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Can't take it anymore!

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    Can't take it anymore!

    Almost from the first day of my injury (June 2012), I have been in constant pain. I've tried everything. I just cannot take it anymore. It's overwhelming. I cry almost non stop. I have no joy in my life. I feel trapped in this nightmare that has no end. Thanks for listening.

    #2
    The offer I was given many years ago was to have the spinal cord cut cleanly just above my injury level (T6). The assumption was that the messy nature of my multiples fractures in the area was the cause of the pain. Good luck

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      #3
      It is a bitch. It is very overwhelming but try to find things to do that take your mind of of it. Its hard but distracting yourself from t is the only thing that seems to help. I find cool showers to help as you pay attention to the water and not the painful areas. Sometimes thinking about the places that do not hurt also helps. Sorry to hear you are in this boat.

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        #4
        Treating your mood can help. Pain makes you depressed, and depression increases pain. A vicious cycle. Sometimes anti-depressants also have separate anti-pain effects... particularly cymbalta and Effexor (both have cheaper generic versions). This is so, so important.

        My Dad also has a lot of pain. He takes a mixture of nerve pain meds, antidepressants, tramadol and opioids. And when it isn't enough, he slaps an ice pack on the worst spot. He agrees that distracting yourself is important too. He wants to try more mindfulness meditation techniques. His doctor has also wanted him to try medical marijuana.

        i'm sorry you are having such a hard time. It's really awful.....

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          #5
          I am fortunate to were I don't experience pain. That being said I have had 2 different buddy's that experienced pain so bad I'd watch them eat (CHEW) 2 1000 vicoden just to ease the "pain". Hour later on the boat they'd go to chew up 2 more !!! I'd have to ask them if they even remember taking the 2 they just did an hour previously....... Both of my buddy's now have not nearly as much pain and one of them is right off of opiods, doesn't have any "pain". If i happen to catch myself taking vicoden 2-3 days in a row I'll automatically wake up in "pain" and go to eat a pill... I'll stop myself go to the gym and pound my back muscles as hard as i can instead and my back will no longer hurt.
          I believe a lot of pain comes from the pills playing a roll in our heads telling us "your in pain, ya need a pill"

          Maybe the case, maybe not. Like I said I'm very fortunate and don't have much pain. I hope it get's better for you.

          Good luck

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            #6
            Originally posted by clk55pete View Post
            The offer I was given many years ago was to have the spinal cord cut cleanly just above my injury level (T6). The assumption was that the messy nature of my multiples fractures in the area was the cause of the pain. Good luck
            FWIW I discussed this with my neurosurgeon and his experience is that it will NOT help with pain at all.
            -ket

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              #7
              Have you tried meditation? fwiw I was suicidal due to pain, look me up I posted my death spiral). Went to UMASS Medical for meditation (MBSR) went back and got teaching credentials then went on to UMT and got teacher certification in Insight Mindfulness. It totally turned my life around. My partner and I work with many pain clients.
              www.pathwaytomindfulness.com fyi we teach via skype and have clients as far away as Australia.
              -ket

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                #8
                Originally posted by ketamine kitty View Post
                FWIW I discussed this with my neurosurgeon and his experience is that it will NOT help with pain at all.
                -ket
                That is my experience as well. In addition, this procedure (cordotomy or cordectomy) can cause a whole lot of other problems.

                (KLD)
                The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                  #9
                  Hard to believe that there is hardly any mention of leaving life because of 24/7 severe pain.
                  I for one, or, I'm sure there are more of you who have had this thought.
                  I read that mindful meditation post, would it really work?
                  I was paralyzed in 1979 and for the 9 previous years I did yoga and meditation every day.
                  After several years in the chair I wane back to the practice. I still meditated but not for the past days.

                  My mind is locked into the pain, not much else matters or has any meaning.
                  The paralyzed part of my body is in 24/7 severe burning pain.
                  I have chronic Sciatic pain and for the past eight months I have Irritable bowel syndrome with 24/7 severe left abdominal pain.
                  No I dont self. Im like a slug during the day, done know what foods to buy or how to cook. I used to cook up until about a years ago.

                  I am now ready, the method is not yet decided but I am taking much consideration to make things for my kids.

                  Pain meds LAUGH,, NOTHING works, Ive been on so many pain meds over the past 20years it is a wonder that my mind is still somewhat intact. Now I am taking nothing because nothing works.

                  Garywas

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                    #10
                    I didn't take up the offer...

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                      #11
                      I am on Effexor and have been for months now. Helps some, but I still have crying spells every day....

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                        #12
                        Wish I could. I used to be very, very active. If I wasn't working out, I was playing softball, jogging, golfing, yard work etc. Now when I try to work out my pain level goes from 7 to 8 or 9. Its a catch-22.

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                          #13
                          I tried this. Either the pain is too great or I doze off!

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                            #14
                            I am now trying to wean off the opiods. For the last few days, I have taken 1/2 of a 4 mg dilaudid when I start to get really really anxious. However, the pain has ratcheted up. I'm going to try to stick it out. To "garywas": I have never considered suicide because of my religious beliefs. However, there is hardly a day that goes by that I don't ask God to take me as I am more than ready.

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                              #15
                              Originally posted by MikeRobison View Post
                              I am now trying to wean off the opiods. For the last few days, I have taken 1/2 of a 4 mg dilaudid when I start to get really really anxious. However, the pain has ratcheted up. I'm going to try to stick it out. To "garywas": I have never considered suicide because of my religious beliefs. However, there is hardly a day that goes by that I don't ask God to take me as I am more than ready.
                              I believe if you can fight the opioid addiction and become active again the "pain" will dissipate... Good luck, hopefully that works !

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