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    #61
    Tired of this constant burning hell !!
    Don't wanna get sucked into the med route if it worked so well then why are so many of us in pain..
    It's like asking how bad do you feel like screwing yourself over ..
    Don't bitch I keep telling myself except this burning hell is just that a burning hell.
    Tired of this

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      #62
      There is no end to this neuropathic hell the burning never stops , if you get relief with med consider yourself lucky , don't let Dr.'s bullshit you.

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        #63
        I can't take this constant burning anymore.

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          #64
          Have you tried a TENS unit? Your pain sounds much worse than mine but wondering if Tens did you any good. In the recent past I've added this to my arsenal of pain treatment.

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            #65
            Originally posted by Freespin 71 View Post
            I can't take this constant burning anymore.
            You have to keep busy with doing something, even if it aggravates you.

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              #66
              Originally posted by triumph View Post
              Have you tried a TENS unit? Your pain sounds much worse than mine but wondering if Tens did you any good. In the recent past I've added this to my arsenal of pain treatment.
              TENS seems to work best for radicular (at level of injury) pain, rather than generalized neuropathic pain, but it is certainly worth a try even for this type.

              (KLD)
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                #67
                Yes I've tried tens units it made what I feel worse and do try and keep myself as busy as I can be.

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                  #68
                  Originally posted by Freespin 71 View Post
                  There is no end to this neuropathic hell the burning never stops , if you get relief with med consider yourself lucky , don't let Dr.'s bullshit you.
                  It isn't terminal, but it does make some people wish it was.
                  Alan

                  Proofread carefully to see if you any words out.

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                    #69
                    I'd like to go back in time, tell Marie Antoinette she is a b-tch, and get guillotined.
                    Alan

                    Proofread carefully to see if you any words out.

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                      #70
                      I posted this elsewhere too so please forgive the redundancy.

                      Do either steroid injections or RFA apply to ASIA A (completes) with 24/7 neuro hell? New job means no medical mj for me for quite some time now (upcoming drug screen) and lyrica isn't helping so base pain went from 3/4 to 5/7 which can really affect concentration.

                      Tramadol seems to take a slight edge off, but not much and I'm not keen on using it regularly.
                      T3 complete since Sept 2015.

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                        #71
                        How about an implanted spinal cord simulator.

                        Like the ones from
                        Boston scientific http://www.bostonscientific.com/en-U...r-systems.html
                        Medtronic https://www.medtronic.com/us-en/heal...n-systems.html
                        Nevro https://www.nevro.com/English/Home/default.aspx
                        Abbott St. Jude medical https://www.sjm.com/en/professionals...b-d0dd6899eb3a

                        The four I know of ! anyone know of anymore ?

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                          #72
                          Very mixed results with those and the surgery is pretty risky...
                          T3 complete since Sept 2015.

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                            #73
                            When you say pretty risky, what are you referring to?

                            You can at least trial them, before they do the full implant so you have some idea if it would provide any kind of relief.

                            I am sure the margins and profit margins are huge for this, as every pain doctor I've ever spoken to has given me the hard sell on these.
                            There seems to be no issue with insurance paying !!
                            Would be interesting to know the benefits and pitiful of the competing products.. plus their sales numbers.
                            Everyone seems to talk smack about medtronics !

                            Originally posted by Mize View Post
                            Very mixed results with those and the surgery is pretty risky...

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                              #74
                              I'll ask my pmnr. I might have to do some educating.
                              T3 complete since Sept 2015.

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                                #75
                                Any idea how you try something out that requires surgery?
                                T3 complete since Sept 2015.

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