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Stem cell therapy to do or not to do?

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    #16
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    Riaan does not have any other injuries, he looked a lot better this morning 65% oxygen and coping well on his side/back. The lung specialist anethetized him again this morning to drain the lungs more, tonight again he is back on 90% oxygen and heavily sedated.

    It seems that every time that he gets anesthetic he has a relapse. Would he not be better off without all of this procedures? I mean he was fine until they "drained" his lungs again this morning. They have to get permission every time to do this from my folks and I am getting the feeling that they are strugling with the same questions,

    I don't want to tell the doctors what to do but logic says to me that he coping better without the procedures being performed on him the whole time. Every time he has been for anesthetic it takes a week for him to recover and then there is something new that they "have" to do? i know it is difficult if the patient is not in front of you but for me it just feels like he will be better off sometimes if we just leave him to get use to the ventilation and don't give him anestetic again.

    Thanks for all the help and comments.

    South African Greetings
    Corne'

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      #17
      Corne'

      Hi! Welcome to carecure...my husband is a c5 incomplete from almost 4 yrs ago.....he spent 40 days in the ICU and on the ventilator....we learned a few things from his experience...

      First let me be clear....
      everyone is different and responds differently....I am NOT a medical professional in any way...just what I have learned through 4 years of SCI experience.t

      My husband did the same thing you mention the nurses and respiratory specialists worked on him all day clearing his lungs.... he would do better...then at night he received increased pain meds to sleep and his breathing would get worse...we now know that pain medication slows down the respiratory function and that is probably why he had the problem he did....you mentioned they keep draining his lungs...how do they do that? Do you mean they are suctioning his lungs? Also, are they turning him frequently to keep the secretions moving in his lungs to prevent pneumonia?

      I know it is overwhelming but hang in there you came to a great place for there are many here who care and want to help. I know you don't want to question the doctors it is okay to ask questions so you can be more comfortable with his treatments.

      Stay strong

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        #18
        Originally posted by borries
        Riaan does not have any other injuries, he looked a lot better this morning 65% oxygen and coping well on his side/back. The lung specialist anethetized him again this morning to drain the lungs more, tonight again he is back on 90% oxygen and heavily sedated.

        It seems that every time that he gets anesthetic he has a relapse. Would he not be better off without all of this procedures? I mean he was fine until they "drained" his lungs again this morning. They have to get permission every time to do this from my folks and I am getting the feeling that they are strugling with the same questions,

        I don't want to tell the doctors what to do but logic says to me that he coping better without the procedures being performed on him the whole time. Every time he has been for anesthetic it takes a week for him to recover and then there is something new that they "have" to do? i know it is difficult if the patient is not in front of you but for me it just feels like he will be better off sometimes if we just leave him to get use to the ventilation and don't give him anestetic again.

        Thanks for all the help and comments.

        South African Greetings
        Corne'

        Hi, in my personal experience everytime they kept me sedated it would get my lungs full of mucus and some other weird fluids. I wasn't able to move my hands much, lost like 50 lbs or more in 2 to 3 weeks and had many complications. They wanted me sedated because of the pain but they figured it was better to keep me awake to help me with the lung problems. I was, according to my doctors, improving 500% per month. I think we all have improved significantly since the SCI. I can almost tell you with confidence that he will regain some of what he's lost but with time and therapy. Also, he is lucky to have gotten the SCI now than 5 years ago because much is being done to cure or improve the way of life. Read about Romeo and his treatment in Russia /forum/showthread.php?p=564570#post564570 or Handibob's treatment in Beijing /forum/showthread.php?p=499666#post499666. I had mi SCI on 2-02-2002 and couldn't move anything below my chest and my arms were useless. A few weeks later I was told that I was paralized for life but had my arms and hands 95% back. At the time there was nothing to do but pray and hope for a miracle. Good luck to your brother.
        AstrO

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          #19
          update

          Hi there,

          Thanks for all the advise and replies. Riaan is still in ICU struggling with the lungs. In the x rays today it showed that one of the lungs are white and the other black, subsequently they had to drain him again today. The doctor is saying that they can not explain why his lungs keeps on producing this thick liquid in the lungs. Physio helps a bit but not much. My wish for Christmas is that he will be able to spend it with us, 20 days to go, I will keep hoping.

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