Announcement

Collapse
No announcement yet.

I'm tired of this #$%&-ing pain!!!!

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    I have the aicd burning as well from mid , low back on down.. my low back and butt are the worst and around my waist.
    this difficult to deal with...hats off to everyone else who deals with this same agony..

    Comment


      another miserble day spent with burning hell for pain... starting not to give a shit anymore...

      Comment


        Is anyone's entire body in pain? Like literally your entire body? I'm a C-3 quadriplegic and from the middle of my chest down it's literally all nerve pain. And yes, my screen name says it all, this. Sucks.

        Comment


          Originally posted by This Sucks View Post
          Is anyone's entire body in pain? Like literally your entire body? I'm a C-3 quadriplegic and from the middle of my chest down it's literally all nerve pain. And yes, my screen name says it all, this. Sucks.
          Not speaking for myself, but after years on this forum I can absolutely assure you that you are not alone. I know of individuals who have no normal touch sensation anywhere on their body, only pain sensations. Most people with central pain syndrome find it very challenging to treat, but most can find something that at least helps a little. Keep reading and you'll find things that have helped others. One of the more common approaches is to use something such as neurontin along with a tricyclic antidepressant. Both work to tame down the wayward nerve signals that are firing off and causing you the pain.

          Comment


            so tired of life slipping by while i deal with electrical storm for pain...

            Comment


              what do you do if the meds cause more problems then good... i tired lyrica ..that was hell... i tried neurotten.. no relief..i'm on gabapentin highest dose i can handle no relief... only relief i get is sleep.. and i knock my self out to do that... I cut sugar out of my diet..i eat right..i do every thing i can and i'm still in the same amount of pain... super hypersensitive pain

              Comment


                Originally posted by Freespin 71 View Post
                what do you do if the meds cause more problems then good... i tired lyrica ..that was hell... i tried neurotten.. no relief..i'm on gabapentin highest dose i can handle no relief... only relief i get is sleep.. and i knock my self out to do that... I cut sugar out of my diet..i eat right..i do every thing i can and i'm still in the same amount of pain... super hypersensitive pain
                I am not confident it is the right answer for anyone including me but I have tried so many pain meds and the only thing that works for me is Vicodin. It does not take the pain away but it makes it manageable. I take one in the am then another at lunch and that will usually get me through the workday. Bad days there will be another around dinner time. At times I worry about the physical addiction (I have been taking it for over a year) and I will take a weekend off to see what the impact is and I don't feel the narcotic withdrawal that some report but the pain comes back with a vengeance so I do feel confident it is working for me.

                Comment


                  I thi k it's great that some people get some relief and i do wish that i to could be like that.. vicodin speeds me out and really didn't do much for pain... i just really don't do well with meds...

                  Comment


                    Originally posted by Freespin 71 View Post
                    I thi k it's great that some people get some relief and i do wish that i to could be like that.. vicodin speeds me out and really didn't do much for pain... i just really don't do well with meds...
                    I am sorry to hear that. There is such a common tone in all the pain threads where sitting seems to aggravate our pain yet we can't stand up. I hope you do find some relief.

                    Comment


                      Originally posted by This Sucks View Post
                      Is anyone's entire body in pain? Like literally your entire body? I'm a C-3 quadriplegic and from the middle of my chest down it's literally all nerve pain. And yes, my screen name says it all, this. Sucks.
                      I've been that way for 33 years, along with a plethora of other sensations to go along with it. You're absolutely right, it does suck. And it drives me nuts, starting with the bones sticking through the skin of my back sensation.
                      Last edited by alan; 26 Jul 2014, 8:39 PM.
                      Alan

                      Proofread carefully to see if you any words out.

                      Comment


                        Alan

                        Nothing to say that hasn't been said, but WOW, 33 years?

                        Comment


                          Hey Dejarine - how are things going for you? I PMed you but I guess I can ask here?

                          Comment


                            Arndog

                            See PM

                            Comment


                              i am struggling-ket

                              Comment


                                Originally posted by ketamine kitty View Post
                                i am struggling-ket
                                I know you've probably tried methadone but maybe a revisit with a nerve pain add on? Is medical heroin still available anywhere? It used to be used for cancer way way back.
                                Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

                                Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

                                Comment

                                Working...
                                X