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Are there any children or teens with SCI in TN?

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    Are there any children or teens with SCI in TN?

    My son is 9 years old. He had TM on 11/18/2005. He is a T-10 complete. We are interested in finding anyone in the area with SCI. We are in Knoxville. We returned from KKI last week. Good experience. He really misses the comraderie of the folks in the spinal cord gym. Really great folks there.

    Thank you for your help.

    Pam

    #2
    Originally posted by pnadolsky
    My son is 9 years old. He had TM on 11/18/2005. He is a T-10 complete. We are interested in finding anyone in the area with SCI. We are in Knoxville. We returned from KKI last week. Good experience. He really misses the comraderie of the folks in the spinal cord gym. Really great folks there.

    Thank you for your help.

    Pam
    Are you a ways from Louisville? Susie harkama has a program similar to KKI with the supported ambulation. Good program, good folks. I know that she has a 3 yr old as well as a teen in the program.
    Every day I wake up is a good one

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      #3
      I am interested

      I am only a few miles from Louisville. Can you give me her contact info.? I would be interested in talking to her.

      Thank you.

      Pam

      Comment


        #4
        KY or TN

        I am a few miles from Louisville, TN. I am 6 hours from Louisville, Ky.

        Thank you.

        Pam

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          #5
          It is Louisville KY.
          You can find the contact info here:
          http://www.christopherreeve.org/site...ry_Network.htm

          She is at Frazier Rehab.
          Every day I wake up is a good one

          Comment


            #6
            HI I am close to Nashville T 12 complete. I am 31 not a child or teen, but thought I'd say hello. Welcome here, there's a lot of useful info.
            If you can't handle me at my worst, then you sure as hell don't deserve me at my best.


            Sometimes it is easier to widen doors than it is to open minds.

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              #7
              Thanks for responding

              Hi,

              We are so glad you responded. Thank you. Have you found many folks in TN?



              Pam

              Comment


                #8
                Originally posted by pnadolsky
                Hi,

                We are so glad you responded. Thank you. Have you found many folks in TN?



                Pam
                Hi, Pam. I'm not a child either, but I'm in Chattanooga and wanted to say, "Hello!"

                I'm sorry you had to find CC, but glad you are here.

                Mem aka MaryEllen
                c-6/7 incomplete since 1993, cp since birth

                Comment


                  #9
                  the Tennessee Sled Hockey Association has a team in Knoxville. I cant find any info on it and any distinction on if it is a junior team or not, but look into wheelchair sports if thats something that your son is at all interested in. its a great way to meet people and stay in shape.

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                    #10
                    Thank you.

                    Thank you so much for responding. We are glad to meet you.

                    Thanks so much for the information. I will check into it.

                    Pam

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                      #11
                      Hello and welcome to CC. We just moved from Knoxville to Wisconsin last year and thought I would tell you some helpful things we found while in Knoxville.
                      The Patricia Neal Rehab Center at Fort Sanders Hospital was a very good experience, especially the OT's. They do pressure mapping for chair cushions there
                      Dr Jeff Hecht, Physiatrist at U of T Hospital, very easy to work with
                      Associated Therapeutics, it's a private therapy facility with gym equiptment that they worked with us to adapt and a clean pool with a lift and specialized equipment. Ask for Andy. We got this covered by insurance from a script from Dr. Hecht. It is mostly older folks but good with therapy.
                      Van from Mobility Specialists on North Broadway in Knoxville, the dealer is c5 and extremely helpful with all conversions, lifts and general information.
                      You might try the Knoxville Childrens Hopspital social workers to see if there are clients they could hook you up with-although it might be tricky with HIPPA laws, maybe they have a support group. There is also an ILC in Knoxville, it's downtown and they have alot of activities.
                      Hope this is helpful, even though it's not exactly age-related. Deb

                      Comment


                        #12
                        Hi Deb,

                        Thank you for the information. Pat Neal refused us, because Ben is a child. I will try UT Hospital and Associated Therapeutics. We have been going to The Therapy Center for PT in Knoxville. Every 3 months we go to KKI in Baltimore. Our physiatrist, Dr. Ewa Brandys, is incredible. I am not familiar with ILC. Can you please elaborate?

                        Thank you!

                        Pam

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