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how many try to hide pain?

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  • #46
    Originally posted by darlagee22 View Post
    Mine goes up and down. In general people whom I care about know that I usually have pain. I don't always talk about it when I feel it, but I tell my family or friends that I am struggling with high pain if its affecting my attitude so they don't misinterpret me and it negatively affect our relationship. If it gets too bad I don't even have the energy to think or worry about others though. I just have to get through. I wrote a "pain plan" to follow if it gets bad because I can't think too well especially if it happens late at night. It involves praying a prayer I wrote, trying to go to the bathroom, then laying in the static back position and watching tv and taking tylenol pm,then if needed an extra lyrica and possibly oxycodone. Now I diverted from the topic...oh well. God, give us all relief.
    Darlagee22 - your post really strikes a chord - I think that is a good idea about a written "pain plan". I usually come unglued late at night (my wife calls it the 'witching hour') and I don't always make good decisions about dealing with the pain. I think I will create a written algorithm to follow. It might be something like:
    1. breathe slowly
    1a. lay down
    2. distraction with music - bach, beethoven, brahms, barber, bartok (the 5 B's
    3. extra 75 lyrica
    4. oxycodone
    5. distraction with TV - Law and Order
    6. ambien
    7. invite my dog into bed to keep me company

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    • #47
      Originally posted by cass View Post
      darla, would you mind sharing your pain prayer? you are not diverting this topic, far from it. you are sharing your experiences. to me, that's what cc is all about. when really bad, i recite things i learned as a child. i repeat them over and over in my head, a mantra, if you will, to keep from going crazy or calling 911.
      Cass, sure... I decided to write it from different prayers & scriptures in the Bible cuz although I usually pray just from my heart like I'm talking to God, I found that if I did that I got too emotional and frustrated if I tried to pray spontaneously when I was in a lot of pain and I'd end up mad at God and upset and that makes my pain worse! So I pray this non-emotionally and have confidence that God knows I mean it even though it sounds formal. Then I have to do something to distract my mind like watch tv and play easy computer games.

      "Jesus, your servant, your friend, is in pain. How long, O Lord? I cry out to You, my Resuer and my Salvation. The One who cares for my soul. Relieve my pain and affliction. Let this cup pass from me; yet not my will but thine be done. Glorify Yourself in me. Do a great thing and let my heart cooperate with You. You are my strength and my song in the night."
      http://www.laughwithmecrywithme.com
      my website & blog

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      • #48
        I think that Lyrica and Neurontin are molecules that are excreted by the kidney unchanged and don't have significant liver toxicity. I believe the same goes for narcotics, that they don't have significant liver toxicity. Now one drug is notorious for liver toxicity - alcohol. Let's raise a glass and toast to that !

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        • #49
          Sorry... had a very petty rant and can't work out how to delete.

          My heart goes out to anyone that has uncontrolled neuropathic pain.... it just sucks.
          Last edited by live2ride; 10-14-2010, 05:23 AM.

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          • #50
            Ur right on that liver issue,cass. I'm in the middle of liver tests for the meds i've had for 30+ yrs. Dr asked if i drink, I said yea, if you consider about 1 drink a month. Guess it's going on weed to save my liver, otherwise, getting on a transplant list is not very hopeful. Lupus for 32 yrs, cripple, hell, i'd be at the bottom of the list.

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            • #51
              Originally posted by fishin'guy View Post
              Ur right on that liver issue,cass. I'm in the middle of liver tests for the meds i've had for 30+ yrs. Dr asked if i drink, I said yea, if you consider about 1 drink a month. Guess it's going on weed to save my liver, otherwise, getting on a transplant list is not very hopeful. Lupus for 32 yrs, cripple, hell, i'd be at the bottom of the list.
              That's a bummer Fishin Guy!! Hopefully your liver enzymes will come back better then expected. Pullin for ya--Good luck!!

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              • #52
                oh guy! i hope things turn out ok. you've offered to meet before. let's work on that. am thinking of you.

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                • #53
                  I'm new but I'll post my experience. I've smiled, said I was ok and lied, looked away, excuse myself from the room, just grunt inside when it hit and get thru it. But after a while your family and friends know when it hits you.
                  I have pushed thru it since Oct 1995 and now since things got a whole lot worse Thanksgiving 2009 I have hit a brick wall.

                  First it was 2 or 4 Ibuprofen in my Navy morning then docs give Hydrocodone, now Oxycodone, Ibuprofen like M&M's no multi colors thou, tried Gaba bad stuff 4 me too many nightmares etc... now Topamax coming in the mail. Hope it helps. Stretching and Yoga as much as possible helps- when I can do it and any exercise helps or just plain laying flat on the floor.
                  I consider myslef lucky though to be able to go from a wheelchair, to walker to occassionally using crutches and/or cane. Trying my best to attend college but I have hit a brick wall. Might be out the rest of the semester until I have some spinal injections/radio frequency for my back and some help for my legs but then we'll see what happens.
                  Hope the best positive outcome but plan for the worst.

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                  • #54
                    everyday I have pain and everyday I hide it. Those closest to me see it, but I choose not to go in great detail, b/c then they want to do everything for me and always ask me how I am doing...
                    Same answer always physically, unless medicated... but mentally is where I am learning my strength has to help me to overcome pain.
                    Pain can really depress me and make me want to withdraw from even those who love me most. I don't want that. So I slap a happy face on and make as many memories as I can with those I love.

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                    • #55
                      pain and suffering wears on others. yes I try not to be very obvious. sometimes it is though. I think I am able to deal with it longer at a time if I stuff it. when I give in I get very tired and dont get as much done.

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                      • #56
                        I don't talk about it anymore. My husband knows me well enough to know without me telling him. And, for me, it's a dead give away when I pull out the postcards and cards and make myself write. He only asked me once why I don't do those when I don't hurt at much. I don't need them as much and can try and do something more physical around the house. Not that there's a whole lot of things I can still do with very little balance, but I've been trying. I'm not telling him, but fell twice yesterday.

                        Just went through some bad days and thought they were gone, but tonight I'm not so sure. So far it's not looking good. I hope not, I'm about out of writing material and stamps until the next pitiful ssdi flys by. What a pitiful retirement! Not exactly what I thought it was going to be. Just when I got to the point when my pay would have gone in the bank for later in life.......later in life kicked me in the ass. Or was that my spinal cord? All I know is top and bottom....mine was no good. I guess I'm lucky it lasted long enough for my kids to be grown. Dam shame they waited until now to go back to college and need my help. Ssdi just does'nt go very far these days and very much doubt that it ever did.

                        We hide our pain for many reasons. People do get tired of it and no one knows what to do, it's unfixable. Hell, even the doctors don't believe you or know what to give you. It's a coin toss at the pain clinic. They just guess what might help you. Then it's the big start over from the top.......or is that the bottom? My God in heaven, I don't know if I can do that again!

                        I don't go out much anymore, so I guess I don't have to hide much of anything to anybody, but myself. All I can say is try to keep your spirits up as much as you can. My personal belief, you hurt more the more down you are. Just me. Everyone does what suits them best.

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