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  • new here seeking advice pain will not go away

    Hi My name is Melinda, but everyone calls me Mel. I have scoliosis in T-3 and T-4 with a 45 degree twist. Recently found out that I also have cervical stenosis. Have tried PT, tens unit, neurotin, flexeril. Am now on Lyrica, baklofen and tramadol, but they do not seem to be helping, had 3 rounds of trigger point injections that failed, Monday I went in for a right cervical medial branch block. OMG I thought I was gonna pass out on the table. 4 injections but 3 holes injections in c-2,c-3.c-4 and c-5. The next day I experience the worst pain ever in my mid spine area and into my right rib cage area, this seems to get worse at night. Also I seem to have pressure on the right side of my body from my head down through my neck into my right shoulder under the shoulder blade and wrapping around the right rib cage, can someone explain or suggest something for me to suggest to my pain management docs? Or even offer a suggestion of what to do. Still in pain so I think that procedure failed also
    Everyday it's something new, be honest with me and I'll be honest with you

  • #2
    I will do that tomorrow, was kinda waiting to see if the situation improves but so far it has not I have used ultram 100 mg every 4 hours and its like taking candy does nothing for me. I just don't understand why the pain management docs act like they are scared to prescribe something that will work
    Everyday it's something new, be honest with me and I'll be honest with you

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    • #3
      and I do NOT want to undergo another procedure like the last one and the doc is insisting that the rib cage pain is from posture, I am making a concious effort to sit as upright as possible, but this makes my neck hurt also
      Last edited by wrightmsw; 12-13-2012, 06:08 PM. Reason: to add more info
      Everyday it's something new, be honest with me and I'll be honest with you

      Comment


      • #4
        have you talked to anyone about correcting the curvature. that is the cause of your pain so why hasnt this bee addressed?
        "Smells like death in a bucket of chicken!"
        http://www.elportavoz.com/

        Comment


        • #5
          Originally posted by wrightmsw View Post
          I will do that tomorrow, was kinda waiting to see if the situation improves but so far it has not I have used ultram 100 mg every 4 hours and its like taking candy does nothing for me.
          Do not exceed 400mg of ultram a day.
          Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

          I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

          Comment


          • #6
            Originally posted by crypticgimp View Post
            have you talked to anyone about correcting the curvature. that is the cause of your pain so why hasnt this bee addressed?
            it was brought up and I declined (I do not have any insurance have applied for medicaid but u know how long that takes. we rely on my husbands disability check each month) would like to control the pain through meds.....better living through chemistry (so I have heard)
            Everyday it's something new, be honest with me and I'll be honest with you

            Comment


            • #7
              Originally posted by ~Lin View Post
              Do not exceed 400mg of ultram a day.
              Thanks for that info I don't need anyother complications
              Everyday it's something new, be honest with me and I'll be honest with you

              Comment


              • #8
                Originally posted by wrightmsw View Post
                it was brought up and I declined (I do not have any insurance have applied for medicaid but u know how long that takes. we rely on my husbands disability check each month) would like to control the pain through meds.....better living through chemistry (so I have heard)
                To be perfectly honest, that can make you sound like a drug seeker/addict.

                You have to be willing to try everything and anything. And something besides heavy medications may work and be the answer! But there are reasons why Drs go through certain treatments and try specific medications first. Your best bet is going to be seeing an experienced pain specialist at a pain clinic. They will have the most tools to treat your pain. Things like tens machine, PT and OT (even if you've tried it before it can be different from ones who specialize in pain management), trigger point or joint facet injections, etc. Even if you end up on narcotics your treatment is going to be much slower than the medicaid approval. Once non narcotic medications are exhausted you would start on a low dose of an opiod. Then it can take months titrating up and switching around medications to find the right ones. Or longer, there are many people here that have spent years trying to get their pain under control.

                Start keeping a pain journal if you don't already, so you can show your pain Dr whats working and whats not, what time of day you're in the most pain, what exacerbates your pain, etc. Call the pain Drs office about whats going on right now, see if they can squeeze you in earlier than your next appt (though that usually doesn't happen, pain Drs are usually so booked up you have to wait that month between appts.)

                Have you tried any alternative type methods? accupressure or accupuncture? Meditating? Do you have a psychotherapist?

                Keep tabs on the medicaid process, call them daily if you have to. Do you have a caseworker? Here in Indiana they recently went to a new system where no one has caseworkers, everyone calls the same 1800 number and gets whoever answers the phone. Keep track of the names of anyone you talk to at medicaid and what they said to you. Look into things like surgery that are going to address the root of the problem, thats going to help you much more in the long run if treatments are available.
                Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

                Comment


                • #9
                  Get a Good Pain Management Doctor ,not a pill mill.....and ,sorry but.gotta learn to grin n bare it.........drugs will never put you to where you want to be

                  Comment


                  • #10
                    Originally posted by wrightmsw View Post
                    it was brought up and I declined (I do not have any insurance have applied for medicaid but u know how long that takes. we rely on my husbands disability check each month) would like to control the pain through meds.....better living through chemistry (so I have heard)
                    so.. how are you paying for all these meds and injections?
                    your pain is a result of your scoliosis. once that is corrected, then your pain will decrease. but you risk damage by leaving it uncorrected.
                    "Smells like death in a bucket of chicken!"
                    http://www.elportavoz.com/

                    Comment


                    • #11
                      Originally posted by ~Lin View Post
                      To be perfectly honest, that can make you sound like a drug seeker/addict.

                      You have to be willing to try everything and anything. And something besides heavy medications may work and be the answer! But there are reasons why Drs go through certain treatments and try specific medications first. Your best bet is going to be seeing an experienced pain specialist at a pain clinic. They will have the most tools to treat your pain. Things like tens machine, PT and OT (even if you've tried it before it can be different from ones who specialize in pain management), trigger point or joint facet injections, etc. Even if you end up on narcotics your treatment is going to be much slower than the medicaid approval. Once non narcotic medications are exhausted you would start on a low dose of an opiod. Then it can take months titrating up and switching around medications to find the right ones. Or longer, there are many people here that have spent years trying to get their pain under control.

                      Start keeping a pain journal if you don't already, so you can show your pain Dr whats working and whats not, what time of day you're in the most pain, what exacerbates your pain, etc. Call the pain Drs office about whats going on right now, see if they can squeeze you in earlier than your next appt (though that usually doesn't happen, pain Drs are usually so booked up you have to wait that month between appts.)

                      Have you tried any alternative type methods? accupressure or accupuncture? Meditating? Do you have a psychotherapist?

                      Keep tabs on the medicaid process, call them daily if you have to. Do you have a caseworker? Here in Indiana they recently went to a new system where no one has caseworkers, everyone calls the same 1800 number and gets whoever answers the phone. Keep track of the names of anyone you talk to at medicaid and what they said to you. Look into things like surgery that are going to address the root of the problem, thats going to help you much more in the long run if treatments are available.
                      I have a spine doc and a pain management doc, accupressure felt good while it was being done, but later in the day the pain intensified, same with the tens unit they used in PT, 3 rounds of trigger point injections, Monday I had a right cervical medial branch block, it was excruiating and still in pain. have a follow up next friday tried to call them today and no return call meditate everyday
                      Everyday it's something new, be honest with me and I'll be honest with you

                      Comment


                      • #12
                        Originally posted by crypticgimp View Post
                        so.. how are you paying for all these meds and injections?
                        your pain is a result of your scoliosis. once that is corrected, then your pain will decrease. but you risk damage by leaving it uncorrected.
                        meds i am getting through phizer connection to care, thank god the hospital gives a discount for self pay non insured low income people, the baklofen and tramadol isn't expensive
                        Everyday it's something new, be honest with me and I'll be honest with you

                        Comment


                        • #13
                          Originally posted by tdirt View Post
                          Get a Good Pain Management Doctor ,not a pill mill.....and ,sorry but.gotta learn to grin n bare it.........drugs will never put you to where you want to be
                          got a spine doctor and pain management doc and yep smile through the pain
                          Everyday it's something new, be honest with me and I'll be honest with you

                          Comment


                          • #14
                            Originally posted by wrightmsw View Post
                            meds i am getting through phizer connection to care, thank god the hospital gives a discount for self pay non insured low income people, the baklofen and tramadol isn't expensive
                            So...again, why not correct the scoliosis to alleviate or at least make the pain better?

                            I realize Medicaid is an issue but why else decline? At least plan on getting the curvature fixed.

                            Drugs should only be used when everything else has not worked. For most of us, drugs don't even relieve the pain.

                            Never heard of "better living through chemistry". Sounds like you just want narcotics.
                            T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                            My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

                            Comment


                            • #15
                              Originally posted by darkeyed_daisy View Post
                              So...again, why not correct the scoliosis to alleviate or at least make the pain better?

                              I realize Medicaid is an issue but why else decline? At least plan on getting the curvature fixed.

                              Drugs should only be used when everything else has not worked. For most of us, drugs don't even relieve the pain.

                              Never heard of "better living through chemistry". Sounds like you just want narcotics.
                              I think the main reason for declining is I am freaking scared!!! I have been dealing with this pain for at least 15, with it getting progressivly worse, then finally got to the point that I deceided to go to the doc almost 2 years ago. Started treating myself with 800 mg of Ibuprofen twice a day and tried everything over the counter. the spine Doc started me on Neurotin and Flexeril and that didn't work, so we switched to Lyrica and Baklofen and Ultram, that isn't working so started with a pain management doc who doubled the ultram and baklofen doses and we did 3 sessions of trigger point injections, then the procedure last monday but that didn't work either. I am sorry if I give u the impression that I am looking for drugs, that was not my intention and I never want to come off sounding like that. and the better living through chemistry quote came from an old boyfriend of mine who had 2 hips replaced, he used to often say that b4 the hips where replaced. My wish (if wishes came true) would be that EVERYONE would not have to suffer pain of any type ever again
                              Everyday it's something new, be honest with me and I'll be honest with you

                              Comment

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