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19 Year Old Nephew C6 C7 Complete

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    #91
    that is correct.
    http://www.dsportsman.com

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      #92
      I just checked back in. Who is his physical therapist? Is Cathy still the head PT?? She is excellent.

      I was first in one of the four person rooms down the hall in front of the TV room, then was transferred to room 102 I believe, the first one on the left coming in, a single person room.

      I am sorry to hear about the pressure sore. He should be turned every two hours or so, and do his weight shifts when in the wheelchair. I am lucky that I have never had one. I was held up by a body cast (TLSO) and a broken right wrist. Was sent home early and depended mostly on my outpatient therapy, which as someone said, is not as intensive.

      I think that at C6/7 which I believe is his level, he will regain full use of his diaphragm and hopefully will breathe on his own.

      The atmosphere is kind of dark, but stick it out. They see a lot of SCI cases and when I was there there were a lot of out of state patients who had chosen Jackson as the best alternative.

      I´ll look into his web site. Best of luck, this period is crucial. God willing he will make the best of it.

      Originally posted by AuntLore
      Your message makes me feel a lot better. The atmosphere at Jackson was depressing, not in Nick's room (which was full of family and friends), but the hallways. I do need to visit the Miami Project, soon, and talk to people who have been there.

      His birthday is next Monday. He'll be 20. I'm going to take in chocolate fondue and strawberries with whip cream (his favorite). I plan on visiting often and bought him an IPod today engraved with his name and racing number (#451) for his birthday. He's made it clear he doesn't like the hospital food. My sister is bringing in outside food whenever possible.

      He's got a pressure sore and apparently half of his diaphram isn't working causing a lung to collapse, but the PT techs think, with work, he can regain more use of his diaphram. They'll start in earnest once the pressure sore heals. I can't believe how quickly that came up.

      Thanks for your support. And thanks to everyone who has sent Nick a message on his Website (www.nickdepalo.com). Next time I go in, I'll get him started on this site.
      T6 complete (or so I think), SCI since September 21, 2003

      Comment


        #93
        I just checked his web site. He was quite good. Motocross is such an exciting sport, too bad it is so dangerous. I was a veterans class racer, my accident happened when I was 39, I am 42 now (Yeah, I also ask myself what the heck I was doing jumping on a bike at 39, I actually thought I would do it well into my 50´s).

        I think Dr. Green operates cervical injuries. My doctor was Stephen Vanni, even though very cold with patients I am convinced that he saved my life.

        I have not been able to read the whole thread. I do think that he and his family are now going through absolutely the worst part of SCI. Hopefully he will show improvement. No matter what though, things will get better.
        T6 complete (or so I think), SCI since September 21, 2003

        Comment


          #94
          So you were a rider, too. I never really understood the thrill of riding (considering the risks) until I read Frank's (Nick's Dad) letter on Nick's Website.

          Dr. Green said he would try to arrange for Nick to go to the Seminole track with an attendant this Sunday (12/17) for the race to benefit him. Nick was already the featured rider of the race prior to his accident, with his photo on the trophies and shirts. That would mean so much to Nick and the whole family if Nick could be there.

          Honda is auctioning off two new bikes that he was to ride in 2007 through eBay to benefit Nick. Road2Recovery.com has him featured. Everyone is being so generous and supportive.

          I don't know the PT's name, but I'll find out when I go on Friday. Hospitals are depressing, but if they can help Nick, nothing else matters. I'm going to take chocolate fondue and strawberries and whipped cream. That's happy food! (Actually, fondue has a significant place in his mother's and my life. She and I, plus another friend, go away every fall to NC to a cabin on top of a mountain to eat chocolate fondue every night by the fire -- and shop all day. No kids, no husbands, no pets, no work ... It's wonderful!).

          Thanks for your encouragement.
          Last edited by AuntLore; 12 Dec 2006, 9:39 PM.

          Comment


            #95
            Originally posted by betheny
            I think TIRR = Texas Institute for Research & Rehabilitation.
            Thanks.

            Comment


              #96
              TIRR is The Institute for Rehabilitation & Research. Now owned by Memorial Hermann Healthcare System. Address 13333 Moursund, Houston, Texas 77030 in the Texas Medical Center. phone # is 7137995000.

              CWO
              The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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                #97
                Thank you.

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                  #98
                  I didn't get injured while racing but I raced the same class as him. I actually got hurt goofing around wrestling with a friend and not on the bike. Weird huh? I'm 10 months post now and have had about 3-4 months worth of set backs with almost no therapy due to illness. KEEP HIM HEALTHY!

                  I can now stand up on my own in parallel bars, and take a couple baby steps. He will do great things. Us motocross racers have that never say die attitude.

                  I'm not stopping until I get back on my bike. People laugh when I say that a lot, but if you believe, and work hard enough, in my eyes anything is possible!

                  Get him in that wheel chair as much as possible. Encourage him to try things normally, not with 'tools'. MAKE that signal try to push through and work. I was very stubborn with the 'tools' and believe it paid off.

                  Most of all everyone needs to be patient.

                  I think of it like this. A broken leg can take up to a year to heal. This was an entire trauma to his whole body. It's going to take time.

                  Feel free to message me any time!

                  - Clint
                  Injury Date : Feb. 23rd 2006, c6 Incomplete.

                  Comment


                    #99
                    Clint,

                    I can't believe you are a motocross rider, but got injured goofing around. Sounds like you are making good progress. Congratulations and thank God for small favors. Nick's immediate goal is to regain the use of his fingers.

                    Nick came to my house, along with about 20 other family members, on Christmas Eve day (one month to the day post injury). It was wonderful having him here, and I know he likes being out, but it must be so boring for him. After all, he is used to being very active and all he can do is sit in the wheelchair or lay on the couch. His family isn't equipped yet to take him out easily, and I hope that doesn't discourage him from getting out whenever he can get a pass.

                    He is amazingly approachable. He will talk to anyone, young or old, and really engages. I'm so impressed by him. He's such a great kid. This is a very tough time. I wish he could see that the future will bring this "new normal" I hear about -- that he'll have fun, and independence, and that it will get easier.

                    He probably has six more weeks at Jackson, then he'll be an outpatient. The wireless in his current room is awful and his laptop will not stay online, so he can't access this Website. He won't be changing rooms again, so he'll have to wait until he gets home to chat.

                    Take care.

                    Lore

                    Comment


                      Originally posted by AuntLore

                      If I knew how to post a picture, I'd tell you. I know how to email pictures, but this requires it have a URL.
                      Check out this post for avatars, it includes posting pictures from your hadrdrive

                      /forum/showpost.php?p=298800&postcount=1

                      It is basically a case of using the paperclip icon on the top row.
                      Last edited by sjean423; 26 Dec 2006, 10:40 PM.
                      T7-8 since Feb 2005

                      Comment


                        Hi AuntLore,

                        It's great that you are tapping into such experience at CC. My 2 cents includes getting Nick in the pool as much as possible and , of course, work those hands! I was in the same boat after my motocoss accident (Vet Pro) in Boise, Idaho almost 4 yrs ago. When I left the inpatient PT I could barlely close my left hand. It took time and effort, but strength can return.

                        I'm impressed with MX SCI folks because they understand working out everyday anyway and that's what is required to at least keeping atrophy from happenning.

                        A SCI friend of mine told me while I was in the hostpital, "things will get better." It does, but it's work. Also, they say that most get return in the first 6 mo., but it could take 2 yrs. My return started at 13 mo. post and here it is almost 4 yrs and I feel new stuff everyday! Pat

                        Comment


                          Pat,

                          When I hear from people like you, who know better than anyone else, that improvement can come, even four years later, it's encouraging. I want Nick to be on this site and see replies like yours -- he needs to hear this for himself. I wish he could while he's an inpatient, but the wireless is too weak in his room. He needs to hear what it will take and what can be gained. He wants to regain the use of his fingers and I think it's so important to know that it can take a long time. I don't want him to give up. He can go back and read this thread when he gets home. I'll make sure that he does.

                          He has had a few motocross or even street bike accident SCI injuried people stop by to see him, to tell him what to expect, what worked for them, etc. Those visits are always good for him.

                          I remember that Nick wouldn't go knee-boarding with us a couple of summers ago (the summer of the shark attacks in Florida) because he was worried about sharks. I thought then, here he'll speed around a track and thinks knee-boarding is too dangerous. I was wondering if a pool wouldn't be good, under the right circumstances -- it looks like it is. Is there anything special about the pool that we need to know or is that a standard therapy?

                          When you were an inpatient, was there anything that you especially wanted people to bring to you in the hospital?

                          Thanks for your reply and I wish you continued recovery.

                          Lore

                          Comment


                            Beautiful picture, Lore! Nick is certainly lucky to have you looking out for him. You've learned alot already having found this site. Too bad he can't get onto the computer himself. Back when I was in rehab, my son set up an email account on the shared computer in the common room and it was great to communicate with family & friends as well as get on the web.
                            I belong to a local YMCA with a pool and exercise room that is fully accessible although I always have someone with me. There are physical therapists that provide water therapy ~ it's great exercise and feels so great to be in the water. Has Nick started any therapy yet? I seem to remember he had a wound that delayed his start.
                            Again, it's so great that you're so involved ~ I'm sure it's so very much appreciated. Continue to encourage him and the family.
                            Lois

                            Comment


                              Lois,

                              I don't think there is a common computer room at Jackson in his rehab building where Nick is located, but I'll check. They do have wireless, it's just weak in his wing. My son has taken his computer to the opposite side of the building and it will work ... not well enough to download a song, but better than in the room.

                              Nick's pressure sore healed and he was able to start therapy two weeks ago. They have him working pretty much six days a week, from about 9 to 4 -- from brushing his teeth to learning to lift his legs with a strap. Sometimes it's frustrating, but he doesn't want people to do things for him unless he asks. He's really amazing how he has so much control over his attitude. He's not letting the injury control him. I'm so impressed and so is everyone that meets him.

                              I can imagine that the pool would be good. I had labor for my daughter in water, not that that is the same, but I remember the relief the support of the water gave me. Therapy in a pool is an option that we might find closer to his house when he goes home -- like you, at a YMCA. I'm going to check into it.

                              I've made some wonderful contacts through this Website and through other friends of friends. The best advice (by far) comes from people, like you, who have been there. I think I'm going to see if there's a way to get dial up in his room during this time.

                              On my picture, it's out of focus. I think I cropped and reduced the pixal size so much it made it blurry. I'll have to try again.

                              Thanks for your advice. I hope you have a safe and happy new year.

                              Lore

                              Comment


                                Originally posted by sjean423
                                Check out this post for avatars, it includes posting pictures from your hadrdrive

                                /forum/showpost.php?p=298800&postcount=1

                                It is basically a case of using the paperclip icon on the top row.
                                Thanks so much for telling me how to post pictures. Now that I know how, I'm going to post a picture of our pets, and of Nick and family on Christmas Eve at my house. Too cool!

                                Lore

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