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    What meds?

    T7 incomplete. Nerve pains from back that radiates to rib cage and stomach. Movement increases trunk pain as well. What have you tried for pain? Any suggestions? Right now, just taking gabapentin..

    #2
    I now only take a little Baclofen these days to help with the tone pain, since I can feel my quads and that's where my bad spasticity/spasm/cramp muscles are. Opiates helped me not care, but too harsh and addictive for my body and personality. Gabapentin took some of the tingle edge off but none of the pain. There are no great options, IMO, but try everything your doc suggests, to be sure. We're all a bit different in that regard.
    "I have great faith in fools; self-confidence my friends call it." - Edgar Allen Poe

    "If you only know your side of an issue, you know nothing." -John Stuart Mill, On Liberty

    Comment


    • triedandconvicted
      triedandconvicted commented
      Editing a comment
      I have pain in hamstrings and excess tone in legs.I wanted to medicate the tone hoping the pain would go away but my doctor wants to increase gabapentin to treat the pain , he says this will make the tone go away as well.It is the opposite of tone pain.
      Last edited by triedandconvicted; 25 Jan 2022, 12:18 PM.

    #3
    Having found no relief, I’ve settled on compounded low dose naltrexone (LDN) 4.5mg. I’ve been wondering a lot lately whether it actually does anything tho I recall when I started four years ago being convinced that it did. It supposedly steps up production of our endorphins. I know I went from not dreaming of leaving the house ever due to feet to waist neuro pain to getting back out. I’m still constantly in pain which fluctuates but somehow the edge is off just enough or I care just a little less maybe? I’m honestly wondering whether the passage of time just moved it a little to the background, tho. For me, distraction is far and away the best or maybe only treatment for neuro pain.

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      #4
      Originally posted by Oddity View Post
      I now only take a little Baclofen these days to help with the tone pain, since I can feel my quads and that's where my bad spasticity/spasm/cramp muscles are. Opiates helped me not care, but too harsh and addictive for my body and personality. Gabapentin took some of the tingle edge off but none of the pain. There are no great options, IMO, but try everything your doc suggests, to be sure. We're all a bit different in that regard.
      Now and again when I need a day's vacation from the "bad spasticity/spasm/cramp muscles" I take 1/8th to 1/4 mg of clonazapam. Usually it works wonders, but not always. I think it depends on the cause and I don't always know the cause. Today barometric pressure fell hard and put me in intense difficulty the clonazapam didn't even touch it.

      Comment


        #5
        I too find relief from clonazepam. Anywhere between half and one mg. It works wonders for my nerve pain but I agree it is finicky. The timing is important. I worry about dependence but for now I use it episodically which is often daily. Weekly to be sure. THC, CBD and ketamine are also part of my regime.

        Comment


          #6
          I like topical applications that work well on point locations like lidocaine 5% patch
          pbr
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment


          • Sue Pendleton
            Sue Pendleton commented
            Editing a comment
            Same here. I am still recovering from surgery and if I move even at a snail's pace my lower back literally arches my back where the scoliosis is. I find the brand Salon Pas made with caspascion (the hot pepper stuff imbedded in self adhesive patches) and press one on along the vertebrae where it hits works very well. Be careful not to touch eyes or sensitive skin with these patches. They are OTC and are fairly inexpensive since I tolerate them well and can leave one on for 24 hours. I had burning feet( soles) early on and my Walter Reed Doctor thought we should try the prescription strength lidacaine patches. You can only leave the Rx strength ones on for 12 hours then wash feet or wherever and after 12 hours without add a new one. We tried the non-prescription version for the excess tone in my back after about 2 days post-surgery to help the tramadol and it did nothing. And for nerve pain in feet a hefty slathering of moisturizer or Udder Balm then cover with cotton socks before bed helps cover areas where we all used to have many layers of protective skin/callouses between all the surface nerves in our feet and the outside world.

          #7
          Originally posted by SCI-Nurse View Post
          I like topical applications that work well on point locations like lidocaine 5% patch
          pbr
          Any specific lidocaine patch you recommend? My shoulders ache somedays I might try this.

          Comment


          • HACKNSACK44
            HACKNSACK44 commented
            Editing a comment
            Thanks for the help.

          • HACKNSACK44
            HACKNSACK44 commented
            Editing a comment
            I have only seen 4%. Am I missing something?

          • SCI-Nurse
            SCI-Nurse commented
            Editing a comment
            Dermalid, Lidoderm, and Ztildo are prescription 5% lidocaine patchs used for neuropathic pain. They are are also available OTC in the USA. (KLD)
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