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Abdominal Surgery under the lens of chronic central neuropathic pain

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    #31
    The news of your increased food intake and block-long ambulation-by-crutches brought out the biggest smile I've had all week, Arndog. Congratulations on the long-awaited progress toward full recovery!

    That a sacral pressure sore developed in only two days is disturbing, to say the least. Were you on a low air-loss mattress, foam, or just a regular hospital bed? The prospect of developing sores is my biggest motivator to stay out of the hospital.
    It is easier to find men who will volunteer to die, than to find those who are willing to endure pain with patience.

    ~Julius Caesar

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      #32
      Hospitals are so dangerous for us. If it's not pressure sores, it is C. difficile or MRSA.

      Originally posted by arndog View Post
      Hey , thanks everyone.
      RDF - thanks for asking about that pressure sore - yes it healed uneventfully and got replaced by other problems that made that look like a hang-nail. Interestingly, I got a sacral 'bed sore' while in the hospital from laying on my back in a hospital bed with a bad mattress and I was not vigilant with position changes. It occurred in 2 days of hospitalization - first time that has happened to me. Wow, that was humbling - that one could get a pressure sore so quickly in a hospital. So please do position shifts if you are in a hospital bed ( I should have known better, but I was so focused on my painful abdomen, I really couldn't think about position shifts.)

      I managed to crutch walk one block today, and eat more. I am recovering.

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        #33
        So sorry to hear about your latest problems, Jon. Nearly 2 years ago I was blindsided by a SBO caused by adhesions from a previous surgery. Wow. I was exceptionally lucky, after several days in the hospital it resolved without surgery. Now I feel like I have a time bomb in by gut from those stupid adhesions.

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          #34
          Thanks Van Quad and David Berg for your comments.

          THC- It was a standard hospital mattress. They offered some lame looking air mattress pillow top which to me looked worse than the standard mattress, The sheets were very rough and I wonder if it was a shearing issue due to the high friction sheets. Later in the hospitalization we brought my memory foam pillow top and layed that on the bed. Should have done that from the onset of the hospitalization. I will make a mental note to remember that next time.

          The month of May evaporated in front of my eyes. It is gone. I hope I can get out of the house this June......

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            #35
            I know what you mean Jon, about time just disappearing........when I had my last back surgery fiasco, I went in on Oct 21st. By the time I got out it was less than a week until Christmas. I missed the holidays......Halloween, Thanksgiving, and even Christmas was'nt right....then right into the New Year....I felt like I'd missed it all. I can't even remember much through that period of time.

            All the work I had done physically was gone.....I had to start over. I hope it does'nt take you long to get back all your strength. I never did make it back to my cane, and since it's been about a year and a half now, it's not looking good. For me it was the complications during surgery that did me in. Two strokes and a heart attack, but I keep working on it. I figure never give up.....a work in progress....

            I know you will bounce back and I pray this is the last time you have this problem.......

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              #36
              Arondog--so sorry to read of your experience. I've been away for 2/3 months with my own health issues, so only reading this for the first time today. God speed you with a healthy recovery and great hopes for no additional problems!!

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                #37
                Hang in there fellow travelers. I've had an unusual string of good health that stretches back to 1990 when I moved back to Nova Scotia where the specialists aren't that special.

                Great peer thread that teaches you to appreciate the healty stretches. Really savor them. Because there will be rough stretches.

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                  #38
                  arndog, were they ever able to see an obstruction in tests?
                  did they diagnose you with this or that, and the central pain because they could find no reason for the belly pain?

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                    #39
                    Jody - they knew it was a bowel obstruction and so did I. , they could see the obstruction clearly on a CT scan when I got to the ER. The CT scan shows an 'air/fluid' level (a puddle of liquid) in a loop a bowel. Then, there are multiple dilated loops proximal to that single loop with an air/fluid level. Then the rest of the bowel is empty. It is the classic finding and the thinking is that the adhesion is blocking a small intestine loop at the air/fluid loop.
                    But, clinically there was no question as to what was the diagnosis with the 12th time this has happened to me with essentially the same symptoms.Severe abdominal pain, vomiting and no gas or output from my colostomy.

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                      #40
                      Originally posted by Van Quad View Post
                      Hang in there fellow travelers. I've had an unusual string of good health that stretches back to 1990 when I moved back to Nova Scotia where the specialists aren't that special.

                      Great peer thread that teaches you to appreciate the healty stretches. Really savor them. Because there will be rough stretches.

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                        #41
                        I'm so sorry to hear you're enduring this. I'm sorry I have nothing else useful to offer.

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                          #42
                          I am so sorry , I have had obstructions also , but nothing like you . I will prey for you , even though sometimes I think God has abandoned us ? Good Luck , I am sorry .

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                            #43
                            Hi Arndog
                            I read every reply to your tread and I hope you feel better and all

                            Last year I had a obstruction it put undue stress on my bladder and actually blew my S/P catheter out of my body from the spasms etc... Definitely no fun
                            I dont know why with all the fancy medical technology , gizmos that still blocked intestines and crazy stuff plague so many of us . You would think there is a set of reasonable treatments or cures by now..

                            Got to go to bed got a Dr appt in a few hrs See you all later today or tonight
                            Sincerely ; GL

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                              #44
                              It has been a few weeks since I last posted. I need to take my moderator hat off for this. This post will not be filled with optimism like I usually have.

                              I honestly am not doing well recovering from this abdominal surgery. I am not giving up yet. A friend in Lafayette is letting me borrow his Force R handcycle which I am hoping brings me back to some level of aerobic fitness and some reversal of the muscle mass loss from 3 weeks of not eating and lying in bed.
                              We will see how it goes over the next month. I do want to get to Yosemite to see the waterfalls this summer - I have been stopped after multiple attempts.
                              Last edited by arndog; 15 Jun 2011, 8:20 AM.

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                                #45
                                Arndog, I am beyond sorry that your recovery has been slow and difficult. I hope that the handcycle will help you to regain what has been lost and that you will get to Yosemite this summer.
                                MS with cervical and thoracic cord lesions

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