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New article about acute spinal cord injury - feedback would be very welcome

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  • #16
    Wise - I have just finished reading your new post on this new forum. You have put a complex subject/injury into terms that are understandable for those who need it most. As has been noted, most importantly, you have presented this so that the newly injured family can find reason for hope. The "negative, done-deal and no words to offer realistic hope" is what we hear daily from the people that call the NSCIA Resource Center, when there is a person with a new SCI in the family. I am asking our staff to read this article, bookmark it and refer our callers to it. Thanks so much! CRF
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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    • #17
      well done.

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      • #18
        Thanks.

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        • #19
          my suggestion-dr young

          in the early stages friends and family are asking what they can do to help, maybe a reference as to how to get politically involved. like calling or writing thier politicians for funding like the crpa. as we all know, people trying to help are in the greatest numbers shortly after the injury so a suggestion to try this, may be the best time. bob

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          • #20
            Handibob, good idea... I am not sure that I am the best person to write such an article. Wise.

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            • #21
              maybe leo or patricia wise

              from the legislation forum could do it, i'd like to help but my typing skills are less than poor. bob

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              • #22
                Dr. Young,

                Thank you for an excellent article. I can only echo the thoughts of everyone else in this thread. It was months after my injury before I really understood what was going on. Your article would have helped immensely back in those early days.

                I like the idea of printing this article and distributing it to local trauma centers and ERs. I think it could help new SCI patients as well as help train the medical staff. Dr. Young, do you mind if I take copies of this to the hospital where I was originally treated?

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                • #23
                  Brian, I put a pdf file of the article on the main site that should print out with page breaks. Sure, no problem with distributing it. I will be continuing to update it with comments and suggestions from people. Wise.

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                  • #24
                    Dr. Young, the article is very good. And the phrase " recovery is the rule and not an exception after spinal cord injury" is just wonderfull and makes me very happy.
                    Chris.

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                    • #25
                      Christiane, thanks. I just edited the article a little and also added a pdf file of the article for those who may want to download the file. Wise.

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                      • #26
                        Thanks Dr. Young for taking the time to write such an insightful article. The time following the onset of a SCI is one filled with endless questions and concerns, and not always are the answers easily accessible. Thank you for providing a resource making them so.

                        "I will drive the lane,
                        I will drain the three,
                        I will finger roll,
                        but the one thing I will not do is FADE AWAY"
                        "I will drive the lane,
                        I will drain the three,
                        I will finger roll,
                        but the one thing I will not do is FADE AWAY"

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