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    All I can do anymore is cry :( :( :(....

    This pain is just way to overwhelming!!! I dont even know what to say anymore about any of this. I feel like Im going to pass out almost every waking moment from this pain but I have to just put as much of a smile on my face as I can . I just honestly dont know if I can anymore. My GP gave me a referral to the pain clinic again at the local hospital. When I went to make an appointment with a different doctor in the practice, the lady at the desk wouldnt give me an appointment with that doctor. Instead, she told me I had to see the doctor I had seen previously. I told her I stopped coming to see this doctor because he did not help me in the slightest and made me feel like my pain was a joke and waste of his time. I have been in bed trying to get comfortable for almost 2 hours but the only thing I have managed to do is cry for those 2 hours because I am in such agony, I feel so alone, so desperate, and just sick- and cold from feeling so sick. I just want/need ALL of this to stop!! I would gladly take death over ANY of this in a heart beat!!!

    Becky
    T8-9 according to latest scoring.......
    since 1/3/04

    I am the best at being me. No matter how that happens to be!!

    #2
    After another 2 hours, Im no where closer to sleep or, more importantly, being without pain . Please kill me !!!!

    Becky
    T8-9 according to latest scoring.......
    since 1/3/04

    I am the best at being me. No matter how that happens to be!!

    Comment


      #3
      Praying you find comfort, peace and hope.!!

      Comment


        #4
        Originally posted by bcsimpsons View Post
        This pain is just way to overwhelming!!! I dont even know what to say anymore about any of this. I feel like Im going to pass out almost every waking moment from this pain but I have to just put as much of a smile on my face as I can . I just honestly dont know if I can anymore. My GP gave me a referral to the pain clinic again at the local hospital. When I went to make an appointment with a different doctor in the practice, the lady at the desk wouldnt give me an appointment with that doctor. Instead, she told me I had to see the doctor I had seen previously. I told her I stopped coming to see this doctor because he did not help me in the slightest and made me feel like my pain was a joke and waste of his time. I have been in bed trying to get comfortable for almost 2 hours but the only thing I have managed to do is cry for those 2 hours because I am in such agony, I feel so alone, so desperate, and just sick- and cold from feeling so sick. I just want/need ALL of this to stop!! I would gladly take death over ANY of this in a heart beat!!!
        Becky
        Such a frustrating situation for you! I am hoping you will pursue your desire to see another physician - if it's at the same pain clinic, suggest just stating "we didn't click and I need another doctor". They are probably protective of their staff and didn't accept your view.
        If they won't proceed, please consider using the same approach, bypassing any person-centered criticism, and ask your GP for another referral - until you get someone you can work with. It seems that somewhere with a "team" approach may help you. Hope you stay with CC too.

        Comment


          #5
          I am so sorry, Becky.
          Two thoughts:
          1 Would your GP be willing to speak to this practice on your behalf? If the GP asks for you to see someone in particular, it will happen. Office staff are often obstructive to patients, but if an MD says something, they kowtow.
          2 Is there another pain clinic in your area?
          with hugs and sincere best wishes for some relief,
          - Richard

          Comment


            #6
            I think Richard is right, Becky...explain to your GP that you want to see another doctor at the pain clinic and are being refused that option; ask the GP to call on your behalf.
            MS with cervical and thoracic cord lesions

            Comment


              #7
              Thanks for the suggestion. I guess I hadnt really thought that even though a certain docs name was written on the referral that it would be denied me to see THAT doc. I'll have to call the GP on Monday and see if she would be willing to do that.....sigh. Seriously, why do we pay them anyway? I mean, we are practically doing their jobs anyway....

              Becky
              T8-9 according to latest scoring.......
              since 1/3/04

              I am the best at being me. No matter how that happens to be!!

              Comment


                #8
                Hope you can at least find periods of relief from pain until then, Becky!
                MS with cervical and thoracic cord lesions

                Comment


                  #9
                  I'm sorry to hear about your distress. Of course, you're at the end of your rope. I hope you can discuss this with your GP when their office opens this week. You shouldn't have to go through pain to this extent. Let us know how you do.

                  Comment


                    #10
                    (((Becky)))

                    Comment


                      #11
                      Have you ever tried Vicodin ?
                      www.adventuresofcolinandheather.blogspot.com !

                      Comment


                        #12
                        Originally posted by Colin83 View Post
                        Have you ever tried Vicodin ?
                        Countless times. It does absolutely nothing. After my last hospital stay they sent me home with Fentynal which made a small impact. At least I didnt want to jump out of my skin but, I run out of that tomorrow and dont have anymore refills since I cant get into the unhelpful pain doc till the 18th .

                        Becky
                        T8-9 according to latest scoring.......
                        since 1/3/04

                        I am the best at being me. No matter how that happens to be!!

                        Comment


                          #13
                          Becky you cant just not take fentanyl. The withdrawal is not nice at all. Keep an eye on your glucose levels if you go into withdrawal. drink gator aid too. they never last the 72 hours either. maybe that is why your pain is so bad too. changing to a new fentanyl patch at 48-56 hours prevents the withdrawal happening every time you need a new patch. I had no trouble getting the prescription changed when I told them I was withdrawing by 72 hours.

                          Comment


                            #14
                            Originally posted by bcsimpsons View Post
                            After my last hospital stay they sent me home with Fentynal which made a small impact. At least I didnt want to jump out of my skin but, I run out of that tomorrow and dont have anymore refills since I cant get into the unhelpful pain doc till the 18th .

                            Becky
                            They didn';t give you enough to last until you could get it refilled? It isn;t one of those drugs you can just stop. You should call you gp and ask what you should do about this (specified gp, as it seems she is the most helpful of your doctors, otherwise, it would really be the pain doc you shoudl talk to.)
                            T7-8 since Feb 2005

                            Comment


                              #15
                              I called the GP this morning and she is going to try to get me to see the other pain doc. She also refilled my perscription for the Fentynal so I didnt have to deal with issues from not having that, thankfully! That is exactly what I was thinking and was afraid of which is partially why I was freaking out. Now I just have to hope that the GP can get through to the scheduling people at the pain center..... fingers beyond crossed because I cant deal with the crap that the current doc Im scheduled with might pull.

                              Becky
                              T8-9 according to latest scoring.......
                              since 1/3/04

                              I am the best at being me. No matter how that happens to be!!

                              Comment

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