Ok. So my name is Stacie. I've had a SCI since May 2006, 8 years ago. T4-T5 level.
So for 8 years I've had, what sadly seems the usual pain that comes with a SCI. Burning, stabbing, tingling, shocking...etc. My pain has always been an issue, never ending. My legs have also always been spastic, but never to a point where it was painful or lasting long periods.
Now this is the part that I want to see if anyone else has dealt with or know what's happening:
The last 2 or 2 1/2 years the pain was just getting worse and worse. I was finally perscribed Norco (hydrocodone) and that helped a lot. But now since about April me legs started getting more spastic, we checked for UTI or any other infections because that's why they normal will spasm more. But no. Now it's October. I feel like I'm in hell! Every morning(if I even sleep) I wake up with my legs jerking so hard! The muscles in my calves feel like rocks. But I'd get up get in my chair and the spasms would last 30 min. to 1 hour. Then calm for the day.
But this is the last 2 weeks of symptoms:
Legs spastic= won't let up at all. Every second of the day. The knees clench together. My feet press hard against my wheelchair footplate.
My pain level is like on at a flippin 10 on a scale of 1-10.
When spastic = My face feels like it's burning hot & I'm just pouring sweat from my face.
I normally never get headaches but in the last month I've had 6 really bad ones, feels like right behind my eyes. My eyes have also been doing a weird thing for the last 2 months. They'll go cross-eyed and I get super tired, so the only thing I can do is lay down. If I turn my head to either side for more that a second I see stars.
When me legs spasm, the kick straight out which then pulls my back muscles & I get yanked backwards hard!
Also when they are spastic, my chest tightens to wear I feel like I can't breathe. My stomach feels clenched in a ball, so don't want to eat.
My doc did an MRI, CT scan, X-rays, bloodwork, and ultrasound to look for bloodclot or anything. But he can't see anything that could be wrong.
PLEASE, somebody I need to know what is happening. I've lived with pain 8 years, but this last month, I can't live like this. I am in hell every day.
Add On: I've tried Neorontin, Lyrica, Lamectal, Cymbalta, Tizanidine, Flexirel, Baclofen, even steriod injections. and more meds that I can't remember at the moment.
So for 8 years I've had, what sadly seems the usual pain that comes with a SCI. Burning, stabbing, tingling, shocking...etc. My pain has always been an issue, never ending. My legs have also always been spastic, but never to a point where it was painful or lasting long periods.
Now this is the part that I want to see if anyone else has dealt with or know what's happening:
The last 2 or 2 1/2 years the pain was just getting worse and worse. I was finally perscribed Norco (hydrocodone) and that helped a lot. But now since about April me legs started getting more spastic, we checked for UTI or any other infections because that's why they normal will spasm more. But no. Now it's October. I feel like I'm in hell! Every morning(if I even sleep) I wake up with my legs jerking so hard! The muscles in my calves feel like rocks. But I'd get up get in my chair and the spasms would last 30 min. to 1 hour. Then calm for the day.
But this is the last 2 weeks of symptoms:
Legs spastic= won't let up at all. Every second of the day. The knees clench together. My feet press hard against my wheelchair footplate.
My pain level is like on at a flippin 10 on a scale of 1-10.
When spastic = My face feels like it's burning hot & I'm just pouring sweat from my face.
I normally never get headaches but in the last month I've had 6 really bad ones, feels like right behind my eyes. My eyes have also been doing a weird thing for the last 2 months. They'll go cross-eyed and I get super tired, so the only thing I can do is lay down. If I turn my head to either side for more that a second I see stars.
When me legs spasm, the kick straight out which then pulls my back muscles & I get yanked backwards hard!
Also when they are spastic, my chest tightens to wear I feel like I can't breathe. My stomach feels clenched in a ball, so don't want to eat.
My doc did an MRI, CT scan, X-rays, bloodwork, and ultrasound to look for bloodclot or anything. But he can't see anything that could be wrong.
PLEASE, somebody I need to know what is happening. I've lived with pain 8 years, but this last month, I can't live like this. I am in hell every day.
Add On: I've tried Neorontin, Lyrica, Lamectal, Cymbalta, Tizanidine, Flexirel, Baclofen, even steriod injections. and more meds that I can't remember at the moment.
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