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  • Crack in butt burning like hell.

    Sorry, my problem is nowhere close to how bad most of yours is and I DO KNOW that a lot of folks get screwed over about meds.

    My butt burns like hell. Sounds stupid I know but it feels like the absolute worse diaper rash you ever had. The kind where you run from your vehicle upstairs to the bathroom for a large handfull of vasaline.

    It has been bad for years and the only way I can get relief is covering every inch of my crack with bag balm. Cheaper than vasaline and my butt is as soft as a babys. Makes a terrible mess out of everything including ROHO cover. Used Butt Paste at VA Spinal Cord Center.

    Anyone have this problem or know how to fix such a thing? I take 90mg of morphine and it barely does anything. Like sitting on a blow torch.
    C 5/6 Comp.
    No Tri's or hand function.

    Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

    Teddy Roosevelt

  • #2
    Is it red and irritated or just burns?
    I've had "burning butt" since soon after my accident 17yrs ago.
    Often feels like sitting on a grill, some days are worse than others.
    I take 20 mg of Amitriptyline twice a day.
    Exercise and laying on stomach help.

    Comment


    • #3
      I agree. Do you actually have a rash or skin redness, or is this a burning hypersensitive buttocks neuropathic pain (allodynia), and the skin actually looks normal?? These would be treated very differently.

      (KLD)
      The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

      Comment


      • #4
        My rear looks very good and I am fortunate that my skin has held up well. Had visiting nurse check it today. It started soon after injury and never really knew what causes the unrelenting burning. Sitting on a grill is good comparison. I am sure now that I have been told that it appears to be the burning neuropathic pain. Always thought it was just me. Thank goodness the bag balm numbs it somehow but the mess my poor caregivers deal with is terrible. Not cheap either.

        It would be wonderfull if I could take a medicine to dampen the burning somewhat. It does help to lay on my side. Sometimes I almost pass out when turned because the pain relief allows me to sleep after a long difficult night of pain.
        Last edited by forestranger52; 03-29-2013, 07:34 PM.
        C 5/6 Comp.
        No Tri's or hand function.

        Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

        Teddy Roosevelt

        Comment


        • #5
          A lidocaine patch might be effective in treating this pain. Have you tried that or discussed it with your provider??

          (KLD)
          The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

          Comment


          • #6
            My VA nurse is due for her monthly visit and this is my first question. Never spoke with anyone about this as I thought it was something very strange and only affected me. Somehow the vasoline worked most of the time when I was instituitionalized and since the LPN's who helped dress me only very ocasionally said nothing, I really knew nothing. I do take gabapentin to help with hand pain and numbness but really dosen't do much, should probably stop taking it.

            Unless something went very bad, my only contacts were the PCA's and the LPN's who passed the pills. The RN's were managers and except for one I knew personally who would answer the bells, never did or had time to do personal care. Much to busy.
            Last edited by forestranger52; 04-01-2013, 03:22 PM.
            C 5/6 Comp.
            No Tri's or hand function.

            Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

            Teddy Roosevelt

            Comment


            • #7
              Originally posted by SCI-Nurse View Post
              A lidocaine patch might be effective in treating this pain. Have you tried that or discussed it with your provider??

              (KLD)
              Today my nurse called and the pharmacy refused to formulate a lidocaine patch for me because I had not tried capsaicin cream to relieve the burning neuropathic pain that I have in my butt.

              I tried capsaicin cream on my painfull knees in 1999 before I had 3 surgeries, 1 on right, 2 on left to remove and reshape the severely damaged cartilage. It really hurt and did in fact burn my skin before I was able to remove the cream as quickly as possble.

              I am extremely reluctant to put something that burned my skin so bad before on the tender skin between my buttocks. I have nerve pain in my right hand and if I need to I will try it there. Has anyone tried this cream on their pain before? If it worked may be another option to try as it's cheap and easily available but be very carefull and try a very small amount first.

              Still, news to me.
              Last edited by forestranger52; 04-04-2013, 03:26 PM.
              C 5/6 Comp.
              No Tri's or hand function.

              Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

              Teddy Roosevelt

              Comment


              • #8
                My Dad has burning butt too. Neurontin helps him, but he had to increase it to a high enough dose. Now he is on 800mg 3 times a day (he used to be on 800mg 4 times a day). Sometimes he just has to get off the butt... Ice packs help a little, but be careful not to "burn" yourself with the ice.

                Who prescribes the Neurontin? What dose of Neurontin are you on? Probably it is too low and you need to increase it.

                Caspascin cream might help..... you could try it again carefully. Ask for very specific instruction on how to apply it... don't use too much... wash your hands immediately after using it. It is true that in can cause a burning sensation that is supposed to decrease the more you use it. If you can't tolerate it, then you can't tolerate it and ask for something else.

                So if I were you, I would ask about increasing the Neurontin and meanwhile you can try the caspacin carefully to see if it helps more.

                Comment


                • #9
                  I think lying down as well as opiates and diazepam is the way to go if the burning butt gets out of hand. Are you doing digital removal of waste? - if so , fissures are common. Get smaller fingers ;-)

                  Or if you are at wits end, get a colostomy and be done with it. I know that sounds radical but I would keep that option on the table.
                  And consider switching to Lyrica. I tried gabapentin (neurontin) twice to see if I could get off Lyrica and save 100 dollars a month. I had to go back to Lyrica because it worked so much better for me. I could have had a lot of lattes at SB with that hundie but wasn't meant to be.

                  Comment


                  • #10
                    Originally posted by forestranger52 View Post
                    It does help to lay on my side. Sometimes I almost pass out when turned because the pain relief allows me to sleep after a long difficult night of pain.
                    Do you sleep on your back or your side?

                    I've had "the burns" for years... I routinely sleep on my side. If I sleep on my back I am in severe pain upon waking and throughout the day.

                    As Arndog mentions I use diazepam as needed to take a bit of the edge off.

                    Comment


                    • #11
                      burning butt

                      I have also had the "sitting on the burner" feeling since i was work up from surgery, on really bad days it goes down the backs of my legs and my feet. has been almost 9 years. For a while zanax and norco helped. Not so much anymore. I am now going to Stanford University, have the Chief head of Medicine. He put me on 150mg Oxcarbazepine and by the 29th i will be at 4 pills morning, 4 pills night. Has ordered me naltraxone. I know he's weaning me off the Norco. I was on Dilaudid for a year, stopped the norco, dilaudid did nothing, so back to norco, now will be coming back off. He also wants me to get Delsym, (cough syrup). Will get that today. Supposed to help??
                      I have Cauda Equina Syndrome because my injury is L-2, and my conus was crushed. Have harrington rods. I have tried so many drugs over the years i have forgotten what they are. So....if any of this works with the Stanford Doctor, i'll pass it along. I have been there twice. Last pain Dr instantly wanted to put in a spinal cord stimultor. I read Care cure and it didnt seem like the answer. He was not happy when i refused it. This new Dr said i'm not a candidate for it. Thank God i didn't get the 40,000 dollar surgery! Ice packs do help some, sometimes. Depends on how bad it is. I empathize with you!

                      Comment


                      • #12
                        Originally posted by ChesBay View Post
                        Do you sleep on your back or your side?

                        I've had "the burns" for years... I routinely sleep on my side. If I sleep on my back I am in severe pain upon waking and throughout the day.

                        As Arndog mentions I use diazepam as needed to take a bit of the edge off.
                        I am by myself in bed from 10pm until 8 or 9am in morning and sleep on back on Low air loss mattress.

                        I am going to ask to try the diazepam and Lyrica to try and releive it also. Would like to try what KLD said first and then one or both. Burning not in anus. Actually feels like between buttocks from top of crack to bottom but now includes right ischial.
                        Last edited by forestranger52; 04-06-2013, 05:51 PM.
                        C 5/6 Comp.
                        No Tri's or hand function.

                        Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

                        Teddy Roosevelt

                        Comment


                        • #13
                          C-cream or patches - Yikes! Last thing you probably need is something that gives a heat feeling. That's one thing the capsaicin does. While a sore muscle or an arthritic hand may benefit, it certainly did not help my neuropathic pain, not at all.

                          Few places could something called 'Burning Butt' be seriously deliberated

                          Comment


                          • #14
                            Have you ever tried an OTC product called Calmoseptine I'm icon and i use it frequently and you don't smell like a Baby or anything near it, your ROHO or varilite don't get gopped up, and your but doesn't bother you-Medicine Shoppe's usually have it Walgreen's in most stores have it and Walgreen's on line definitely has it and its about 7 bucks for a nice big fat tube of it--if that does not work i would say get a real tight pair of underwear and a script from your Doctor for EMLA cream-yes the tighty whitys are needed because EMLA is an occlusive cream the longer its on and covered up the longer it worksite a mix of 2.5% Lidocaine and 2.5% Prilocaine put on a latex glove smear all over bothersome rear portion remove glove pull up tighty whitys and leave in place,the tighty whitys keep it from spreading and the longer it stays in place the better because it numbs up the area, and works much better than just plain lidocaine jelly or ointment 2.5% that prilocaine makes a huge difference.

                            Peace

                            Ernst

                            I am not a Doctor i was a Nurse,Paramedic/Firefighter and now consumer, please see a Doctor for a qualified opinion!!

                            Comment


                            • #15
                              I have used calmoseptine since the beginning and when coverage is right, helps a lot.

                              Very messy stuff also and only baby oil takes it off.
                              C 5/6 Comp.
                              No Tri's or hand function.

                              Far better it is to try mighty things, to win glorious triumphs, even though checkered by failure. Than to take rank with those poor spirits who neither enjoy much or suffer much, because they live in the grey twilight that knows neither victory or defeat.

                              Teddy Roosevelt

                              Comment

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