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Abdominal Surgery under the lens of chronic central neuropathic pain

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    #16
    wow, i just read of your injury specs,It is hard just reading it, living through it and with it, well i don't have words for that. i bought one of those super juicers, costco had them for about a month, the same ones the inventor blends iPhone and wooden rake handles.
    blendtec is the name i think. i had the other juicer that spun-around but you lost all the fiber. the blendtec you drink everything, it may be like a vitamamax typer but a bit cheaper. you can make soup with it, i havent tried that yet.
    i use it to get my vegetable fiber and also to get vegetables that i normally would never eat, such as beets and kale into me, the good think is you lose nothing as far as fiber and the blades are actually square, not sharp/ i forget why, but i think it had to do with fiber and not breaking it down too fine.
    by adding an apple or other sweet fruit, it sweetens any blend /
    i forget how you got you injury, but workers comp pays for a lot of medicines that others will not, but it is state bu state, i have been fortunate in ny state
    cauda equina

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      #17
      I get it arndog. at least on my own scale.

      the staples didnt bother me, and the removal was not painful, however the belly pain never did improve.

      one doctor says its central pain, one says its all in my head, another says its someting called pots syndrome.
      ever heard of that? me neither. id rather smoke it, or cook in it, but dont need to have it.

      I so hope the surgery heals, and you get some kind of relief.

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        #18
        I know you've been going through hell........I hope things are getting better. What you go through.....scares me when thinking of my daughter. Not the same reasons, but shes' totally dependent on the small intestine, and I hope does'nt start to need the resect jobs they thought would be necessary this time.

        Neuropathic pain is a pain you can't describe at times. But so is gut pain. I've had bleeding ulcers in the past.....I'm sure it does'nt come close to what you're dealing with. But as close as I want to get to that kind of gut pain! Please get well soon Jon.

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          #19
          Holy crap batman.

          Scary. I know you were one of the tormented at several levels but this shocked me.

          Jon, hang tough we all know you can and will but I am sorry that your suffering has reached such a level.
          Kindly,

          The Ketamine Kitty

          All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

          Next time I die make sure I'm gone,
          don't leave 'em nothing to work on JT

          And I ain't nothin but a dream JM

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            #20
            i agree with you glad it didn't happen when you did the transverse, more important i am glad you got the traverse in your pocket. it really sucks so much more when you get nothing you wanted t do accomplished and you have to cancel or not be able to commit to any activity that you enjoy due to the injury or side effects. And i am glad you see it in that light, you got it done in spite of everything, something 98%of AB people couldn't have done.
            do any meds give any relief?
            methadone gave em the most relief as my 24/7 from my neuropathc pain,fentora works on my bt, but it has been real bad lately , i am right at the line of either going up on methadone dosage, or being prescribed higher fentora, i want neither, they both really screw me up. methadone scares me because of the side effects and the heart failure thing they really don't know much about. fentora has its problems , they both are really constipating and have caused me a whole bunch of new problems,
            i cant take heat over 72 and at 73 i need a fan on my face, its bad.
            plus mentally i am barely getting by, and to top it off i have extra stress due to coop apartment issues , with a board president i don't trust and who fights transparency, especially with financials every step. i need to get a letter to the Attorney general out tomorrow or within two days, but i cant focus on that stuff, i have all the facts but i cant write well due to the meds.
            cauda equina

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              #21
              Thanks for the kind words everyone. It is a little better today and I am increasing my diet. For pain I am taking up to 90 mg oxycodone. I know I am going to have to pay on the other end when it comes time to withdraw off that amount. You can pay now or pay later, but you can't get around the fact that you are going to have to experience withdrawal at some point. This is when everyone who thinks I over do activity and exercise will explain to me that that was the origin of this new problem of intestinal obstruction. I do not buy into this theory. It just happens.
              This does raise my empathy to those people who suffer from Inflammatory Bowel disease or Chron's disease.
              I hope everyone is doing well and is hanging in there.

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                #22
                So glad to hear that it's a bit better today, and you're right, whatever it takes is whatever it takes - you can deal with withdrawal later, the point is to get some pain relief now, when you need it.
                MS with cervical and thoracic cord lesions

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                  #23
                  I'm glad you're feeling better. Hang in there and keep the faith...we need you to keep posting your words of wisdom!!

                  -Lori

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                    #24
                    I think you're better off dealing with the drug thing at the other end. You're aware of it and know you'll be dealing with it. But for right now, I think you heal better/faster when not in as much pain as you would be without it. You're between the familar rock and a hard place, and I think you have chosen wisely.

                    Hope you heal fast, I'm looking forward to seeing you post more when you're feeling better....

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                      #25
                      Jon...you make me cringe. I can't imagine.

                      I hope you get back to your fitness soon...I just can't imagine.

                      I am thinking of you and envying your sitski trip though

                      (((hugs)))
                      T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                      My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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                        #26
                        Dang, you can't catch a break arndog. I wish for you recovery in all your problems. How's the sore on your butt doing? Has it healed?
                        Please donate a dollar a day at http://justadollarplease.org.
                        Copy and paste this message to the bottom of your signature.

                        Thanks!

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                          #27
                          i just saw this arndog, sorry to hear of all this misery and pain you have been going through. Yeah worry about the oxy later, just relieve your pain now, so your body can do its healing, physically, mentally and emotionally. I hope you continue to see improvement in the pain and get well soon.

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                            #28
                            Hey , thanks everyone.
                            RDF - thanks for asking about that pressure sore - yes it healed uneventfully and got replaced by other problems that made that look like a hang-nail. Interestingly, I got a sacral 'bed sore' while in the hospital from laying on my back in a hospital bed with a bad mattress and I was not vigilant with position changes. It occurred in 2 days of hospitalization - first time that has happened to me. Wow, that was humbling - that one could get a pressure sore so quickly in a hospital. So please do position shifts if you are in a hospital bed ( I should have known better, but I was so focused on my painful abdomen, I really couldn't think about position shifts.)

                            I managed to crutch walk one block today, and eat more. I am recovering.

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                              #29
                              Yeah, I got one of those sacral sores when first injured. It still breaks open occasionally even to this day if I lay all night on my back.

                              Glad to hear your pressure sore healed up. One less worry, god knows you have plenty of others. Best of luck to ya Jon.
                              Originally posted by arndog View Post
                              Hey , thanks everyone.
                              RDF - thanks for asking about that pressure sore - yes it healed uneventfully and got replaced by other problems that made that look like a hang-nail. Interestingly, I got a sacral 'bed sore' while in the hospital from laying on my back in a hospital bed with a bad mattress and I was not vigilant with position changes. It occurred in 2 days of hospitalization - first time that has happened to me. Wow, that was humbling - that one could get a pressure sore so quickly in a hospital. So please do position shifts if you are in a hospital bed ( I should have known better, but I was so focused on my painful abdomen, I really couldn't think about position shifts.)

                              I managed to crutch walk one block today, and eat more. I am recovering.
                              Please donate a dollar a day at http://justadollarplease.org.
                              Copy and paste this message to the bottom of your signature.

                              Thanks!

                              Comment


                                #30
                                That is wonderful about your crutch walk and improved appetite! And I hope that neither the pressure sore nor the hospital-acquired sore ever plague you again. It's great to hear that you are recovering now.
                                MS with cervical and thoracic cord lesions

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