I?m currently taking Gabapentin 1200 3 times a day baclofen 20 mg three times Cymbalta 30 mg three times a day and Oxy every four hours. The nerve pain is still horrible. Just tried acupuncture for the first time out of desperation. Nothing seems to help. Any advice or suggestions? I?m willing to try anything at this point.
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Originally posted by Hoffman7213 View PostI?m currently taking Gabapentin 1200 3 times a day baclofen 20 mg three times Cymbalta 30 mg three times a day and Oxy every four hours. The nerve pain is still horrible. Just tried acupuncture for the first time out of desperation. Nothing seems to help. Any advice or suggestions? I?m willing to try anything at this point.
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Hoffman, please complete your profile. It is difficult to put your questions in context without knowing if you have a SCI/D, your age, gender, and location. Thanks!
(KLD)The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.
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My wife is a T9 incomplete. Her pain has been ramping up the last few months. She uses Med MJ, and a TENS machine. By mistake we discovered an odd but effective thing.
As I understand the TENS machine - it basically creates neurologic white noise so the brain doesn't hear the pain signals.
Before her tumor was removed, she would ask me to flex her toes back to stop her pain. We thought it odd, and funny, but it worked!
I'm not sure how we figured this out, but if I slap the bottoms of her feet SHE LOVES IT. Not in a masochist way (I knew your mind would go there). Not too hard, but harder than I would if she didn't champion harder. Then I scratch down her feet with my fingernails. Then slap a few times, then scratch,... on and on. This seems to short circuit her pain & in short order she's without pain. The slapping wouldn't bother my feet - but the scratching would put me thru the ceiling.
With the thought lately that distracting the brain is the key (have you seen the video's of Drs that distract children & give them a shot with little fuss?), we'e going to keep playing with this.
Anyone else got anything to chime in on this?
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It’s expensive and there are side effects, but Lyrica helps me while gabapentin did not.2012 SCINetUSA Clinical Trial Support Squad Member
Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.
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