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    New C5 injury

    I am the father of a new spinal cord injured son. He has an injury at C5 and was injured on New Year's eve. He was injured by a drunk driver. Can you tell me what are the things I should do. I thank you i n advance for your responses.

    Also, I would like to know about any experimental surgeries that are available.

    #2
    Welcome to CareCure. As we often say here, we are sorry that you had to find us, but we are glad that you did.

    Where is your son? What planning is there to move him to a specialty SCI rehabilitation program? It is critical that he go to a specialty program, even if it is a distance from your home. A general rehabilitation program or center will not meet his needs. It should be a Model SCI Center ideally, or at least a CARF accredited facility (specifically a CARF SCSC or Spinal Cord System of Care).

    I would recommend that you read the following articles here by Wise Young, MD:

    Acute Spinal Cord Injury

    Family & Spinal Cord Injury

    Spinal Cord Injury Levels and Classification

    Currently, I am not aware of any experimental surgeries for acute injury patients anyplace in the USA. I will ask Dr. Young to comment on this too.

    Please ask questions....we will try to help with what we can. The most important thing you can learn now is as much as possible about SCI, options for care and rehabilitation, and how to be an advocate for your son. He will also need to gradually need to learn to be an advocate for himself, so when you can, get him on these forums too.

    (KLD)
    Last edited by SCI-Nurse; 30 Jan 2007, 12:27 PM.
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

    Comment


      #3
      Kaution, welcome to Care Cure. How old is your son?

      I'm a C2/3 quadriplegic injured at age three, 22 years ago. These first few weeks will see several changes and require decisions, but you've found a great resource to help. Feel free to ask anything you are wondering about and you will get help from those that have been through it and know what to expect.
      C2/3 quad since February 20, 1985.

      Comment


        #4
        Welcome. I just wanted to add my vote to suggest you read the articles KLD suggested. They are invaluable at this point.

        Any way we can help, just shout. We like to help and if experience is the best teachers we should all be SCI Rhodes Scholars!
        Blog:
        Does This Wheelchair Make My Ass Look Fat?

        Comment


          #5
          Welcome kaution. You've been given great advice already. Hope things work out for your family.





          Life isn't like a bowl of cherries or peaches. It's more like a jar of jalapenos--What you do today might burn your ass tomorrow.

          If you ain't laughing, you ain't living, baby. Carlos Mencia

          Comment


            #6
            Hope things work out for you, kaution.
            Daniel

            Comment


              #7
              looking for hope

              AS YOU KNOW I AM THE FATHER OF A C5 SCI SON. MY SON IS 23 YEARS OLD. BEFORE THIS INJURY HE WAS A HEALTHY INDIVIDUAL WITH NO MEDICAL PROBLEMS. I KNOW THAT IT IS PROBABLY TO EARLY TO TELL SINCE IT HAS ONLY BEEN 19 DAYS SINCE THE ACCIDENT. HE IS PRESENTLY IN REHAB. HE HAS NO FEELINGS FROM THE NIPPLES STRAIGHT ACROSS DOWN TO HIS FEET. HE IS ABLE TO HOIST HIS SHOULDERS BUT THATS ABOUT IT. DOCTORS HERE SAY IT IS HIGHLY UNLIKELY THAT HE WILL EVER WALK AGAIN. BUT I AM CURIOUS TO KNOW IS THERE SOME FORM OF HOPE TO THIS DILIMA?

              Comment


                #8
                Yes, there is hope. Encourage him to work his hardest at rehab when he's able.

                Here are some words I got off this forum from vgrafen long ago:
                "I have known Hope, and I have lost Hope, as in that moment when the foundation of my struggle, my very fuel to continue, was ripped away from me. Yet, and I’ll defy anyone to challenge this, to Hope, no matter how foolish and mad and impetuous and maybe even selfish it may be, to Hope is better than to die."

                Comment


                  #9
                  It is important to maintain hope. No one (including the doctors) know this early what his ultimate impairment will be. He has at least 2 years before he knows how much he will get back. A disability or spinal cord injury is not an illness...he will not be "sick" once he gets past this acute phase. He can still have a very high level of wellness if he learns how to take care of himself and his body. Right now, you all need to focus on learning as much as possible so that you are prepared for going home, and have a plan for long-term outpatient exercise and activity to maximize what he has.

                  Even worse case (no return) there is still hope. He is alive (and probably could have very easily died). You still have him with you. He can have an active, productive and happy life. He can marry and have a family. He can have a career. There is a lot of hope in that.

                  By the way, you are the father of a son who happens to have a C5 spinal cord injury. You are not the father of a spinal cord injury. Small point, but it makes a difference in both of your perceptions of what has happened. (Also, please don't use all caps...it is considered shouting on the internet, and it is difficult to read. Thanks).

                  (KLD)
                  The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

                  Comment


                    #10
                    My boyfriend is also a C4/5 quad just recently in June 2006. He also has limited mobility just as your son with the shrugging of the shoulders. He has come Soooo far since the date of injury. He is also 23 injured riding in the back seat of a car. If you should have any questions or your son down the road to Jeremy or myself, we would love to help. We are still at the learning stage as well. Just let him no he is not alone and life DOES go on with the love and support of family and great friends.

                    Tina

                    Comment


                      #11
                      I am so sorry to hear of your son's injury. My 19 year old nephew was injured, C6/7 complete, on 11/24/06, and I found this site within two weeks after his accident (motocross racing). My family and I have made new friends in this chat room. People have been so supportive and there is nothing better than the advice from someone who's been there.

                      I had questions about treatment, physical therapy, the house, equipment, etc. and all were discussed in this chatroom. You have much to deal with right now, but knowing that there are other people out there who have been there and made it through, makes a huge difference.

                      I am very new to this that I don't feel qualified to give advice, but I just wanted you to know that someone is thinking of you and your son.

                      Lore

                      Comment


                        #12
                        be brave

                        Hi there,

                        My brother also recently had a injury at your sons level. The doctors also said that he will not have any recovery at all. he had his accident 5 November and had diificulty with his lungs and could not breath on his own up until a week before Christmas. Eversince then he has improved in leaps and bounds. He was transferred from ICU to Rehab on 5 January and there has been improvement every single day. he now has sensation all over the body can feel temparature in his hands and has already been taught how to make use of them as much as possible.
                        My father took this accident the worst in the whole family and I want to tell you that it although very difficult now it does get better. The most important is that he gets a lot of support so that he can stay positive.This is our ecperience so far and although we have not dealt with a lot of things yet just know that no situation is too big to deal with.

                        Good Wishes and regards

                        Corne'

                        Comment


                          #13
                          So sorry to hear about your son's injury. My 22 year old son was in a car accident last year and has a C6/7 SCI. My thoughts and prayers are with you and your family. You are lucky to have found Care Cure- it has been a blessing for me.

                          Comment


                            #14
                            I was also injured c4-c6 when I was 23. I was given a 5% chance to walk again. I also was, for quite a while, in a sip and puff chair. I wanted you to see the picture of me now so you can see that miracles do happen. Always remember that every spinal cord injury is different. You will hear that a lot from now on. I'm heading to China May 29th to get cord blood to hopefully boost my recovery more. May God be with you and your son.
                            C4 -C5-C6 Incomplete Walking Quad. (Brown Sequard)
                            http://www.myspace.com/turbobuick87
                            www.lancestemcellchinatrip.blogspot.com

                            Comment


                              #15
                              Sorry to hear =[

                              I'm a 19 year old, injured C4-C6 incomplete, Asia B this summer [early june]. I could barely lift my arms. I have since then become a C6 incomplete, Asia C. Ironically, I still have trouble with my hands, but I have calf, thigh, hip flexor and glute return on the left leg and calf and thigh return on the right. Therapists say there is a good chance I can walk again if I work hard. Hands may never get better, but it's a trade Im willing to make. Anything is possible. Stay positive!


                              Is your son a complete or incomplete injury?

                              "ιn ѕoмe wayѕ ι love everyтнιng. ιт’ѕ leѕѕ oғ a тнιng тнan 'lιĸe'…leѕѕ dιѕтιncт. leѕѕ…parтιcυlar. ι lιĸe тнιngѕ тнaт ι lιĸe вυт ι love everyтнιng. тнere’ѕ мore cнoιce ιn ‘lιĸe’. вecaυѕe even тнe worѕт тнιngѕ нave тнιngѕ тo love ιn тнeм. ι love тнιngѕ ѕo мυcн ι ғeel lιĸe ι coυld ғloaт away."

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