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"How bad R U from 1 to 10?" arrrrrrrgh!!!!

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    "How bad R U from 1 to 10?" arrrrrrrgh!!!!

    "How bad is your pain from 1-10?" Fucking insane!! To me if u r constantly at 3-5 then this is better than an occasional 8 or 9. I am living and sometimes coping with a constant 2 to 5. Mostly 3 or 4. We with sci's fully understand this ridiculous numeral speak which sucks in itself. give me a 9 or 10 twice a month to constant pinging, panging, numbness, pin pricks, or just constant chills. I am insane from my pain. Do u really get used to being so damned uncomfortable? I think maybe. Gotta stop typing now...my neck hurts and my forearm muscles are on fire.

    #2
    Brother, brother I SO HEAR YOU!!! I know exactly what you mean. Everytime I hear that question I just want to scream.

    No, so far I havent gotten used to it. Haven't found any way to manage it either. Day after day of this for 15 years. Sometimes you just have to lose it. It just makes you crazy, so find a safe outlet to vent. Vent often. Just don't freak out anyone you want to keep around.
    Anything worth doing, is worth doing to excess

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      #3
      Don't give up to find a solution. It took me 20 years to find a combination which made me almost painfree. But I think different things is working on different persons.

      I went to a pain clinic last year because they stopped the pills that worked for me the last 8 years and it took the doctor 3 appointments to help me. I knew the doctor, she was my housedoctor 25 years ago when I had so terrible pain every day.
      TH 12, 43 years post

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        #4
        When I started my day I'd rate my pain about a 5, after I ate it's about a 7, like this every f'n day. If I don't eat it's eventually unbearable. I hate my life.
        Dave
        C5/C6 complete
        http://www.davegrotzinger.com
        http://www.daves-webdesign.com

        "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

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          #5
          Originally posted by xtravla View Post
          "How bad is your pain from 1-10?" Fucking insane!! To me if u r constantly at 3-5 then this is better than an occasional 8 or 9. I am living and sometimes coping with a constant 2 to 5. Mostly 3 or 4. We with sci's fully understand this ridiculous numeral speak which sucks in itself. give me a 9 or 10 twice a month to constant pinging, panging, numbness, pin pricks, or just constant chills. I am insane from my pain. Do u really get used to being so damned uncomfortable? I think maybe. Gotta stop typing now...my neck hurts and my forearm muscles are on fire.
          mine is in my feet and legs, but you got it right!

          Comment


            #6
            If it isn't 10, it's as close as one can get. Yet they somehow keep getting worse.
            Alan

            Proofread carefully to see if you any words out.

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              #7
              what make my pain worse then everybody else is i feel pain when therapist touch and move my legs

              Comment


                #8
                Originally posted by xtravla View Post
                "How bad is your pain from 1-10?" Fucking insane!! To me if u r constantly at 3-5 then this is better than an occasional 8 or 9. I am living and sometimes coping with a constant 2 to 5. Mostly 3 or 4. We with sci's fully understand this ridiculous numeral speak which sucks in itself. give me a 9 or 10 twice a month to constant pinging, panging, numbness, pin pricks, or just constant chills. I am insane from my pain. Do u really get used to being so damned uncomfortable? I think maybe. Gotta stop typing now...my neck hurts and my forearm muscles are on fire.
                Comparison Pain Scores suck because they are highly subjective. My 5/10 pain level could be someone elses 8/10. Pain is relative to who ever is having it. I am a physical therapist and asked this question for almost 17 years until one time I stopped using it and went to more of a functional pain score. It doesn't make individuals focus in on their pain so much and tells them they are still useful because they can do things. On the Comparison Pain Score, if rated a 10/10 that means you are passing out and need to be rushed to the hospital vs ambulance. Comparable to throat cancer. There have been so many times patients have rated themselves a 10. My question then was then how did you get out of bed, takes a shower, get dressed and managed to drive over here w/out killing yourself? I find the usually 0-10 pain scores useless.
                Brian


                "God grant us the serenity to accept the things we cannot change, The courage to change the things we can, And the wisdom to know the difference."

                Serenity Prayer

                Comment


                  #9
                  What combination worked for you?

                  Originally posted by woman from Europe View Post
                  Don't give up to find a solution. It took me 20 years to find a combination which made me almost painfree. But I think different things is working on different persons.

                  I went to a pain clinic last year because they stopped the pills that worked for me the last 8 years and it took the doctor 3 appointments to help me. I knew the doctor, she was my housedoctor 25 years ago when I had so terrible pain every day.

                  Comment


                    #10
                    Originally posted by dgrotz View Post
                    I hate my life.
                    Same here, wish I could find a way out. What the hell am I supposed to say when people say "happy new year?" Would like to say f-off!

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                      #11
                      i've been a 10. 10 is when you are begging people to kill you and you are serious. i've been there twice. once when the truck crushed me, and again when they slit me from my zyphoid to my back below my ribs to fix my eureter. if they had taken me up on my plee i'd be OK with that, but here i am. i'm almost always in pain. it's a background white noise. it's like living by the train {which i did for years - in the backyard} people ask "how can you stand the train?" "what train? oh, that one!" you say......in pain right now. my feet are deep purple & my right foot is screaming. i'm with the others - exercise, exercise, exercise. work on things that challenge your mind. i build bikes. read. it gets better. hang in there! steve.
                      Steve Garro. www.coconinocycles.blogspot.com

                      Comment


                        #12
                        I am a seven today but the humidity is high here. Usually i can deal with it but Im gonna eat pain meds today.
                        T12-L2; Burst fracture L1: Incomplete walking with AFO's and cane since 1989

                        My goal in life is to be as good of a person my dog already thinks I am. ~Author Unknown

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                          #13
                          I don't like to use the numbers. High to me is I think I'm going to die. Higher is I wish I would die. The highest? Suicide? It's occurred to me and probably a lot of others too. I would'nt really want to go there.

                          I get filled with a lot of anger that so many intelligent scientists have not been able to come up with a med that can if not cure, can at least calm neuropathy so one could at least live some kind of a life. But, I know they're trying. Seems like everything always boils down to nasty old money.

                          Sorry to be venting. I go Monday to see why the lumbar area that's messed up is causing more problems. He's already got rods in the top, maybe rods in the bottom will get rid of my purple feet!

                          Hope you feel better soon DD!!

                          Comment


                            #14
                            Originally posted by steve garro View Post
                            i've been a 10. 10 is when you are begging people to kill you and you are serious. i've been there twice. once when the truck crushed me, and again when they slit me from my zyphoid to my back below my ribs to fix my eureter. if they had taken me up on my plee i'd be OK with that, but here i am. i'm almost always in pain. it's a background white noise. it's like living by the train {which i did for years - in the backyard} people ask "how can you stand the train?" "what train? oh, that one!" you say......in pain right now. my feet are deep purple & my right foot is screaming. i'm with the others - exercise, exercise, exercise. work on things that challenge your mind. i build bikes. read. it gets better. hang in there! steve.
                            Man Steve if there were tracks in my back yard, even town I don't think I'd be here today! That would just be to much temptation.
                            Dave
                            C5/C6 complete
                            http://www.davegrotzinger.com
                            http://www.daves-webdesign.com

                            "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

                            Comment


                              #15
                              Daily, I feel like my feet and legs are being dipped into the fires of hell, but then, they also feel like I'm being submerged in a bucket of ice...weird, messed up shit !!!

                              There's the constant back ache...there's the sharp, jagged pain that feels like an ice pick stabbing straight through from my back to my gut and vice versa...then there's the bowel movements....like birthing a porcupine out my ass.

                              I don't think a simple 1-10 can capture my experience.....no.....don't think so...
                              "The truth will set you free. But first, it will piss you off." -Gloria Steinem

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