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Pain has gotten worse....I didnt think it was possible :( :(...

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    Pain has gotten worse....I didnt think it was possible :( :(...

    So, I under-went shoulder surgery 2 months ago hoping that it would atleast help with a small portion of my everyday excrutiating pain. I so far have been completely unimpressed . I am actually in MORE pain then before I had the surgery. I knew that might be true for the first few weeks but COME ON!!!!, 2 MONTHS LATER!!!!
    I need to get more sleep but im in so much pain that i cant sleep for more then 20 minutes at a time. I just want to cry all the time but I cant because the pain that accompanies crying might cause me to do something I would end up regreting. Why cant I be one of the "lucky ones" that finds a med or group of meds that makes this awful relentless pain atleast tolerable ????

    Becky
    T8-9 according to latest scoring.......
    since 1/3/04

    I am the best at being me. No matter how that happens to be!!

    #2
    I'm confused . Did I just read a post you got out of the hospital after . 2 months ?
    Get involved in politics as if your life depended on it, because it does. -- Justin Dart

    I shall not tolerate ignorance or hate speech on this site.

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      #3
      Yes you did. I had shoulder surgery and there were some complications.

      Becky
      T8-9 according to latest scoring.......
      since 1/3/04

      I am the best at being me. No matter how that happens to be!!

      Comment


        #4
        Oh-I should have looked at this first. Was it rotator cuff?
        Dave had both shoulders done a year apart before his SCI. He was off work 3 months with one and was painful a couple more. (He was a pipefitter and did medical gas, was a physical job)

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          #5
          Shoulder surgery can be a rough one to recover and rehab from. I had fairly extensive shoulder surgery a year ago and I hate to think about having to go thru that with central pain. At two months out I was barely out of the sling. Be vigilant with your PT, especially the range of motion. I haven't done all I should or I'm sure I'd be a little better off by now. I can absolutely say that the shoulder surgery surgery was a more painful experience than when I had my surgery for prostate cancer this past summer. I guess that's the nature of orthopedic surgeries, and I've had a few.

          Comment


            #6
            I was just going to add what David Berg said.
            Stick with the PT.

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              #7
              Well.... sadly since I did PT most of the summer trying to avoid surgery if possible I now dont even have enough benefits left for an eval . I am doing as much stretching and ROM as I can on my own but the cold weather is not helping any of it. My benefits start over again January 1st....

              Becky
              T8-9 according to latest scoring.......
              since 1/3/04

              I am the best at being me. No matter how that happens to be!!

              Comment


                #8
                I know how dumb this might sound, but I get bad shoulder pain and burning/electricity down my arms, and draping a bag of frozen peas over each shoulder calms them down for awhile...it's a tip from a PT and it really helps when the burning is bad.
                MS with cervical and thoracic cord lesions

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                  #9
                  shoulder pain

                  I was just diagnosed with a "shoulder impingement" by ex-ray.
                  This is a 15 year old injury, i have suffered here and there with it over the years, never had it looked at, but now, with my cane, being right handed, possibly falling a gazillion times has contributed, (one fall imparticular) i went for that first injection. First cortisone injection was 10 or so months ago and it worked great. Got another one Wednesday and it was like a placebo. I go in next Thursday for a MRI to see if i have a torn rotator cuff.
                  Doctor said he is a "worse case scenario" kind of guy, said the rehabilitation was 3-6 months. He also said if it is torn, leaving it would only make it worse, injections would not be the answer. I am not coordinated with my left hand, (using cane etc) but after reading all of this, i seriously don't think i want to have a surgery with this many complications, and like someone said, on top of this neuropathic pain etc. if i am not able to get around, distract my brain, use the new SideStix i just ordered, i am going to seriously reconsider a surgery, even if the Doctor did say it would get worse.
                  They have been wrong before! Thank God i saw this before Thursday ):

                  Comment


                    #10
                    Springville girl, I don't want to say one way or another if surgery is right for you or not. I decided to have the surgery because I could no longer even fold my laundry etc... It has been two months since surgery and I just got out of the hospital and inpatient rehab as mentioned. I am supposed to have outpatient but don't think that will be happening until after the new year due to the insurance issue and what not which really irks me!! I had three cortisone injections and none of them helped in the slightest. They did the MRI and I had a torn rotator cuff along with three bone spurs and general inflamation as you can imagine. I say put off surgery till as long as possible with whatever method you can!!!! As far as my CP goes... it has gotten worse. I'm not sure if its worse because of the pain from the surgery or if its just getting worse but honest to God, I cry for hours every day because of the pain I'm in even after the surgery.

                    Becky
                    T8-9 according to latest scoring.......
                    since 1/3/04

                    I am the best at being me. No matter how that happens to be!!

                    Comment


                      #11
                      Bonnette, I have tried heat and cold packs etc but I can't have anything on my shoulders. Just the pressure of something there makes the pain ten times worse. Even having to wear shirts is almost unbearable. I don't know what I'm going to do when it gets so cold that the coat and clothes have to be heavier . Thanks for the advice though!!!

                      Becky
                      T8-9 according to latest scoring.......
                      since 1/3/04

                      I am the best at being me. No matter how that happens to be!!

                      Comment


                        #12
                        Originally posted by bcsimpsons View Post
                        Well.... sadly since I did PT most of the summer trying to avoid surgery if possible I now dont even have enough benefits left for an eval . I am doing as much stretching and ROM as I can on my own but the cold weather is not helping any of it. My benefits start over again January 1st....

                        Becky
                        Sorry to hear that Becky, but if you know some decent PT to do on your own at home, just go with that for now. If you need more ideas just try looking online for shoulder rehab and PT, a search should turn up more exercises.

                        After my surgery I also found that a TENS unit came in very handy for coping with pain. If it doesn't set off your neuro pain I highly recommend one. They are available from a number of sources for a reasonable price. Mine came from lgmedsupply.com, but there are plenty of others.

                        Comment


                          #13
                          Originally posted by bcsimpsons View Post
                          I can't have anything on my shoulders. Just the pressure of something there makes the pain ten times worse. Even having to wear shirts is almost unbearable.
                          Becky, my left wrist and forearm were exactly like that after ganglion cyst surgery and it took six months for the hypersensitivity to pass. Even air made me cringe. It takes eons for the nerves to either heal or simmer down. I ended up having RSD, but even so those extreme hypersensitivity issues went away. You'll probably have to give your shoulder a LOT of time to recover, and it is tough to wait it out and tough to put up with the pain and "nerviness" you're feeling.

                          At some point, you'll probably be able to ice your shoulders. Those words sound pretty meaningless at this moment, how well I know.

                          (Edited to add: I should have said it took at least six months for the hypersensitivity to pass. Yours may ease off much sooner and I hope it does, but I just want to let you know that in spite of how bad it feels now, it really will get better.)
                          Last edited by Bonnette; 8 Nov 2010, 12:44 AM. Reason: Addition
                          MS with cervical and thoracic cord lesions

                          Comment


                            #14
                            Becky, took my 9 months for ROM and 3-5 more for the pain to subside. Shoulder surgery sucks. Sorry, was hoping at least one of the regulars here was doing better.

                            warmly

                            bill
                            Kindly,

                            The Ketamine Kitty

                            All the tears, all the pain, all the rage through the night (apolgies to the rewrite) RR

                            Next time I die make sure I'm gone,
                            don't leave 'em nothing to work on JT

                            And I ain't nothin but a dream JM

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