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How many people are "walking quads"?

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  • #16
    Beelady
    Hi...I'm 20/f. December 25, 2002 I was in a roll-over which resulted in a c6/c7 incomplete sci. I saw your post, it was eerie, felt like I was reading about myself almost. I have almost normal arm movement. My main prob is I don't have full finger extension in my right fingers. I also have sensation since the beginning and motor return to t-12 maybe L-1. No leg movement yet [img]/forum/images/smilies/frown.gif[/img]...but I will!!! Anyways if you wanna talk let me know. Like I said, me and your son sound verrry similar....
    Thanx
    november
    Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know that, so it goes on flying anyways--Mary Kay Ash

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    • #17
      Wise (and all),

      I surf this site alot but J, my paraplegic T5 complete ASIA - A buddy is too busy to come very often. If I could vote for him -- he is walking with RGO braces and walker - and he is now 4 years post injury.. learned to walk 3 months ago so it IS possible..

      Presbynurse

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      • #18
        Thanks, PresbyNurse.

        There is also the question of what methylprednisolone does for people who are incomplete. According to the clinical trials, people who were incomplete at the time of admission and receive methylprednisolone within 8 hours recover approximately 75% of the motor function that they had lost. Most of the Model System Data were collected before the methylprednisolone was being routinely given to people with spinal cord injury. Wise.

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        • #19
          Walked Quickly, Now Losing Function

          I have an incomplete C5-C6 with central cord syndrome and Brown-Sequard syndromes. I also have a small cyst in my cord at approximately C-6 which was originally a hematoma. I was told I would walk but that it would take months. I walked in a month-and-a-half. In the past two years I did three short triathlons. Last year was a struggle and I eventually had to stop training. I developed feelings in my arms like I was being bitten by fire ants whenever I was in the sun on a hot day. I started having issues with overheating. In the end, whenever I would work out in heat I would end up very sick and in extreme pain from my face down. It is winter now and is a blessing. My neurologist has told me that everything I described was due to aging with my SCI. He let me know that my mobility would decrease over time. I don't know if he is right. No one in Austin seems to know what to do with me. It would be ironic if I ended up in a chair after walking for so long.
          "What need have you to fear the monstrous crying of the wind?"

          Kitty

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          • #20
            Kitty-
            you need to see a new neurosurgeon ASAP! anytime you've got a
            decrease in function that is NOT normal & is typically a sign of a syrinx. It sounds as if you've already been diagnosed with a syrinx but your dr is not treating it. I know there are others here more familiar w/TX and where you might want to go, but my firs guess would be to contact TIRR and see if they can recommend someone.
            'Chelle
            L-1 inc 11/24/03

            "My Give-a-Damn's Busted"......

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            • #21
              had a silent heart attack and fell off of a ladder and tried to see if I could touch my head to my butt. nope I can't.. I did learn that nose dives hurt less in water than on cement..
              I had a lamenectomy of C3-C6 and ended up being C5/C6 incomplete and functioning at a C6 level. I walk about 200ft with the use of a quad cane. I have 70% return of left side and 30% return on right side I have drop foot and have use of thumbs, index fingers and middle fingers. 30lbs of grip with left hand and 10lbs grip in right hand. I started walking three weeks after my fall. I have other issues but that is for later.

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              • #22
                walking poll

                Call me stupid, but what is "gt" and "lt" ?
                Ugh, I've been kissed by a dog!
                Get some hot water, get some iodine ...
                -- Lucy VanPelt

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                • #23
                  C5-7 Incomplete but I don't walk. I think that if I could get qualified therapy, I would be a hellva lot closer to it

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                  • #24
                    Originally posted by PeanutsLucy
                    Call me stupid, but what is "gt" and "lt" ?
                    I believe there used to be symbols there...

                    gt= greater than
                    lt= less than
                    'Chelle
                    L-1 inc 11/24/03

                    "My Give-a-Damn's Busted"......

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                    • #25
                      walking

                      Got it. Thanks.

                      In that case, my son is a walking para (L1 incomplete) but told his chances for recovery were not good. In fact, we were told he would face "severe mobility issues" for his entire life.

                      He started walking with KAFOs in the parallel bars about 6 weeks out. At 11 months, he's using forearm crutches and AFOs and can steadily walk about a half mile (he did a mile two weeks ago -- yippie!).

                      Though, he doesn't have much use of the muscles that control balance. Therefore, his abilities don't transfer well to places like to mall or mega-stores because most shoppers are too self-absorbed to even think there might be a disabled person in their path and I worry about him getting bumped and falling.
                      Ugh, I've been kissed by a dog!
                      Get some hot water, get some iodine ...
                      -- Lucy VanPelt

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                      • #26
                        C6C7 WAS asia a now c but no leg movement just muscles firing . they told me at shephards they thought i would get a lot back wrong and i have tryed
                        but..... i am just sick and tired of feeling bad all the time. i usedto be so damn strong never sick but i am a wuss now

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                        • #27
                          Depends what is meant by "walking"
                          Walking in the physio gym but not functionally walking away from it.
                          I answered not walking.
                          I look forward to coming back in a few months to change my answer though.
                          C3/4 Brown Sequard

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                          • #28
                            I edited the poll.. It was a very old poll from 2003 and it was mistranslated. I edited it to place the correct ≤ and > symbols, as well as the question of the poll.

                            Alex, at the time of the poll, I left the definition of walking and "incomplete" to the person answering the poll. In retrospect, I probably should have emphasized the ASIA (American Spinal Injury Association) definition of "incomplete", i.e. presence of anal sensation and voluntary anal sphincter contraction. I probably should have emphasized walking by oneself without another person's assistance but using muscles of the legs with the use of canes, crutches, walkers, and braces.

                            Wise.

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                            • #29
                              T11 incomplete ASIA C possible LMI

                              Son - Sean Age 6 2 years post on the 7th Feb. Not walking but working hard on standing without braces. Just finished 4 month programme Gait Training with the Kids Step Research project in the University of Florida.

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                              • #30
                                I am 11 mths post but not walking yet. I am c4/5 asia c, incomplete. I have a good amount of movement in my left leg and foot. Can only move little toe on right side, however I have a pt evaluation Feb 12 to determine if I am a good candidate for the neurorecovery network program at Shepherds to help me walk again.
                                __________________________________
                                C4/5 functioning on a C6 level, use of left hand, no triceps

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