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    #46
    Originally posted by avictoria View Post
    Diazepam in SCI is typically rx'd for spasticity and pain/spasticity. You could discuss with your doc trying diazepam for spasms/pain rather than klonopin, or perhaps for sleep.
    Better yet check with your PM doc about using the klonopin-it is legitimately prescribed and maybe, maybe the klonopin + new fent protocol will work. But call his office and check first to be safe.



    Don't for Chrissake ever take anything not rx'd for you 1) your PM doc will fire you ASAP because he doesn't want to get sued, harassed by the DEA if when/you 2) OD.


    Work with your PM doc to get the dose of fentanyl to where you get some relief and see how that works. I kinda think your pain relief from the temazepam was because you had a big dose of short-acting benzo in your system and were so baked nothing bothered you. I don't think any doc is going to rx potent, short-acting benzo's to treat pain. You could tell your doc that you've heard that valium is used for pain and spasticity and see if he'll consider it. Right now though he's gonna concentrate on getting your fent dosage and whatever you use for breakthrough pain optimized.


    You cannot just start/stop these meds. If your system was used to klonopin and you completely quit taking it you may have been in some degree of benzo withdrawal, which is very dangerous. Baclofen withdrawals are also deadly. Opiate withdrawals are not typically deadly for a healthy person. All those other meds have 'discontinuation syndromes' too.

    If a low-dose long acting benzo helps with pain there's nothing wrong with having them in your pain management program. Benzos have a bad rep right now and baclofen is preferred despite almost identical risks. Schoolkids are learning that they can get a buzz from baclofen too so there will be a tragedy eventually.
    I agree with everything you've said, EXCEPT I was not baked. I have a super high tolerance to meds, regardless if I've taken it before or not. My grandmother was the same way.

    The PM doc knows I am on Klonopin - I gave him my complete med list the first visit and we went through them again yesterday on my visit.

    If necessary, would I ask him about switching out klonopin for valium? I know that the urologist gave me 10mg valium for taking prior to my cystoscopy to relax me but it didn't have an effect. I guess it would just take a higher dose since I have this crazy tolerance to everything. I've been this way since my teen years!

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      #47
      Clonazepam/klonopin....is a benzo and is an anti anxiety and anti seizure medication also prescribed for neuropathic pain.

      I've been on it for over 10 years for panic and anxiety. I monitor my own interactions before I take anything, even if my doctor does prescribe it. Sometimes they screw up.

      check this link.....you may be surprised by what you don't know or aren't told. You can type in every single medication you take even otc just to check for your own safety what interacts.

      http://www.drugs.com/drug_interactions.php

      I know you from appz and have seen you post several threads there about this too. A lot of us care about you. I have severe burning pain too...I'm resorting to topical lidocaine and lidocaine patches. Wearing compression garments on really hypersensitive spots helps, a hot bath can help. I can't even take a shower because it overloads my sensory nerves. The burning sucks...I detest the summer because of it. I'm starting my third year and my goal is to try to cut meds down or out. EFT can help for a few hours too, I've tried it.
      CCS/Walker C6...it's a long story

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        #48
        If you're clear to take the klonopin, give yourself a few days at the same dose of fent and try taking the klonopin a day after a new patch and see if you feel better on those days-keep a pain log and let your doc know.

        Keep all your other medications at the exact same dose at the same time each day.

        If you were taking klonopin for years, even PRN, you probably have some benzo dependence.

        All of the medications you're taking can have wicked withdrawal syndromes. Be careful with them, gradually cut out what ever isn't working under your doc's supervision.

        Good luck and be safe!
        Last edited by avictoria; 25 Apr 2013, 12:19 AM. Reason: genetics info

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          #49
          Some people have the genetics for different liver metabolism of many drugs-you might ask your PM doc to look into that. There truly are non-opioid tolerant people that require large doses of opiates to get the same pain relief as a 'normal person'. Pharmacogenetics is new but recognized as important aspect of medicine.

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            #50
            Originally posted by avictoria View Post
            Some people have the genetics for different liver metabolism of many drugs-you might ask your PM doc to look into that. There truly are non-opioid tolerant people that require large doses of opiates to get the same pain relief as a 'normal person'. Pharmacogenetics is new but recognized as important aspect of medicine.
            What should I ask for? Is it something I ask my GP for? My PM Doc has terrible bedside manner and sticks to Pain stuff only. I told him at both visits about having a high tolerance for ALL medications, and my Mom was with me and told him that her Mom had the same issue.

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              #51
              I admit I didn't read this thread due to title. I have found absolutely no solution to central pain.

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                #52
                Originally posted by lavenderthistle View Post
                Clonazepam/klonopin....is a benzo and is an anti anxiety and anti seizure medication also prescribed for neuropathic pain.

                I've been on it for over 10 years for panic and anxiety. I monitor my own interactions before I take anything, even if my doctor does prescribe it. Sometimes they screw up.

                check this link.....you may be surprised by what you don't know or aren't told. You can type in every single medication you take even otc just to check for your own safety what interacts.

                http://www.drugs.com/drug_interactions.php

                I know you from appz and have seen you post several threads there about this too. A lot of us care about you. I have severe burning pain too...I'm resorting to topical lidocaine and lidocaine patches. Wearing compression garments on really hypersensitive spots helps, a hot bath can help. I can't even take a shower because it overloads my sensory nerves. The burning sucks...I detest the summer because of it. I'm starting my third year and my goal is to try to cut meds down or out. EFT can help for a few hours too, I've tried it.
                I know you, LT! The lidoderm patches never did anything for me when I had somatic/mechanical pain, but haven't tried them for burning, but I'd have to have 50 patches to cover all the burning spots.

                What is EFT?

                Comment


                  #53
                  Electronic Funds Transfer....I am secretly a Nigerian princess....

                  Seriously....it's the emotional freedom technique.

                  http://eft.mercola.com/

                  Looks absolutely insane, but if you substitute words like pain or burning it does help in the short term.

                  Not a lot of people have the burning. I can only describe it as blistered sunburn, with sand stuck to it, standing under a hot shower trying to get the sand off.

                  I am trying a lidocaine gel all over (otc prep) it works for a short time. I have some meds (they don't help) and the lidoderm patches I plan to cut and place in the worst spots.

                  I get extreme hypersensitivity I have success controlling with compression. Sleeves on my arms, under armor works well, so do other layers protecting the skin from rubs.

                  I find the burning is mind over matter....in the summer I tend to lose my mind a bit. The more you can do to just focus away from the pain the better. It may sound stupid, but it can work.

                  I found that pot, while it took away the muscoskeletal pain, made my nerve burning worse.

                  Can you take a hot bath? If so try it. My magic temp is 106.6....i use an oral digital thermometer.

                  Typed this on my phone...plz ignore spelling and syntax errors.
                  CCS/Walker C6...it's a long story

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                    #54
                    CYP450 Gene Testing/ Pain and Many Other Medications

                    Here's a pretty good article on the test to determine how well one metabolizes a variety of medications. http://education.questdiagnostics.com/insights/36

                    Whether or not this is standard practice for PM docs I have no idea. Bear in mind that this article was written by a doc that works for the company that does the test.

                    Regardless, the test is FDA-approved. You could always ask your PM doc about this- print out the article and see if he/she thinks it is worthwhile.

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                      #55
                      Originally posted by jbridges9 View Post

                      If necessary, would I ask him about switching out klonopin for valium? I know that the urologist gave me 10mg valium for taking prior to my cystoscopy to relax me but it didn't have an effect. I guess it would just take a higher dose since I have this crazy tolerance to everything. I've been this way since my teen years!
                      Many urologists do this so they don't get kicked from a spastic leg during the procedure. It's fast acting so it works on most SCIs.

                      You've been on drugs like this since your teens?
                      Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                      Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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