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    Im cracking.... :( :(

    I honestly think that the people in the medical field just want me to live in pain. Its almost like they want to see how much of this I can take before I crack.... Well, let me just say this..... IM CRACKING!!

    Becky
    T8-9 according to latest scoring.......
    since 1/3/04

    I am the best at being me. No matter how that happens to be!!

    #2
    What about the pain clinic, was your GP not able to get you an appointment with a new doc there?
    MS with cervical and thoracic cord lesions

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      #3
      I havent heard back yet. I was in the ER all afternoon evening with some other issue. I had asked the surgeon for other possibilities too but I wont be able to call that office till Monday. And that still isnt an appointment

      Becky
      T8-9 according to latest scoring.......
      since 1/3/04

      I am the best at being me. No matter how that happens to be!!

      Comment


        #4
        Sounds like a lot of runaround and hurry up and wait! Which is sadly becoming the norm, these days. About all you can do is keep being the squeaky wheel, calling them back when they don't call you.
        MS with cervical and thoracic cord lesions

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          #5
          Becky, are you on any anti-depressants? I ask because while it may not make your pain go away per se, the changes in your brain chemistry and mood might trick you into it being more tolerable than it is.

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            #6
            Originally posted by Le Type Fran├žais View Post
            Becky, are you on any anti-depressants? I ask because while it may not make your pain go away per se, the changes in your brain chemistry and mood might trick you into it being more tolerable than it is.

            Actually, what is great is that there are some anti-depressants that are also good nerve pain medicines.... especially cymbalta and effexor. Hit two birds with one stone.

            Has your physiatrist at RIC ever been helpful with managing your pain?

            Just keep calling the clinic every day to check for cancellations. That's what we do... Stinks though.

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              #7
              yes, Im on effexor and amitriptyline

              Becky
              T8-9 according to latest scoring.......
              since 1/3/04

              I am the best at being me. No matter how that happens to be!!

              Comment


                #8
                I'm so sorry. I feel the same way currently as I'm between pain drs. Mine disappeared and then everywhere declined me as a patient saying my case was too complex. So meanwhile I'm on less meds and I don't know how much longer I can tolerate the pain. Hang in there, and I also hope you get somewhere with treating the hernia.
                Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

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                  #9
                  Originally posted by bcsimpsons View Post
                  yes, Im on effexor and amitriptyline

                  Becky
                  Can you increase the dose of the effexor, if the side effects are tolerable? Often docs stop increasing too soon.

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                    #10
                    I had been on a higher dose but the side effects were not fun either... I chose to lower the dose to a tolerable side effect dose.

                    Becky
                    T8-9 according to latest scoring.......
                    since 1/3/04

                    I am the best at being me. No matter how that happens to be!!

                    Comment


                      #11
                      So a T-11 injury your chronic pain is basically always just your whole lower body like yer bumm and legs and feet? I added xanex, in context to earlier post and that somehow in combo w/ othr meds helps meld together a relief conduit even thou its 4 anxiety it seems to battle the flaring nerves.. Maybe that will aid. Poor Beck sounds like yer the roughest kid on board. I'm sorry.,
                      I am not your rolling wheels
                      I am the highway
                      I am not your carpet ride
                      I am the sky
                      I am not your blowing wind
                      I am the lightning
                      I am not your autumn moon
                      I am the night, the night..

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                        #12
                        response

                        This is a little late on this post. A pain clinic is your best place to go. I have majore depprsion. The only help I recieve is the combination of deppresion and pain medication.
                        Feelin good is good enough!

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                          #13
                          I use Lyrica Various dosages to keep my pain tolerable
                          Sometimes it really helps
                          I hope you feel better
                          GL

                          Comment


                            #14
                            My meds..Baclofen, Tegretol, Nueronton, Gabapentin, Fentanyl (75 mcg) and Percocet. Might sound like much but I gave up on that trying not to take so much approach. With this crap whatever the hell it takes take it. This combo works pretty well for fire and pain.

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                              #15
                              Billy, I have tried most of those separately and in combo but got no relief....

                              Becky
                              T8-9 according to latest scoring.......
                              since 1/3/04

                              I am the best at being me. No matter how that happens to be!!

                              Comment

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