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    #16
    Originally posted by SuprSi View Post
    How long did you try the lyrica, and gabapentin and what dosages did you go up to?

    I'm on Amitriptyline (which i don't think is doing anything) and lyrica 75mg 3x daily. My experience with Lyrica is that it begins to wear off fairly quickly (~6hrs), but it takes a few days to wear off completely. I ran out a few days ago and boy do I know it, so that's working for me at least! From what I've read you can go up to 300mg per day, so I can up my doses to 100mg x3 if i need.

    If nothing is working then narcotics sound like the only thing that'll work. I'm fortunate enough to not be at that stage yet, but at least I know there's another level if the pain gets worse. T8's a great guy to talk to because he's tried a lot and found what works best for him. The only thing to keep in mind with opiods is withdrawl if you stop suddenly, so be very careful not to run out (this is from reading other's experiences, not my own). This isn't 'addiction', it is 'dependence'. A lot of people seem to get that mixed up.

    Also, a soak in a hot bath helps me, or the warm hydro pool at the rehab centre was great while I was there. Public swimming pools are too cold to help though. Even with the meds that seem to work for me, every now and again I have a 'bad day'. The only thing you can do is curl up in bed and listen to music.


    Good call, what a bitch though
    I'm on 1200mg gabapentin 3 times a day. 75mg amitryptiline at night mainly to help with sleep, but has had no effect on the pain. was on 75mg lyrica 2x a day for around 2 weeks with no results, stopped only because of some insurance issues. I go to the Dr. in the morning so I'll let y'all know how that goes. BTW y'all can call me Jason. Thanks everyone for the feedback and support, really glad I found this forum, seems like an awesome place.
    Semper Fi

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      #17
      Originally posted by lonecoaster View Post
      I thought you meant incomplete's. I believe you and guys like arndog, and many others here, that it is the only option you have. So no offense meant. For others there are other options. And it's still a "pit of addiction" anyway you look at it.
      Sorry, I picked up "walkers" in rehab. I meant AB people not incompletes, I shouldn't use the term.

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        #18
        Originally posted by JC_USMC View Post
        I'm on 1200mg gabapentin 3 times a day. 75mg amitryptiline at night mainly to help with sleep, but has had no effect on the pain. was on 75mg lyrica 2x a day for around 2 weeks with no results, stopped only because of some insurance issues. I go to the Dr. in the morning so I'll let y'all know how that goes. BTW y'all can call me Jason. Thanks everyone for the feedback and support, really glad I found this forum, seems like an awesome place.
        It's not uncommon for people with neuro pain from SCI to go up to 4500 if necessary, and I have heard of a handful of cases where people went significantly above that. Arndog, another mod here, can speak better to appropriate lyrica dosages, but it seems to me like you might have been able to go higher before tossing in the towel. I definitely think your doctor could have had you try it for longer than 2 weeks if insurance wasn't in the way, so if you have a chance you might give that another shot.

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          #19
          I agree that you can go up much higher on the gabapentin and the Lyrica dose was pretty low too. I think Arndog suggests it works better 3x a day. Neither medication worked for me and I was changed to Topamax and then I use Percocet for break through pain but I still am never pain free. I think different things work for different people you are probably going to have to try a few things to see how you can manage your pain. I will say welcome to the group sorry you had to find your way here but you can find strength in numbers there are lots of people who can really give you useful information because they have walked the same path. I hope you can find something to assist you with your pain.
          ACDF C5/C6, C6/C7 9/2011& Central Cord Syndrome

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            #20
            Jason,
            Are you a Veteran? If so, are you being seen at a VA Hospital? You are still fairly new to SCI so your body might still be going through changes. I had pain the first year and then the pain went away. I have met others who have not stopped having pain, everyone is different. What works for one, won't work for others.

            Enrique

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              #21
              Well my doc decided to give methadone a try at 5mg 3x a day which kinda surprised me, I didn't even bring it up to him. We are gonna give lyrica another try, just have to wait a couple of weeks til my gabapentin prescription is up since my insurance won't do both at the same time. He's also referring me to Emory Spine to look into a Spinal Cord Stimulator. He said that he feels that I'm a good candidate to see if it will help but because of the scar tissue from my extensive surgeries he wants to refer me to a "better" surgeon to see if they could actually do the implant. Keeping my fingers crossed.
              Semper Fi

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                #22
                Sorry me again..... Took my first dose of methadone at lunch time and I'm not feeling too good. Read the paper that comes with the prescription and it said its to be expected and that it should subside after time. About how long does it last? I typically have a really high tolerance for everything so it caught me off guard. Also about how long will it take to start noticing a difference if it helps?
                Semper Fi

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                  #23
                  Originally posted by JC_USMC View Post
                  Sorry me again..... Took my first dose of methadone at lunch time and I'm not feeling too good. Read the paper that comes with the prescription and it said its to be expected and that it should subside after time. About how long does it last? I typically have a really high tolerance for everything so it caught me off guard. Also about how long will it take to start noticing a difference if it helps?
                  Methadone is long acting but not really quick acting. I would give it a day or two for it to level out and start working.

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                    #24
                    Welcome Jason, and thank you for your service.

                    I'm on a much higher dose, but like T8, I also take methadone to help manage both neuropathic and nociceptive [i.e. bone and muscle type pain]. While double-blind trials are needed, methadone appears to have unique properties that may make it especially useful in the management of intractable neuropathic pain, including central pain syndrome. [source]

                    Be careful about using nothing but narcotic pain medication for long-term management of your pain. Ironically, taking opioids for an extended lengt of time can actually make your pain worse. My current [and best ever] pain doc happily prescribed methadone for the reason cited above, but only if I also take either a low dose of gabapentin [600 mg/day] or lyrica [100 mg/day]. Apparently research shows that taking either of those drugs concurrently with narcotic pain meds will prevent narcotic-based hyperalgesia from developing. IMO, it's a discussion worth having with your pain management doctor. [You too, T8.]

                    Finally, give serious consideration to POPO's advice to get yourself to a VA spinal cord center. They are often the most knowledgeable docs you can find, and you've already paid most of the cost of getting treatment and meds from them.

                    The pain itself and the trial and a lot of error needed to find out if anything will help can get really maddening. That's one of the ways the CC pain forum can be a lifesaver -- we get what the overwhelming majority of your family and friends just aren't able to understand. To paraphrase the credit card ads, having a safe place to vent and friends who understand = priceless.

                    Sorry for the circumstances that brought you here, but we're so pleased you found CC. I'm confident you will be too.
                    -------------------------------------------------
                    Edited to Add...

                    Originally posted by t8burst View Post
                    Methadone is long acting but not really quick acting. I would give it a day or two for it to level out and start working.
                    Methadone's long half life [anywhere between 52 and 85 hours] means that taking more every eight hours will have a compounding effect since a good deal of the previous dose is still in your system. The result is that the longer you take it, the more effective it becomes.

                    I'd give yourself a week to become better accustomed to having it in your system, and several weeks to really build up the med to peak effectiveness even though you might get some relief after just a few doses.
                    Last edited by thehipcrip; 11 Apr 2012, 7:33 PM.
                    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

                    ~Julius Caesar

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                      #25
                      Be careful about using nothing but narcotic pain medication for long-term management of your pain. Ironically, taking opioids for an extended lengt of time can actually make your pain worse. My current [and best ever] pain doc happily prescribed methadone for the reason cited above, but only if I also take either a low dose of gabapentin [600 mg/day] or lyrica [100 mg/day]. Apparently research shows that taking either of those drugs concurrently with narcotic pain meds will prevent narcotic-based hyperalgesia from developing. IMO, it's a discussion worth having with your pain management doctor. [You too, T8.]
                      I am taking gabapentin right now, 1200mg 3x a day, and will be switching to lyrica in a couple of weeks at 150mg 2x a day to start off and then adjust it as needed. Also, I don't really have the aches and pains, so I don't need a narcotic for that, just through the process of elimination we've arrived at methadone for now, but I'm not really digging the side effects.
                      Semper Fi

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                        #26
                        Thanks HC. I have my six month review coming up in a month or so and will bring it up.

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