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Suffering Mightily

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    Suffering Mightily


    Baclofen pump has helped with spasms spasticity but shocking amount of breakthrough, can do bolus but am at the max tolerable before the bolus so know i'll get nasty side effects.

    CP is off the charts the past 10 days.

    For Chrismas I got a new weird manifestation. Used to the horrific burning, well at least i know it for what it is. Now i feel like I peed myself, that warm wet feeling down your legs.

    CP the gift that keeps on giving.

    I'm trying so hard. WIll try for a catch up soon, can't manage right now.


    I wish you all peace and some respite.


    The Ketamine Kitty

    All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

    Next time I die make sure I'm gone,
    don't leave 'em nothing to work on JT

    And I ain't nothin but a dream JM

    What do you take for pain now? Sorry you're suffering.
    C4/5 incomplete, 17 years since injury

    "The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same.” - Carlos Castaneda

    "We live not alone but chained to a creature of a different kingdom: our body." - Marcel Proust


      Sorry Ket - my advice would be to take the meds and accept the side effects. Try to like yourself ( we like you) Maybe cook or take some more pictures and post 'em.

      I wish I had better advice. Just solace...


        If there's one day of the year where I wish you could have respite ... it would be St Patty's Day .... just joking!

        I hope you can enjoy some time with family today and you're granted a bit of respite from the grips of hell.
        Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

        T-11 Flaccid Paraplegic due to TM July 1985 @ age 12


          (HUGS Bollefen) I may have to write a paper of my musings for you to read when you're in pain and need a laugh.


            it's the breakthrough pain that is always the killer. hope today is slightly better :/
            "Smells like death in a bucket of chicken!"


              I agree.....the breakthrough pain is hell. It takes the breakthrough meds just to maintain. Then when you get the breakthrough have nothing!

              We left for the day yesterday, and now I pay for it! Totally worn out and pain in an uproar! Oh, and it is raining here too! Always good for more burning!


                It made me sad to see this post, especially after the more positive when you were able to write recently. I know our hopes and wishes to do anything to alleviate your pain, but I hope that they will do something for your soul and spirit-just knowing we are thinking of you, and understand.


                  Tis the season. Hang on and hang in.