccessful attempt. Here I am considering doing it. I may be a dreamer but... You did go through it twice so you must have been, and apparently still are, desperate. Shit! What a f__k_d up deal!

              You had the DREZ in 2003 - 6 years ago - Iʻm counting on major medical and technological advances during the past 6 years specifically in the in the neurological field.

              Gary
              Last edited by Garyis; 12 Oct 2010, 8:16 PM. Reason: Change of dates
              Gary Is = L-1 Para for 34 years.....................
              ~~~~~~~~~~

              Comment


                #22
                Originally posted by georgeh View Post
                I didn't lose any function as a result of the surgeries. I lost all spasticity and a couple inches of sensation and that's it. As far as I know, no surgeon will do it for a cervical injury. Sometimes I think the only workable trade for the pain is death. Believe me, I think about it every day.
                Hey George, I have been to Craig for the evaluation, was deemed a good candidate for the DREZ.

                But, I am doing what you advised to do: "I would advise anyone considering DREZ surgery for pain to think long and hard about it before going down that road."

                I have been putting it off for months. But I am wondering about when you had it done in 2003, that was 8 year ago. Maybe there have been upgrades in the procedure?


                I am with you on this: "Sometimes I think the only workable trade for the pain is death."
                Gary
                Gary Is = L-1 Para for 34 years.....................
                ~~~~~~~~~~

                Comment


                  #23
                  Originally posted by Garyis View Post
                  Hey George, I have been to Craig for the evaluation, was deemed a good candidate for the DREZ.

                  But, I am doing what you advised to do: "I would advise anyone considering DREZ surgery for pain to think long and hard about it before going down that road."

                  I have been putting it off for months. But I am wondering about when you had it done in 2003, that was 8 year ago. Maybe there have been upgrades in the procedure?


                  I am with you on this: "Sometimes I think the only workable trade for the pain is death."
                  Gary
                  Hi Gary. I've been following your posts on whether to DREZ or not and was wondering if you have any news worth updating us with.

                  Thanks,
                  Geoman
                  "Wheelie Wanna Walk!"

                  Comment


                    #24
                    I had the DREZ proceedure done at Craig in 1989. It was not successful. The surgeons went back in a week later and did a nick on T12. The pain was resolved. Today after being basically pain free since '89, the sparks and shocks have returned in the same area. I have been treated the last 6 months for Parkinson's like symptoms with meds. The pain returned about a month after I started the meds for the Parkinson's. I think the treatment has stirred up the nerve root pain.

                    Comment


                      #25
                      Hi Gary,
                      Sorry for the late reply. I've been away from the computer for a couple weeks. I haven't followed the DREZ procedure and I don't know if there have been any real advancements in the last 8 years. I hope for your sake that there have been many.

                      Honestly, if I were you and I was deemed a successful candidate for it at Craig, I would go for it in a New York minute. Unlike the drugs that really don't do much, the DREZ will give you a real chance for pain elimination. There's nothing else out there right now that can give you that. If it works, your quality of life will be immeasurably better. If it doesn't work, you will have to go through a long surgical recovery for nothing. The chances of major problems are pretty slim. Best of luck for whichever route you choose.

                      George

                      Comment


                        #26
                        Originally posted by Geoman View Post
                        Hi Gary. I've been following your posts on whether to DREZ or not and was wondering if you have any news worth updating us with.

                        Thanks,
                        Geoman
                        Geoman, It can't happen!

                        Last friday, after about a dozen phone talks over a 4 month time span with folks from my insurance and from Craig, all of which got me no where. Nobody knew why I have not received any word on the approval, the CFO from Craig called me and she spoke with me for half an hour and she is a incredulous as I am.

                        The deal is, and I'll keep it short; Even tho Craig works with insurance companies from over 20 states, all on a case by case basis, Washington State will not do so. They want Craig to sign on as a provider. Craig does not do this, never has. Even the Colorado Workmans Comp is not a provider, but works with Craig on a case by case basis and no SCI has ever been denied access to craig.

                        That said, Washington State will only pay half of what the costs are. BUT.

                        Washington State does not accept DREZ to be a medical necessity! Soeven if Craig was a provider they would not approve the surgery. The first 3 months was W.S. trying to get Craig to sign, even knowing that they would not approve the surgery!

                        I asked why they paid for me to get the evaluation and was told that they never did pay the bill even tho they authorized it. They did not bill me because they saw that it was not my fault and Craig wrote it off. Doctor Falci was paid on a ONE TIM ONLY rule. As was Craig was back in 1992, they paid for the rehab for an SCI, and that was Craig's ONE TIME ONLY!

                        If you live in Washington and have WC or Qualis for insurance forget the DREZ, they won't pay.

                        This after waiting for over six months.

                        Now, it is living my life out with fukin pain, excuse me my no-life.
                        Last edited by Garyis; 17 Jul 2011, 1:54 PM.
                        Gary Is = L-1 Para for 34 years.....................
                        ~~~~~~~~~~

                        Comment


                          #27
                          Originally posted by georgeh View Post
                          Hi Gary,
                          Sorry for the late reply. I've been away from the computer for a couple weeks. I haven't followed the DREZ procedure and I don't know if there have been any real advancements in the last 8 years. I hope for your sake that there have been many.

                          Honestly, if I were you and I was deemed a successful candidate for it at Craig, I would go for it in a New York minute. Unlike the drugs that really don't do much, the DREZ will give you a real chance for pain elimination. There's nothing else out there right now that can give you that. If it works, your quality of life will be immeasurably better. If it doesn't work, you will have to go through a long surgical recovery for nothing. The chances of major problems are pretty slim. Best of luck for whichever route you choose.

                          George
                          Hey George, see my above post. The cost is over 100K. That leaves me out. So, here we sit, in pain, a poor quality of life. I try to overcome but it is hard to say the least. The only Med that makes any difference is the Fentynal Patch but even these do not relieve me enough to enjoy life.

                          Gary
                          Gary Is = L-1 Para for 34 years.....................
                          ~~~~~~~~~~

                          Comment


                            #28
                            This is my first post...sorry if I goof! What I'm reading is the DREZ will severe your spinal cord to reduce pain...does this mean if you have neuro pain there is a good chance you have some connection in the spinal cord?

                            Comment


                              #29
                              Originally posted by walkingagain View Post
                              This is my first post...sorry if I goof! What I'm reading is the DREZ will severe your spinal cord to reduce pain...does this mean if you have neuro pain there is a good chance you have some connection in the spinal cord?
                              DREZ does not severe a spinal cord. They snip/cauterize select nerve endings at the cord, ones that are found to be sending pain signals to the brain. This is putting it in simple terms.

                              I'd say yes. we do have connections to the spinal cord, at least down to the point of injury and then it would depend on how the cord was damaged.

                              You should do research into the DREZ and into the way a spinal cord injury damages the cord. Mine, for example was smashed into an iron railing, breaking apart the L-1 vertebrae and damaging the T-12 when I fell 40 feet, my back hitting the railing. Someone who was shot for example, would have a different kind of damage to the cord.

                              Sounds like you are trying to see a link to having some connection from the cord to the brain as the possibility of walking again?

                              Thinking back, I recall having the same thoughts. It does make some sense, but, so far no cure has come of it.


                              It is said that anything is possible if you can think it. This takes some powerful concentrated thinking!
                              Gary Is = L-1 Para for 34 years.....................
                              ~~~~~~~~~~

                              Comment


                                #30
                                Thank you Gary, I have to wonder if Neuro pain determines the amount of the spinal cord that in intact. Dr. Young has mentioned you only need 10% of the spinal cord to function as if nothing had ever happened. The logic would seem that the less neuro pain and spaciticty one has (based on the DREZ therapy) the less entact the spinal cord is. I believe in a cure...I'm not setting around waiting on it, but I know its coming!

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