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    Desperate in SC

    I am desperate for some pain relief. I cannot do opioids because of bowel issues. The burning pain in my lower abdomen and perineal area have become unbearable over the past couple of years. At times it feels like I was kicked in the groin. I am ready to start trying CBD and related products. Does anyone have a suggestion as to what I should start with? I know nothing about this stuff.

    #2
    Have you tried methadone? It took my burning pain down from 9-10 to 7-8. Much better... I mean, better than nuthin.
    ______
    Awe at my magnificent coq!

    "You may say I'm a dreamer
    but I'm not" - J. Lennon

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      #3
      If legal in your area, THC might help. Plain CBD did nothing for me. CBD w/THC has been proven to help many issues. Medical cannibus will be legal in my state by 2023. Doctors have to follow strict rules/reasons for prescribing. Most SCI's have legit reasons for it.
      Attack life, it's going to kill you anyway
      Steve Mcqueen (Mr Cool)

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        #4
        A pain clinic pharmacist could recommend specific medications
        I recall a specific medication that could focus on this lower rectal area of nerve pain as you are describing
        sorry I can’t remember it off hand

        pbr
        The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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          #5
          Unfortunately, our attempts to help my Dad's pain with trials of CBD/cannabis failed. We couldn't find any doctors who had any knowledge and could advise and follow our trials. Even the doctor who advertised as a cannabis friendly adviser only gave very general suggestions with zero recommendations of specific products. The people who work at the dispensaries we tried were not well trained, no medical backgrounds, had no idea how it would interact with his other meds etc..... it is kinda crazy how little knowledge they have about what they are giving you. And honestly, the doses of CBD I finally realized he would probably need would be so high that the price was also crazy for daily use. It also seems to be that you need to have the THC as well to have benefit, despite high CBD doses. And my Dad did not like at all how it made him feel. He just wanted pain relief.... no cognitive effects.

          I'm not saying you shouldn't try it. I'd look at the other thread on here, and honestly... just have your caregiver go in to one of the dispensaries and try to find the most knowledgeable person there and just learn what you can. If you could see someone in a Pain Clinic, that would be great.

          Have you maxed out the neuropathic pain meds (eg. gabapentin, cymbalta/duloxetine etc..)? Tried tramadol instead of traditional opioids? Seen a pain specialist? Tried the bowel medication that counteracts the effects of opioids, and tried opioids with that (I'm blanking on the name...._?

          I'm so sorry this is so hard. My Dad wishes you well.
          Last edited by hlh; 24 Nov 2021, 12:53 AM.

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            #6
            Originally posted by hlh View Post
            Unfortunately, our attempts to help my Dad's pain with trials of CBD/cannabis failed. We couldn't find any doctors who had any knowledge and could advise and follow our trials. Even the doctor who advertised as a cannabis friendly adviser only gave very general suggestions with zero recommendations of specific products. The people who work at the dispensaries we tried were not well trained, no medical backgrounds, had no idea how it would interact with his other meds etc..... it is kinda crazy how little knowledge they have about what they are giving you. And honestly, the doses of CBD I finally realized he would probably need would be so high that the price was also crazy for daily use. It also seems to be that you need to have the THC as well to have benefit, despite high CBD doses. And my Dad did not like at all how it made him feel. He just wanted pain relief.... no cognitive effects.

            I'm not saying you should try it. I'd look at the other thread on here, and honestly... just have your caregiver go in to one of the dispensaries and try to find the most knowledgeable person there and just learn what you can. If you could see someone in a Pain Clinic, that would be great.

            Have you maxed out the neuropathic pain meds (eg. gabapentin, cymbalta/duloxetine etc..)? Tried tramadol instead of traditional opioids? Seen a pain specialist? Tried the bowel medication that counteracts the effects of opioids, and tried opioids with that (I'm blanking on the name...._?

            I'm so sorry this is so hard. My Dad wishes you well.
            Soon after my injury 26 years ago I began experiencing what they called at Shepherd, 'Burning Butt'. They put me on Amitriptyline, a tricyclic antidepressants used to treat depression, but also chronic pain. The burning is still there 24/7, when bad, feels like I'm sitting on a hot grill. I take 20mg in the morning and at bedtime. It has been very effective in controlling the burning.

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              #7
              Thanks Jim for posting your response on amitriptyline, if you can't tolerate amitriptyline---> nortriptyline causes less side effects
              pbr
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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