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I Need Suggestions...My Pain is Severe Right Now!!!

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    I Need Suggestions...My Pain is Severe Right Now!!!

    What do others with chronic neurogenic pain do/take to keep their pain tolerable? What has worked/not worked? I've heard lithium works.

    I need to find a good doc who will prescribe something that works...because right now my pain is severe about 15/10. Daily, constant pain is making me miserable. I'm tired of just trying to get used to the pain & go through several days of strong neurogenic, tingling, burning, stabbing pain till I have several comparatively good days.
    Right now I'm on Effexor & Gabapptin....I was on Lyrica & Neurontin but stopped them b/c they didn't help.

    Thanks...
    C4/5 incomplete, 17 years since injury

    "The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same.” - Carlos Castaneda

    "We live not alone but chained to a creature of a different kingdom: our body." - Marcel Proust

    #2
    Gabapentin is Neurontin.
    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

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      #3
      yea gabapentin is neurontin so no idea why you'd be back on a drug that didnt work for me. i was given effexor and threw the script in the trash. really hope that you find someone to help you.
      "Smells like death in a bucket of chicken!"
      http://www.elportavoz.com/

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        #4
        I do a combination of Lortab and Valium. Seems to work wonders for me.
        www.adventuresofcolinandheather.blogspot.com !

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          #5
          I'm using lyrica 50mg 3x a day, and 50mg tramadol 2 to 3x a day. The combination works better than either alone.

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            #6
            What is Valium like to take? Lonecoaster - Do you take Tramadol as needed? One more thing...for these prescriptions; did you go to a pain clinic/center?

            My pain is still severe...I slept about 2 hrs last night.
            C4/5 incomplete, 17 years since injury

            "The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same.” - Carlos Castaneda

            "We live not alone but chained to a creature of a different kingdom: our body." - Marcel Proust

            Comment


              #7
              Originally posted by KyleP2112 View Post
              What is Valium like to take?
              It's in the same family as Xanax. It's an acute anti-anxiety medication that can perhaps help your pain if only because it works on the Central Nervous System.

              Comment


                #8
                Kyle, I'm pretty new to all this but what I've found that if I take tramadol when things get more intense it takes about an hour to work. I had this crazy shocking thing going. At first 2 trams and an hour sometimes knocked out the shocks, I say sometimes because it didn't always work. When I take the meds in combonation my shocks become way less frequent. But my problem besides the shocks and normal neuropathy(if there is such a thing), is fatigue. I'm incomplete and my legs get hot and tired just after noon, 3pm at best. The tramadol gives them more life by kinda making them numb. Sounds weird but I can get more time out of my legs with the tramadol. I just go to the rehab doctor (physiatrist)haha not even close, but they have tried almost everything in their bag of tricks. They did reccomend some kind of spine implant, but from reading posts here, I think I'll hold off on that option for now.
                Good Luck Kyle, I hope you can find the right combo.

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                  #9
                  Hi Ashleigh,

                  I didn't know we lived near each other...it is a small world after all. I haven't tried the Albany Med Pain Mngmt Center...I should. I get frustrated with so many docs, like my physiatrist who is also at Albany Med & follows my injury. He's good for most things but not good for pain management...as he's ultra-conservative & suggested a while back that I should "get used to the pain"...the result is I'm still in lots of pain...

                  Are Drs. Arnoff & Wymer good?
                  C4/5 incomplete, 17 years since injury

                  "The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same.” - Carlos Castaneda

                  "We live not alone but chained to a creature of a different kingdom: our body." - Marcel Proust

                  Comment


                    #10
                    Just get used to the pain...I know he's just looking out for himself, his family, etc. But don't you want to request he pinch vise grips to his own toes?
                    Blog:
                    Does This Wheelchair Make My Ass Look Fat?

                    Comment


                      #11
                      Originally posted by betheny View Post
                      Just get used to the pain...I know he's just looking out for himself, his family, etc. But don't you want to request he pinch vise grips to his own toes?
                      Are you getting soft in your old age? I was thinking "balls" more than toes. Maybe I am just getting more evil in my old age

                      Kyle for anything narcotic, most doctors will insist on a pain management clinic.

                      I got the same relief as lonecoaster with his tramadol except I have worked up to 200mg with the extended relief. My pain doctor said that 200mg is as high as I can go with tramadol/ultram. If you research they do make a 300mg version but I didn't question her as I do take Paxil (anxiety/anti depressant) with it. I had good results with Cymbalta for the burning but after 10 years it stopped working. Several people have had success her with Cymbalta/tramadol combination and some people have gotten nothing from it. You have to try different combinations to see what will work for you.
                      T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                      My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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                        #12
                        400 is the max daily dose of ultram. I stayed at 300 because my liver enzymes went up with 400. I took ultram for 10 years, and during many of those years I took it with antidepressants and never ran into any issues. Some drs seem overly concerned with serotonin syndrome.
                        Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                        I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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                          #13
                          Originally posted by Colin83 View Post
                          I do a combination of Lortab and Valium. Seems to work wonders for me.
                          Yeah I second the opiod/valium mix. I am on methadone and valium and it has really got me to a place where I am functioning well.

                          Comment


                            #14
                            Bethany, you're right...just "getting used to the pain" doesn't work as if it's even possible. In fact, as I know, trying it leaves you miserable. Hi Ashleigh...thanks for the suggestions on Albany Med pain docs. My physiatrist is Dr. Dubin...I like him but he's not good for managing pain.
                            C4/5 incomplete, 17 years since injury

                            "The trick is in what one emphasizes. We either make ourselves miserable, or we make ourselves happy. The amount of work is the same.” - Carlos Castaneda

                            "We live not alone but chained to a creature of a different kingdom: our body." - Marcel Proust

                            Comment


                              #15
                              Drs who tell patients to get used to pain should be put on trial for torture
                              "Smells like death in a bucket of chicken!"
                              http://www.elportavoz.com/

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