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Long Acting Pain Meds; Lesser of the Evils

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    Long Acting Pain Meds; Lesser of the Evils

    Over the last several months, my Neurologist has been trying to decrease the Acetaminophen in my Hydrocodone to 325, however I have a yellow dye allergy and 325 is yellow. At one point, my Pharmacy did a special order for 7.5/325 in white but it was soon back ordered from the manufacturer. Last week, my Dr. decided to change me to 10/325. It was yellow too, so he settled with 10/500 and decrease me to 3 a day. He also wants to put me on a long acting pain medication, Methadone.

    It has taken years for me to build up a tolerance to the side effects of Hydrocodone, taking no more than 5mg, one half twice a day in the beginning. The stronger medications I was given post-op shoulder/arm surgery, (Tylox, Percoset) caused serious side effects. I swelled like a blimp on Tylox and saw things moving with Percocet, not to mention itching like crazy and nausea! I have a history of med allergies and being side effect sensitive, so needless to say, I'm a nervous wreck about this change, but want to do what's best, long term, for my liver, AND better pain relief would be nice.

    I spoke with my Neurologist yesterday, and he wanted to think about it. He's also trying to stay "under the gov radar", (his words), because of a new State law requiring more doctors to register as a "Pain Clinic". He hasn't called me back yet. Maybe he's consulting the DEA!

    I've been searching the forums for info on Methadone and I do NOT like what I've read! Please, can anyone tell me if any of the long acting pain medications are milder than the others or less likely to cause side effects? Perhaps there's another member that's sensitive to these God awful medications with some advise? The 2.5 mg of added Hydrocodone has had me in a cosmic cowgirl fog for days but not touching the pain ...uggg!

    Thanks in advance for any suggestions!
    Incomplete, SCI, T1-T8, w/ Arachnoid Cyst. Bilateral shoulder surgeries, 2 on the left, 3 on the right, right forearm surgery for a crushed radial nerve.

    "We can always choose to perceive things differently. We can focus on what's wrong in our life, or we can focus on what's right."
    — Marianne Williamson

    #2
    I'm curious why if your doctor was concerned about acetaminophen he didn't try Vicoprofen ( made with ibuprofen instead of acetaminophen).

    Comment


      #3
      I swell on NSAID's, top to bottom; risk of kidney failure.


      Originally posted by David Berg View Post
      I'm curious why if your doctor was concerned about acetaminophen he didn't try Vicoprofen ( made with ibuprofen instead of acetaminophen).
      Incomplete, SCI, T1-T8, w/ Arachnoid Cyst. Bilateral shoulder surgeries, 2 on the left, 3 on the right, right forearm surgery for a crushed radial nerve.

      "We can always choose to perceive things differently. We can focus on what's wrong in our life, or we can focus on what's right."
      — Marianne Williamson

      Comment


        #4
        You'd be better off trying oxycodone (no NSAID) or oxycontin and your neurologist either 1)referring you to an MD that is 'on the government radar' and can prescribe medication that works and is safe or 2) neurologist getting his paperwork together. Hydrocodone isn't available in the USA unless it's formulated with acetominophen or ibuprofen.

        Comment


          #5
          Why not just a simple morphine pill? Lasts 12 hours. Most docs try something like this, or oxycontin, instead of jumping to methadone.

          Comment


            #6
            Originally posted by hlh View Post
            Why not just a simple morphine pill? Lasts 12 hours. Most docs try something like this, or oxycontin, instead of jumping to methadone.
            I take methadone, I consider it to have fewer negative side effects than morphine or oxycntin.

            Comment


              #7
              There is also the cost of methadone versus oxycontin. Methadone costs 10 cents a pill where as the same amount of Oxycontin would be about 30 times more expensive at 3 dollars a pill. The difference in cost is staggering.
              Charlotte - you are one sensitive girl. Who knows how you would react to Methadone or Oxycontin, I guess there is only one way to find out ! Try 'em.
              Last edited by arndog; 31 May 2012, 10:09 AM.

              Comment


                #8
                depends on the individual so much. I can't take hydrocodone, and percocet makes me itch like crazy. I had bizarre severe side effects while titrating up on methadone and had to stop. I currently take extended release morphine, and fast acting dilaudid. No side effects to either, but I do have a standing script for phenergan and get nausea from other things. So I wouldn't know if they caused nausea as well.
                Board Member of Assistance Dog Advocacy Project working in Education. Feel free to ask me any service dog questions!

                I am not paralyzed. I have a genetic connective tissue disorder with neuro complications and a movement disorder.

                Comment


                  #9
                  I use the oxycontin but do also get the nausea but I don't have to take anything for it
                  ACDF C5/C6, C6/C7 9/2011& Central Cord Syndrome

                  Comment


                    #10
                    Avictoria, thanks! I'll add these to my list to discuss with him and the Pharmacist. I'm going to try and get as much information as possible before I let my Dr. change anything.

                    Our State has become the new FL with respect to Pain Clinics. I was referred to one of the better pain clinics when my Physiatrist moved away. It was bad, and the drug screens were expensive, even after insurance paid. I had a new career of keeping their billing straight- I was charged twice for urine samples I didn't give and charged for 2 urine samples in one visit. On more than one visit, my unlabeled, $500.00 cup of pee, was placed on a counter with several other unlabeled urine samples! Insane!

                    My Neuro was one of the first groups of Doc's in the State to train in PM, long before the DEA entered the medical field. He's well versed and I trust him totally. It's my bodies disliking of medications that scares me.

                    Thanks again,
                    Tina


                    Originally posted by avictoria View Post
                    You'd be better off trying oxycodone (no NSAID) or oxycontin and your neurologist either 1)referring you to an MD that is 'on the government radar' and can prescribe medication that works and is safe or 2) neurologist getting his paperwork together. Hydrocodone isn't available in the USA unless it's formulated with acetominophen or ibuprofen.
                    Incomplete, SCI, T1-T8, w/ Arachnoid Cyst. Bilateral shoulder surgeries, 2 on the left, 3 on the right, right forearm surgery for a crushed radial nerve.

                    "We can always choose to perceive things differently. We can focus on what's wrong in our life, or we can focus on what's right."
                    — Marianne Williamson

                    Comment


                      #11
                      I wish I knew the difference in these! Which is the least likely to cause side effects, or knock me off my arse!?!

                      Thanks!


                      Originally posted by hlh View Post
                      Why not just a simple morphine pill? Lasts 12 hours. Most docs try something like this, or oxycontin, instead of jumping to methadone.

                      T8, are you side effect sensitive also? I read a post about a member having morning withdrawal from Methadone. Does that happen? Can you skip a dose if you don't need it?

                      Thanks for your input!


                      Originally posted by t8burst View Post
                      I take methadone, I consider it to have fewer negative side effects than morphine or oxycntin.
                      Incomplete, SCI, T1-T8, w/ Arachnoid Cyst. Bilateral shoulder surgeries, 2 on the left, 3 on the right, right forearm surgery for a crushed radial nerve.

                      "We can always choose to perceive things differently. We can focus on what's wrong in our life, or we can focus on what's right."
                      — Marianne Williamson

                      Comment


                        #12
                        Personally, I can't take morphine without my husband telling me wild stories the next morning, plus it makes me think bugs are crawling on me LOL

                        It sounds like your sensitivity is much worse than some of us due to the dye allergy. Personally, I take Valium to assist with muscles relaxing and Vicodin 7.5.

                        For me Oxy is more long lasting per your question and I can minimize the stomach effects by using phenergan. I do not like to take this on a regular basis because it does as it is suppose to--helps my stomach and makes me sleepy. So, I have quick dissolve phenergan that I put on my tongue. These are more expensive and most insurance companies will not cover them unless you appeal it. When doing so, just tell them you need it because it must be fast acting and you can't use suppositories independently That is only time I use that reasoning...
                        Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                        Comment


                          #13
                          Bingo, Arndog ...he mentioned the cost and insurance, also mentioned that either ins. or DEA, can't remember, may send him a letter forcing him to change me to long acting meds. I'm fortunate to have excellent ins. but I have NO control over the DEA. There's a lot of red tape these days.

                          Right again, I was sensitive to meds as a child. My parents would bathe me in baking soda to keep me from clawing myself to death!

                          I swear, I'm breaking out in hives just reading the names, Methadone and Oxycontin!




                          Originally posted by arndog View Post
                          There is also the cost of methadone versus oxycontin. Methadone costs 10 cents a pill where as the same amount of Oxycontin would be about 30 times more expensive at 3 dollars a pill. The difference in cost is staggering.
                          Charlotte - you are one sensitive girl. Who knows how you would react to Methadone or Oxycontin, I guess there is only one way to find out ! Try 'em.
                          Incomplete, SCI, T1-T8, w/ Arachnoid Cyst. Bilateral shoulder surgeries, 2 on the left, 3 on the right, right forearm surgery for a crushed radial nerve.

                          "We can always choose to perceive things differently. We can focus on what's wrong in our life, or we can focus on what's right."
                          — Marianne Williamson

                          Comment


                            #14
                            I haven't heard of Dilaudid since the 70's! They gave it to me when I had my tonsils taken out ...I was high as a kite... LOL!

                            OK, adding that one to the list for discussion! Thank you, Lin!


                            Originally posted by ~Lin View Post
                            depends on the individual so much. I can't take hydrocodone, and percocet makes me itch like crazy. I had bizarre severe side effects while titrating up on methadone and had to stop. I currently take extended release morphine, and fast acting dilaudid. No side effects to either, but I do have a standing script for phenergan and get nausea from other things. So I wouldn't know if they caused nausea as well.
                            Incomplete, SCI, T1-T8, w/ Arachnoid Cyst. Bilateral shoulder surgeries, 2 on the left, 3 on the right, right forearm surgery for a crushed radial nerve.

                            "We can always choose to perceive things differently. We can focus on what's wrong in our life, or we can focus on what's right."
                            — Marianne Williamson

                            Comment


                              #15
                              Originally posted by Charlottes Web View Post
                              T8, are you side effect sensitive also? I read a post about a member having morning withdrawal from Methadone. Does that happen? Can you skip a dose if you don't need it?

                              Thanks for your input!
                              I have had adverse reactions to Fetnayl (zombie) and Hydromorphone (Dilaudid) (itching, rash). I can take less of a dose, but if I skip it all together it takes at least a day for my pain to get back under control. It is not a withdrawal thing however.

                              Comment

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