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  • Ghost town

    Compared to just two months ago the pain forum seems like a ghost town. In a lot of ways that's a good thing I'm hoping it means people are out enjoying life. Maybe to the warmer weather has helped ease some of the nerve pain we all experience although even on warm days I tend to think that's just wishful thinking.

    I'm sick and tired of my hip feeling like it's broke, my back feeling like it's twisted like a pretzel and my abdomen burning like it's full of hot coals!

    I'm taking 150 mg of Lyrica three times a day and I have a prescription for oxycontin 7.5 which I can take up to 3 times a day. I usually only take one a day they make me kind of nervous. I also take a Valium at night that really helps me sleep.

    I'm so worried about addiction that half the time I wait too long and I'm miserable before I take a pill which isn't the right formula I know.

    My head just doesn't seem to be in the right place I worry about everything and concentrate much too much on my pain. There are people who have it so much worse off than I do I continue to wallow in self pity!

    For those of you who take Lyrica how much are you on and if you also take Oxycontin what is that dosage? Oh and no I don't have a PM doc the one I did have last year gave me a steroid shots and recommended the spinal cord stimulator. That is before he got busted for a DUI after wrecking his jaguar. Since he was the only game in town I get my midst through my regular Doc

    Well thanks for let me blab away I was home alone and even though it's just a page it's a friendly web site and I needed the company.
    Courage is being scared to death but saddling up anyway. .(John Wayne)

  • #2
    You're not wallowing in self-pity CP, not by any means.

    As to addiction, I think people on pain meds all get physical addictions and will go through some withdrawal when stopping. It's the mental addiction, the addictive personality, that's most dangerous. Sounds like you're doing fine. Good luck man.
    Please donate a dollar a day at http://justadollarplease.org.
    Copy and paste this message to the bottom of your signature.

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    • #3
      Originally posted by Cowboys_Place View Post
      Compared to just two months ago the pain forum seems like a ghost town. In a lot of ways that's a good thing I'm hoping it means people are out enjoying life. Maybe to the warmer weather has helped ease some of the nerve pain we all experience although even on warm days I tend to think that's just wishful thinking.

      I'm sick and tired of my hip feeling like it's broke, my back feeling like it's twisted like a pretzel and my abdomen burning like it's full of hot coals!

      I'm taking 150 mg of Lyrica three times a day and I have a prescription for oxycontin 7.5 which I can take up to 3 times a day. I usually only take one a day they make me kind of nervous. I also take a Valium at night that really helps me sleep.

      I'm so worried about addiction that half the time I wait too long and I'm miserable before I take a pill which isn't the right formula I know.

      My head just doesn't seem to be in the right place I worry about everything and concentrate much too much on my pain. There are people who have it so much worse off than I do I continue to wallow in self pity!

      For those of you who take Lyrica how much are you on and if you also take Oxycontin what is that dosage? Oh and no I don't have a PM doc the one I did have last year gave me a steroid shots and recommended the spinal cord stimulator. That is before he got busted for a DUI after wrecking his jaguar. Since he was the only game in town I get my midst through my regular Doc

      Well thanks for let me blab away I was home alone and even though it's just a page it's a friendly web site and I needed the company.
      I have a high tolerance to all drugs, not because I've taken them, just because I have a weird metabolism.

      My nerve pain finally got managed with 75mcg/hr Fentanyl patches along with 15mg Valium 3x/day. The Valium REALLY helped with the burning in my legs and my feet, I don't know if it was combined with the Fentanyl or just by itself. But slowly over the past 2 weeks the pain has slowly started coming back (the burning) - But I've also had a pretty bad UTI, so I don't know if that may be the cause. I'm hopeful that is the cause. Still fighting the UTI.

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      • #4
        jbridges9, I tried the Fentanyl patches back in January and they made my nerve pain much worse. I haven't tried taking any Valium during the day I will have to keep that option in mind.

        You said you have a pretty bad uti I definitely think they contribute to making nerve pain worse. I hope you're able to get it under control real soon and that helps lessen the burn.

        I wonder if it's possible for the nerve pain to ease up or just disappear without explanation. I would so love to wake up one morning without pain. . :-)

        I hope everyone is able to get out and enjoy Memorial Day weekend. God bless those men and women who've protected and continue to protect this country and our freedoms.
        Courage is being scared to death but saddling up anyway. .(John Wayne)

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        • #5
          Originally posted by cowboys_place View Post
          i hope everyone is able to get out and enjoy memorial day weekend. God bless those men and women who've protected and continue to protect this country and our freedoms.
          word

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          • #6
            I'm feeling the back pain too. Mostly when I lay down though. Feels so much better when I'm up. My husband rubbed my back at 630 this morning because I was in tears. He said he felt a bunch of knots up and down my spine and rib cage. Blah! Hope you get some relief soon.
            Last edited by offroaderswife; 05-26-2013, 08:05 AM.
            DFW TEXAS- T-10 since March 20th, 1994

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            • #7
              cowboy - I take 150 lyrica and sometime an extra 75 mg. oxy IR maybe 10 mg prn plus ambien at night. That is to survive. I am like you that I tend to try to take the least possible which might be a mistake. Despite all the meds, I am miserable every day even though I try to make the best of each day. I am writing less on this site. I think I expressed all I needed to say in past posts. I am talked out. It is time for others to share their soul on the internet.

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              • #8
                I take 200 mg of Lyrica three times daily, 200 mg Tramadol ER, 50-100 mg of regular Tramadol per day. I tried cymbalta and it helped too, but I did not like the side effects and the relief did not outweigh them.

                First thing that comes to mind is maybe kicking up the Lyrica to 600 per day.

                Hope you get some relief soon. It's a battle.
                2012 SCINetUSA Clinical Trial Support Squad Member
                Please join me and donate a dollar a day at http://justadollarplease.org and copy and paste this message to the bottom of your signature.

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                • #9
                  cowboy, find relief. addiction? view it as dependence at worst. i'maddicted to insulin, without it i'd go into withdrawal and die. just how you look at things

                  I've been on the board a while, have nothing to offer and find it the equivalent of my drunk and dial routine.

                  Also came to the hard reality i'll not get better and am getting worse so have nothing left.

                  I hope you find some peace and relief.

                  kindly,

                  ket

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                  • #10
                    Hi Cowboy, Sorry to hear you're feeling so much pain. Try not to wait until that point, take your meds on a regular schedule. I take 40mg of oxycontin ER 2 - 3 times a day. Yes, I'm physically addicted, not mentally though. If I don't take my meds I'll go through physical withdrawals after about 12 hours. It's not pleasant and I feel guilty about it, but I know I have to do it to have a somewhat "normal" life. The pain is still there, but I'm able to sit up in my bed and maybe even in my wheelchair for two hours a day that way. I tried Lyrica and it didn't work for me. I'm on Cymbalta 60mg and that works pretty good for the nerve pain.
                    I'm like you in that I think of all the people that are worse off than me and feel that I shouldn't complain. Then again we are worse off than we used to be, so I think we are justified to complain a alittle.
                    This is actually my first post, as I'm a fairly new member. I'm in the process of moving from Germany to California, so life is pretty stressful for me right now. I hope to be an active member here, as all of you have contributed so much useful information . Take care.

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                    • #11
                      LadyT, being a native California let me welcome you to the state not that it's much of a state to come to anymore.

                      Like most of you I've been coming to this website for a while posting my problems, complaints and worries at times doing it so often it's as if it's become an obsession.
                      However for the most part my SCI brothers and sisters on here are the only ones who can understand what I'm going through. My poor mother has watched and listened to me suffer and complain to the point where it drives her mad. I know she isn't mad at me just the situation and that nobody's been able to help me. I can't help but feel like a burden if I don't feel like doing something or if I complain.

                      Don't get me wrong she doesn't make me feel this way it's me and my head it's as f**#ed up any more as my body. Four months ago I was writing a goodbye letter to my loved ones thinking that this summer would be my last. I never finished it knowing I couldn't do that to my family and friends. So I will go on suffering until my time is up and in meantime I'll continue to pray we all find some relief SOON!!!

                      Thank you ALL for listening to me I just wish you were in a position where you didn't have to. . Take care
                      Courage is being scared to death but saddling up anyway. .(John Wayne)

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                      • #12
                        my suggestion is to try to stop beating up on yourself. as far as meds i take 100mg lyrica 3x day/10mg oxycodone 3x day/. like others have stated, i view it as a maintaining thing. much like i take lisinopril 20mg 1x day for high blood pressure. i do not view any of my med consumption as addiction. what you said about writing letters rang a bell with me. i've also done that. but i've also shared what is in those letters with those concerned simply to try and increase understanding. i'm 3 years out from my accident and i actually am pleased with myself that i've lived through it as much as it sucks. it sorta helps define me. in a way people in our situation are like those who fought and suffered in wars for something they believed in, just a different war. it is one that still challenges your will and spirit though. good luck.

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                        • #13
                          CP, meds are idiosyncratic, especially Lyrica which can increase pain and cause suicidal depression. I've posted elsewhere about our near disaster with Lyrica.
                          I assume you have tried massage etc. Aqua therapy could help and you don't have to go to a facility to use it.
                          Also, yes you should try to stop beating yourself up. What you are enduring is heroic and worthy of admiration. Psychic pain is going to intensify the physical.

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                          • #14
                            I think alot of it is the weather, people perk up when the weathers nicer and not stuck indoors
                            We must reject the idea that every time a law's broken, society is guilty rather than the lawbreaker. It is time to restore the American precept that each individual is accountable for his actions.
                            Ronald Reagan

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